help, so tired, scared, and don't know where to turn.

[Guest guest]

Hi everyone, I have not posted for awhile, I am currently getting 8 days

in the hospital IV iron because my iron stores are " 1 " . The docs ask me

how I am even walking. I am on disability and doing nursing consulting

independently. I can't eat most of the time. I have right upper

quadrant pain after eating most things even drinking. I have a

megacolon, that needs treated with a ileostomy if I ever gain any weight.

I'm to the point now that I don't even want to eat. How do you all get

along with this disease. I also have cystic fibrosis with all of the

malabsorption problems. I can't find a good nutritionist, to help me. I

do hyperals at night time when I'm not able to eat. I stay away from fat

and now my blood sugars are elevated at night time only and that is

without TPN. They run about 180. I eat a lot of hard candy at night

time and the physicians told me to stay away from concentrated sweets,

but that is so hard. How do you all do it, give me some pointers, I

don't want to die but I'm headed there if I don't get this turned around.

Prayers to all. Deb