Janet C

[Guest guest]

I am so glad that you are feeling better and that Monday does not

feel so long a way for you. This disease is so frustrating because

so little is truly known about it. There are just a handful or 2

really good pancreatologist in the country and they themselves do

not know all that is involved. That is why it is so important that

we share what we have expereinced with one and other.

I have taken informations and ideas that members have gotten from

their physicians or from their own expereinces to my physicians.

Most of the pain my doc would follow the suggestions. Perhaps that

is why he was so helpful in getting the PAI web page linked to the

MUSC digestive disease web page.

I am also blessed to have such an understanding and supportive

husband. We have been friends since I was 14 years old and when I

turned 18 he asked me out, we have been together ever since. He has

never once said I was a burden in any way. I was the one who FELT

like a burden. I am the one who feels useless and inadequate. I am

the ones who's life was destroyed and I am the one who has been

changed forever. We have had some hard times and I cant tell you

what the future might bring. But he has stood beside me and has

taken care of me better then my own mother could have.

Like I said in my post, I have a lot to be grateful for and I dont

discard my blessings in the least. I just need to find myself

again, that is what has been lost, the essence of who I am and the

belief in myself. I think it has just dawned on my while typing

this. I am depressed because I am mourning a great loss. Myself.

Hope things go well with the Doc on MOnday, please let me know how

it goes and trust that you are in my prayers as well.

Warmly,