Tomorrow day 5-help?

[Guest guest]

I started with intro diet. I went to cooked apples 3rd day. For

tomorrow's meals I peeled and deseeded apples but forgot to cook. My

daughter is tube fed and so I blend up her entire food for the day

and then seperate in to 6 meals. She has been " eating " Chicken broth,

chicken, carrots, hamburger, beef broth, eggs, with the last thing

being added is the apples. I started the scd legal multi vitamin from

Kirkman on day 3.Although she has not been diagnosed with autism, she

does have seizures, dev delay, and does not make good eye contact.

Since starting this I believe her eye contact is improving and she is

not having as many seizures around feeding times. My questions are:

I have not witnessed the die off everyone is talking about, no

diarrhea, she is making bowel movements (not every day)that are

soft/formed. The one thing she is coughing, which is not usual. Is

this okay?

Can I go ahead on day 7 and start with 1/8 tsp of scd yogurt since

there is no die off?

Lastly, will the mistake I made with the apples mean I need to stay

with just doing cooked apples a little longer before moving on to

cooked pears?

Sheryl, mother of Trinity (mitochondrial disease, seizures, periodic

vomiting, constipation, no known food allergies)

[Guest guest]

Dear Sheryl, I caught this post and noticed that your daughter had

been diagnosed with mitochondrial disease. Doctors think that this

could be our daughters problem. Her symptoms match 80%. Next week we

are off to Atlanta Georgial to see Dr. Shoffner at Horizon Molecular

Medicine. We have been eating SCD for over a year now. It has helped

her much. I am glad to see that it is helping you too.

We are looking forward to understanding more about her issues. Can you

please contact me off serve. They have talked about doing IV

supplemental nutrtion with her. Her stomach appears to be shutting

down...she can eat over 3400 calories a day and it does not get

utilized. Much of it is undigested...even if it is easy to digest

foods. Enzymes have helped a bit...but as you know...with mitochondrial

disease there is more to it.

I would appreciate talking to you off serve. ajbunce@...

Thank you! Antoinette Mom to Kiki-2 Celiac, Autism, seizures and

possible Mitochondrial Disease.

[Guest guest]

Hi Sheryl,

<< I started with intro diet. I went to cooked apples 3rd day. For

> tomorrow's meals I peeled and deseeded apples but forgot to cook.

My

> daughter is tube fed and so I blend up her entire food for the day

> and then seperate in to 6 meals. She has been " eating " Chicken

broth,

> chicken, carrots, hamburger, beef broth, eggs, with the last thing

> being added is the apples. I started the scd legal multi vitamin

from

> Kirkman on day 3.Although she has not been diagnosed with autism,

she

> does have seizures, dev delay, and does not make good eye contact.

> Since starting this I believe her eye contact is improving and she

is

> not having as many seizures around feeding times. My questions are:

> I have not witnessed the die off everyone is talking about, no

> diarrhea, she is making bowel movements (not every day)that are

> soft/formed. The one thing she is coughing, which is not usual. Is

> this okay? >>

Cold and flulike symptoms often occur at the beginning of the diet.

They seem to be related, for some people, to die off.

> Can I go ahead on day 7 and start with 1/8 tsp of scd yogurt since

> there is no die off?

I would first wait and see if she has any reaction or change in

symtoms with the raw apples. If there is no reaction than I'd start

with 1/8 tsp of SCD yogurt. After you introduce it watch for

reactions and slowly increase the amounts.

<< Lastly, will the mistake I made with the apples mean I need to

stay

> with just doing cooked apples a little longer before moving on to

> cooked pears? >>

See how she reacts to the apples. If all is well than try cooked ,

peeled pears.

Sheila, SCD Feb. 2001, UC 23 yrs

mom of Em and Dan