T

[Guest guest]

I am so very very sorry. What a horrible ordeal you have endured.

I am glad that ya'll called Debbie ( I know her well) she is a

wonderful nurse. Take it ver very easy and let your hematoma rest.

If your not feeling bette by monday I would give them another call

just to be on the safe side. They do usually resolve on their own

but it can take some time.

Do you know what part of your pancreas is most affected. Is it the

head, the tail or a drainage issue. Those are questions you may

need to answer in order to decide whether or not to continue to look

at surgical options. A whipple will remove the head, a distal

pancreatectomy will remove the tail, and a Puestow procedure deals

with drainage issues within the main pancreatic duct. Your tail

must be ok, as that is where a majority of the islets are found and

they already cleared you in that regard. Perhaps a puestow or

whipple. I had a Beger procedure which is the removal of the head

without removing all the other stuff that the whipple does.

As far as staying on long term, life long narcotics that is

something that a pain management doctor would deal with. There are

lots of people that do it and there are not too damaging life long

effects. However with liver problems that may be a different

story. I'm not sure.

Did they reccomend you see a liver doctor to deal with that? Or is

it something that might resolve on its own in time. I had a MRCP

about 2 years ago and my liver was fatty, but had another one a year

ago and it was not. I asked the doc and he said I was a lot fatter

myself 80 pounds fatter, then and I had lost the fat in my liver.

Go figure, didn't know you could do that. So guess that makes me

skinny on the inside...LOL.

Anyway, I would think talking to a hepatic doctor would be a good

idea. You could still have a total without islets, a lot of people

do and are ok. Sue from the UK has and she has gone back to work.

She also comes on here often. There is another support group on

yahoo for total pancreactomy survivors, you can go on there and ask

all the questions you want. You may not end up brittle at all but

if your panc continues to deteriorate you could without warning.

That is a long way down the road tho.

darling, I know you just feel shock and are really upset right

now, but thank goodness they are so thorough in thier testing. I am

so sorry again and I truly hope you feel better soon. If there is

anything else I can do to help you please dont hesitate. I will

keep you in my prayers and hope that your hematoma clears up.

Warmly,