What Time of Day is Your Pain the Worse

[Guest guest]

Hi Gang,

Motherhood is more than I ever expected! and I are learning

the ropes, though, even if we're old parents! I have been in the

hospital twice this year and most recently the first part of March.

I was curious to know from fellow members when you find your pain

the worse to tolerate. I find it first thing in the morning and

sometimes it will wake me in the early morning hours, then most of

the morning I deal with the pain until my meds kick in (and even

that isn't reliable). Attacks over the years have truly happened at

any time during the day, but I have found a majority of mine are

first thing in the morning. Any response from members would be

greatly appreciated.

Judy

Wakefield, VA

[Guest guest]

Evenings are usually my best time, late afternoons and evenings I usually get a

spurt of energy. The morning hrs are the worst for me starting about 3 am and

going till about 10 or 11 am. If I have a commitment early in the am that I

can't get out of, I am junk for the remainder of the day. I only have my son

every other week, and both of the past 2 weeks that have been mine, I have spent

at my parents so he can just get up and walk to school. Otherwise I have to

drive him if we are at the apartment.

The whole world we travel with our thoughts,

Finding nowhere anyone as precious as one's own self.

Since each and every person is so precious to themselves

Let the self-respecting harm no other being.

-from the Samyutta Nikaya

[Guest guest]

My pain is worse in the evening most of the time. My nausea is really worse

in the evenings. I do have pain in the mornings when I wake up and can usually

get it under control very quickly but when I can't and it gets worse that is

when I know it is time to go to the hospital.

At night I will wake up in pain and take my meds and put a heating pad on

and sit up in the bed propped up on pillows until it eases up. I work in

kindergarten so at work I can usually take my pain meds and keep going but there

are

times I have had to leave work due to the pain. Some days it is just a

constant thing that won't let up.

I am like in the fact that wearing things on my waist bothers me.

Jeans are out of the question. I wear dresses to work every day unless it is

really cold and then I wear elastic waist pants that are a size bigger.

Congrats on your new little one! To have a child is to forever have your

heart walk around outside your body! My children are older now I cannot imagine

having cp and taking care of a little guy. My heart goes out to you!

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "