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[Guest guest]

Hi Cheryl, welcome to the group. You have come to the right place.

These are some of the most wonderful people I have ever met. They have

helped me out many times and I hope that I can return that blessing by

helping others as well. I know hard hard it is raising a family when

you are unwell. I have 3 children, they are a little older and do help

me. Well except for my 15 year old son...LOL.

Your story sounds very familiar as a lot of folks have had the same

type of situation. You didn't say where you are. I am in SC and had

received my treatments at MUSC and in Cincinatti OH. Lucky you to have

a dcotor in the house. I am a RN and worked with the docs who cared

for me for years, long before I ever became a patient.

I'm sure you have already been told to abstain from all alcohol and to

eat a low fat diet. Have they put you on any pancreatic enzymes for

your insufficiency? It takes a while for your body to get acclimated

to them but they make a world of difference. A lot of people

supplement their diet with MVI's and antioxidents. They do help with

the loss of strength from not being able to eat or absorb foods

properly.

Ask any question you like, we tend to talk about everything here, and I

do mean everything.

Warmly,

(SC)

[Guest guest]

I am in Missouri. I am on Viokase (pancreatic enzymes) - 6 pills

before each meal. No alcohal, low fat, all that, you bet!

My kids are 4 and 1 1/2, so it's really hard right now - they have so

much energy and I have none!

We also just found out we're having insurance problems, so I'm feeling

really stressed, since the last few days have been really bad and I'm

anticipating another ER trip. I have other health issues on top of

pancreatitis, so this is a real stretch for us (lupus anti-coagulant

antibodies and a hysterectomy coming up)

Thanks everyone, for the warm welcome.

Cheryl

[Guest guest]

Cheryl,

Boy, your story sounds alot like mine, except for having an internist at home.

I hope things settle down for you soon and you can start to manage this disease

better. This is a wonderful group of people here. Welcome!

Sandy in Ca

I'm so glad to have found this group. My name is Cheryl and I'm 28

years old, mommy to two little boys...this is my story (hope this is

the right place to put it!)

[Guest guest]

Hi Cheryl!

Welcome to the group! I am sorry that circumstances have brought you

here, but you will find a very supportive, wonderful, caring

group...you are not alone!

I am 34 with two boys, your story is very similar to mine...mine

started 5 years ago with gallbladder problems, removal and retained

stone, a bad ERCP...and so on. I know it is hard with little ones,

your boys are about the age mine were when I started down this road. I

pray you have family and friends that can help you out. I have learned

that the more tired I am the worse the pain/vomiting, and I know as a

Mom of small kiddos, tired is a constant state of being. Feel free to

e-mail me anytime, I don't have answers, but I sure can listen and try

to understand.

Again, welcome. I hope you find this group as wonderful as I think they

are!

Hugs,

Suzi B.

Colorado

[Guest guest]

Cheryl,

Welcome to our family. I see that some members have already written

to you, and that some have had similar experiences to yours.

Hopefully this will help you to feel comfortable here and allow you

to continue to let us help you as much as we can. You have a slight

advantage, having your own doctor right in house, but I'm sure that

even with his attention, it's nice to be able to talk to other people

that share the disease.

Trying to raise two little ones, and cope with CP at the same time, is

a real challenge. I'm fortunate that my CP hit me late in age and my

four children were already in adulthood before this began.

You didn't mention if you were on any medication to help with your

nausea and vomitting, are you? If not, that's something that needs to

be addressed immediately, because you just can't take care of two

children when you're having to run to the bathroom all the time. A

good home rememdy for vomitting is to put a slice of fresh, raw

ginger root between your gums the lining of your mouth. Ginger ale

and ginger flavored candy also helps.

Since you didn't mention any medication at all, do you mind telling

us what medication you're on, and whether you've been prescribed any

pancreatic enzymes, yet?

With love, hope and prayers,

Heidi

Heidi H. Griffeth

www.pancassociation.org/anthology#Heidi.html

Bluffton, SC

SC State & SE Regional Representative

Pancreatitis Association, International

www.health.groups.yahoo.com/group/pancreatitis/

Note: All comments or advice are personal opinion only, and should

not be substituted for professional medical consultation.

[Guest guest]

> Since you didn't mention any medication at all, do you mind telling

> us what medication you're on, and whether you've been prescribed any

> pancreatic enzymes, yet?

Heidi (and all) -

Currently the only thing I'm on for the nausea/vomiting is Reglan,

because I've found that everything else makes me too sleepy to take

care of my boys. If anyone has any suggestion of good nausea meds,

I'd love to hear them.

I am on Viokase - pancreatic enzymes - and have been since the

beginning of May. I also have several pain killers (Darvocet and

Naproxen - I'm allergic to anything with oxycodone or codeine in it,

as well as Demerol), plus I take anticoagulants for a bleeding

disorder, antidepressants, and am currently being treated with

antibiotics and oral and nasal steriods for sinus problems! I also

take Carafete for gastritis, caused by the bile from my pancreatitis.

[Guest guest]

Hi there,

I am new to this group. We have ASD son, 3, and we've been GF/CF for 7

months now. We've recently run into a lot more hyperactive behaviors

and some other issues that are causing us to re-evaluate his diet

needs. We are going to be seeing a new pediatrician in 2 1/2 months

and Breaking the Vicious Cycle was a book she recommended. It is on

order, so I decided to join this group to begin my research.

I'd love to hear from anyone who made this switch from GF/CF and any

tips to make it easier. I am thinking this is going to be a whole

family way of life.

Also, if anyone is near Sacramento, I'd love to network a little and

get some ideas!

Thanks and congrats to all who do this successfully!

Annie

[Guest guest]

Welcome to the group! You are blessed to have a pediatrician that actually

recommends this diet. Hope your book arrives quickly because it is very helpful

along with the pecan bread website. Until your book arrives if you are wanting

to transition semi gradually, you can start by taking out corn, then potato

products, then rice products, then other GF grains that are not SCD legal.

Also, check all supplements against the illegal/legal list on pecanbread.com to

start weaning out supplements with illegal ingredients.

We basically went cold turkey on SCD and did not have too bad of a problem.

My boys felt sick for a few days but that was the toxins " dying off " . I gave

them lots of baths in epsom salts and let them rest if they needed it. They

were also sleepier than usual, had red cheeks, runny noses, and just did not

feel well. But we have been on the diet for 10 months and they are doing very

well. Healing has been slow but steady.

There are a lot of helpful hints on intro diet kid friendly type foods at pecan

bread.

Hope this helps.

Dana

and Garrett, 3 years old as of Mar 24

SCD 10 months

Celiac, ASD, Speech and Motor Apraxia

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