back from Dr Desario

[Guest guest]

Well it went...ok... I had some bloodwork and scheduled a MRI/MRCP

for next week. I also have to do the 24hour stool collection. Then

I have another ERCP April 25th.

He is concerned about my weight loss and nutrition. He wants to put

in a feeding tube. I am not sure how that works he explained a

little about it. He said first is to try the one down my nose and a

home health nurse would have to help me get it started it would

be " hooke up " at night then off during the day? I do not know

anything about this. He did say it was a small tube. What do they

put in it? How does it go in? I was surprised that he wanted to do

this as I do not look malnourished so far the weight is ok just do

not want to loose much more. I guess I just have to wait on all the

other tests and then they will know what all they have to do during

the ERCP. They did say to expect to be in the hospital at least

overnight if not a few days. So looks like another lo....ng month.

I am very tired from the drive and am gettign a headache so I am off

to bed for a bit. I stopped on my way back at taco bell my favorite

place... seems every time I have a doctor appt. I have to test

myself and see if I am realy having the problems or imagining them

so I eat something and sure enough I had to stop three times on the

way home and am hurting now. I think I sometimes hope I will have a

different result and push the line a bit. Does anyone else do

this? Is it part of accepting all this or denying it maybe?

I'm off to bed,

[Guest guest]

,

I'm glad that your appointment went well. Your experience with food

and the reaction you had on the way home is a popular one for those

with chronic pancreatitis. The enzymes help with that problem.

Did you meet Dr. Desario? If so, did you like him? Did he say that

he thinks you have a problem with your pancreas? I hope that you can

get things figured out soon.

Before I had my pancreas removed I had a feeding tube. I didn't think

that I looked malnourished, but my blood work showed that I was. The

feeding tube was okay, but I'm happy to no longer have one. Sometimes

my feeding tube would drain though. That was gross. One time I was

shopping and the tube was draining and the pressure was so high that

the cork popped off. Fluids from the small intestine were all over my

clothes. The only other problem that I had was that sometimes the

pharmacy wouldn't deliver the food for the tube on time. The good

thing about the tube was that when I didn't feel like eating I did not

have to. Also, I didn't loose any weight during that time.

Oh, I just thought of one other thing about the feeding tube that you

might like to know. Sometimes the body can't take much being put in

all at once. I was one of the people who could not tolerate the food

going in very fast so I had to be hooked to a pump nearly 24/7.

I am glad that your drive was a safe one. Today was probably the best

day this week to drive to Salt Lake. You didn't have to drive through

a snow storm.

Crystal Galloway

[Guest guest]

,

I can sympathize with wanting to test and eat things. I know certain foods

are triggers for me and sometimes when I am having a good day I will think

maybe this time it won't hurt and dog-gone if it doesn't go and mess me up! Then

I

think how stupid was I to do that! I live in the south and you know how we

love our fried chicken. Well, Fried chicken just about kills me but every now

and then I think oh, one wing won't hurt! Then I regret it so much!

I hope you are feeling better!

Take care,

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "