Guest guest Posted April 21, 2007 Report Share Posted April 21, 2007 too far ahead of ourselves? Our son's stools have consistently remained loose. Actually the simplest description would be they look like green mud. Should they still be looking like this? We began the diet with the chicken soup (1st 2-3 days)He also had grape juice and cider. He did not eat much of the soup. The juice in part was for the supplements we continued to give: cod liver oil, super GLA, lithium oratate, theanine and zinc. Thereafter, we introduced eggs, banana, hamburger (beef), carrots and applesauce for (2-3 days) Then we added 1 -3 days in order: pear sauce, zuchini, acorn & butternut squash, pork chop, honey, mustard, buffalo burger, cinnamon, chicken, scd chicken nuggets, green beans, turkey burgers, pork burgers, 5HTP supplement (day 30), vitamin c supplement (day 33), pork roast, peaches (cooked) 1 time, beef liver (added to hamburger). I should add that a morning staple was the bannana pancakes cooked in heated olive oil. At times, we also cooked zucchini and squash with it as well, until discovering that you shouldn't heat olive oil at all being that it breaks down into a harmful fat etc...yet another blunder by us. Now we are basically boiling everything. We have heard about using ghee and coconut oil but we were not sure if it was too " early " to introduce/use these oils? Fairly early on the diet we thought we experienced some yeast die off (up at night/giggling etc.) And we credit the diet for removing/healing a facial rash our son " carried " for some 6 mos. (that dr.'s couldn't " solve " ) In reading as much as we can on this board I know there are a lot of intelligent folks here...we are hoping some of them might read this and see provide some guidance. Are we doing right or have we made a mistake(s) somewhere along the line? Thank You for your time. & Angie, Parents of Garrett age 3 yrs 11 mos (Autistic for 1 year) SCD for 47 days Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 try removing eggs....my sons bms are like that...from the eggs > > too far ahead of ourselves? > > Our son's stools have consistently remained loose. Actually the > simplest description would be they look like green mud. Should they > still be looking like this? > We began the diet with the chicken soup (1st 2-3 days)He also had > grape juice and cider. He did not eat much of the soup. The juice > in part was for the supplements we continued to give: cod liver oil, > super GLA, lithium oratate, theanine and zinc. > Thereafter, we introduced eggs, banana, hamburger (beef), carrots > and applesauce for (2-3 days) > Then we added 1 -3 days in order: > pear sauce, zuchini, acorn & butternut squash, pork chop, honey, > mustard, buffalo burger, cinnamon, chicken, scd chicken nuggets, > green beans, turkey burgers, pork burgers, 5HTP supplement (day 30), > vitamin c supplement (day 33), pork roast, peaches (cooked) 1 time, > beef liver (added to hamburger). > > I should add that a morning staple was the bannana pancakes cooked > in heated olive oil. At times, we also cooked zucchini and squash > with it as well, until discovering that you shouldn't heat olive oil > at all being that it breaks down into a harmful fat etc...yet > another blunder by us. Now we are basically boiling everything. We > have heard about using ghee and coconut oil but we were not sure if > it was too " early " to introduce/use these oils? > > Fairly early on the diet we thought we experienced some yeast die > off (up at night/giggling etc.) And we credit the diet for > removing/healing a facial rash our son " carried " for some 6 mos. > (that dr.'s couldn't " solve " ) > > In reading as much as we can on this board I know there are a lot of > intelligent folks here...we are hoping some of them might read this > and see provide some guidance. Are we doing right or have we made a > mistake(s) somewhere along the line? > > Thank You for your time. > > & Angie, Parents of Garrett age 3 yrs 11 mos (Autistic for 1 > year) SCD for 47 days > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 QUESTION: is this true that olive oil should not be cooked with? Breaking the Vicious Cycle book says olive oil is highly recommended and I don't see anything about not cooking with it. If so, what kind of oil do you cook with? Also, the book says soybean oil is OK, but the legal/illegal list on the website says soybean oil should not be used. Help! I'm new to this list. My 16-year-old son has autism and Landau-Kleffner Syndrome, and we have been trying the diet for a month. He is talking more, speaking much more clearly, and is calmer and more aware. He had all the usual history of undigested food in stools and chronic diarrhea from the time he became autistic at age 3. I even insisted that he see a pediatric gastroenterologist in Canada, who refused to even test him. Her summary: " Hyperactive kids have hyperactive bowels. " I was almost glad when he bit her! We tried gluten free casein free for almost 3 years -- no noticeable improvement -- so we went back to a regular diet. My son has a long, complicated medical history, but one point stands out -- whenever he has had anti-inflammatory medications such as prednisone for his LKS, his speech has been markedly clearer. His illness has always behaved like an auto-immune disorder, and his specialist diagnosed him with suspected autoimmune encephalitus. So when his tutor mentioned an anti-inflammatory diet used for autoimmune diseases like colitus and Crohn's, I knew we had to try it. We are definitely seeing improvements, and he actually likes the foods. He has actually had some hard, formed stools, after a lot of diarrhea the first 10 days. I'm doing SCD too to keep him company and I feel healthier! Both my mother and I have had trouble with wheat but now I realize it's all grains we should avoid. I guess it runs in the family. Thanks for any information on the oils. Mother of Virya, age 16, autism and LKS, SCD diet since March 07 --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 > > QUESTION: is this true that olive oil should not be cooked with? Breaking the Vicious Cycle book says olive oil is highly recommended and I don't see anything about not cooking with it. If so, what kind of oil do you cook with? Also, the book says soybean oil is OK, but the legal/illegal list on the website says soybean oil should not be used. Help! > http://www.oliveoilsource.com/cooking_olive_oil.htm Carol F. SCD7 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 In " Gut and Psychology Syndrome " , Dr. -McBride after listing all of the positives of olive oil writes, " It is not a good idea to cook with it, as the heat will destroy the minor components and change unsaturated fatty acids into harmful trans-fatty acids. " ??? ??? ??? it seems we share a number of common threads. Our son " became " autistic 6 weeks before his 3rd birthday when he began a SEVERE behavior/language regression. Prior to that he was typical developing child, advanced in language. One of our 1st visits following this was with a neuroligist who told us that our son was a " classic, textbook defintion case of Landau-Kleffner " Apparently she even did her thesis or undergrad work or something on LKS. However an overnight EEG found her prelim. clinical dx unfounded. We later went to another nuerologist and we replayed the exact same scene...a believed clinical dx of L.K., overnight EEG proved otherwise... We also did CF-GF and probably did greater harm then good with all the yeast/sugar/rice etc. that dominated his diet. Our son continued to " regress " with CF-GF and 40 hours a week of ABA and the DAN! protocal. We, about six weeks ago traded CF-GF for SCD and continue with ABA and DAN! The latter has been scaled back a bit though as we removed a number of supplements that weren't legal. Back to the oils, we're looking for help with that too. We are using coconut oil and ghee with our NT daughter who is also SCD (and doing great!!!) but are hesitant to give it to our son when he continues to have loose BM's etc. We appreciate the opportunity to have this forum to learn from others and help our son. Thanks Again. & Angie parents of Garrett age 3 yrs 11 mos. (ASD) and Kylie 5 yrs (NT), SCD for 48 days In pecanbread , Lake wrote: > > QUESTION: is this true that olive oil should not be cooked with? Breaking the Vicious Cycle book says olive oil is highly recommended and I don't see anything about not cooking with it. If so, what kind of oil do you cook with? Also, the book says soybean oil is OK, but the legal/illegal list on the website says soybean oil should not be used. Help! > > I'm new to this list. My 16-year-old son has autism and Landau- Kleffner Syndrome, and we have been trying the diet for a month. He is talking more, speaking much more clearly, and is calmer and more aware. He had all the usual history of undigested food in stools and chronic diarrhea from the time he became autistic at age 3. I even insisted that he see a pediatric gastroenterologist in Canada, who refused to even test him. Her summary: " Hyperactive kids have hyperactive bowels. " I was almost glad when he bit her! We tried gluten free casein free for almost 3 years -- no noticeable improvement -- so we went back to a regular diet. > > My son has a long, complicated medical history, but one point stands out -- whenever he has had anti-inflammatory medications such as prednisone for his LKS, his speech has been markedly clearer. His illness has always behaved like an auto-immune disorder, and his specialist diagnosed him with suspected autoimmune encephalitus. So when his tutor mentioned an anti-inflammatory diet used for autoimmune diseases like colitus and Crohn's, I knew we had to try it. We are definitely seeing improvements, and he actually likes the foods. He has actually had some hard, formed stools, after a lot of diarrhea the first 10 days. I'm doing SCD too to keep him company and I feel healthier! Both my mother and I have had trouble with wheat but now I realize it's all grains we should avoid. I guess it runs in the family. > > Thanks for any information on the oils. > > Mother of Virya, age 16, autism and LKS, SCD diet since March 07 > > > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check outnew cars at Yahoo! Autos. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 > > QUESTION: is this true that olive oil should not be cooked with? You don't want to use an oil beyond it's " smoke point " . According to Wikipedia, " The smoke point refers to the point in which a cooking fat or oil is heated until it breaks down. The substance smokes or burns, and gives food an unpleasant taste. " Some people are also of the opinion that the oils become unhealthy at higher temperatures. There are various charts on the internet that give the smoke points of various oils. The charts do not all agree. At the following Wikipedia link, the smoke point of extra virgin olive oil is fairly low (320 degrees F./ 160 degrees C.) http://en.wikipedia.org/wiki/Smoke_point Hope this helps, , mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 Yes, many say this -- that olive oil turns into the equivilent of a hydrogenated oil when heated. In Fats that Heal, Fats that Kill, the author says that true Italian cooking uses butter and water, and the olive oil is then tossed with the already cooked food. This is what he recommends. - bstokes56 wrote: In " Gut and Psychology Syndrome " , Dr. -McBride after listing all of the positives of olive oil writes, " It is not a good idea to cook with it, as the heat will destroy the minor components and change unsaturated fatty acids into harmful trans-fatty acids. " ??? ??? ??? it seems we share a number of common threads. Our son " became " autistic 6 weeks before his 3rd birthday when he began a SEVERE behavior/language regression. Prior to that he was typical developing child, advanced in language. One of our 1st visits following this was with a neuroligist who told us that our son was a " classic, textbook defintion case of Landau-Kleffner " Apparently she even did her thesis or undergrad work or something on LKS. However an overnight EEG found her prelim. clinical dx unfounded. We later went to another nuerologist and we replayed the exact same scene...a believed clinical dx of L.K., overnight EEG proved otherwise... We also did CF-GF and probably did greater harm then good with all the yeast/sugar/rice etc. that dominated his diet. Our son continued to " regress " with CF-GF and 40 hours a week of ABA and the DAN! protocal. We, about six weeks ago traded CF-GF for SCD and continue with ABA and DAN! The latter has been scaled back a bit though as we removed a number of supplements that weren't legal. Back to the oils, we're looking for help with that too. We are using coconut oil and ghee with our NT daughter who is also SCD (and doing great!!!) but are hesitant to give it to our son when he continues to have loose BM's etc. We appreciate the opportunity to have this forum to learn from others and help our son. Thanks Again. & Angie parents of Garrett age 3 yrs 11 mos. (ASD) and Kylie 5 yrs (NT), SCD for 48 days In pecanbread , Lake wrote: > > QUESTION: is this true that olive oil should not be cooked with? Breaking the Vicious Cycle book says olive oil is highly recommended and I don't see anything about not cooking with it. If so, what kind of oil do you cook with? Also, the book says soybean oil is OK, but the legal/illegal list on the website says soybean oil should not be used. Help! > > I'm new to this list. My 16-year-old son has autism and Landau- Kleffner Syndrome, and we have been trying the diet for a month. He is talking more, speaking much more clearly, and is calmer and more aware. He had all the usual history of undigested food in stools and chronic diarrhea from the time he became autistic at age 3. I even insisted that he see a pediatric gastroenterologist in Canada, who refused to even test him. Her summary: " Hyperactive kids have hyperactive bowels. " I was almost glad when he bit her! We tried gluten free casein free for almost 3 years -- no noticeable improvement -- so we went back to a regular diet. > > My son has a long, complicated medical history, but one point stands out -- whenever he has had anti-inflammatory medications such as prednisone for his LKS, his speech has been markedly clearer. His illness has always behaved like an auto-immune disorder, and his specialist diagnosed him with suspected autoimmune encephalitus. So when his tutor mentioned an anti-inflammatory diet used for autoimmune diseases like colitus and Crohn's, I knew we had to try it. We are definitely seeing improvements, and he actually likes the foods. He has actually had some hard, formed stools, after a lot of diarrhea the first 10 days. I'm doing SCD too to keep him company and I feel healthier! Both my mother and I have had trouble with wheat but now I realize it's all grains we should avoid. I guess it runs in the family. > > Thanks for any information on the oils. > > Mother of Virya, age 16, autism and LKS, SCD diet since March 07 > > > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check outnew cars at Yahoo! Autos. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 This would be more reassuring if it didn't come from an olive oil organization! Many chefs used olive oil and butter together in a fry pan to keep the olive oil from burning/getting too hot. This makes sense, since butter can reach higher temps than olive oil. I never liked cooking with straight olive oil for this reason, as it gets sticky from the heat (hard to clean), unlike butter or coconut oil. - carolfrilegh wrote: > > QUESTION: is this true that olive oil should not be cooked with? Breaking the Vicious Cycle book says olive oil is highly recommended and I don't see anything about not cooking with it. If so, what kind of oil do you cook with? Also, the book says soybean oil is OK, but the legal/illegal list on the website says soybean oil should not be used. Help! > http://www.oliveoilsource.com/cooking_olive_oil.htm Carol F. SCD7 years, celiac --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Yahoo! Autos. --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 Dear and Angie, I hope this is not off topic, but I think it's OK because it's in the context of how much the SCD is helping my son who has LKS. I've had a lot of experience with LKS, and I want you to know that it is not AT ALL unusual for an LKS child to have an EEG that does not consistently show abnormalities. You may have to do the EEG for 48 or 76 hours, or your child might have to be sick or stressed for his EEG to become abnormal, causing the regression, and then the EEG could normalize the rest of the time. Your child may still have a variant of LKS even without an abnormal surface EEG. If your child had a magnetoencephalogram (MEG) it might show spiking going on at deeper levels of the brain that don't show up on a surface EEG. One world specialist is Dr. Chez in the Chicago area. I was making a documentary on LKS (I had to stop that in order to work full time) and I interviewed several of the world specialists. There is also a great difference of opinion among neurologists about what constitutes an abnormal EEG. I had some neurologists swear my son's EEG was normal, but when I showed the actual EEG tracings to the world specialists, they all agreed it was abnormal and typical of LKS. I still have neurologists to this day questioning whether he has LKS -- it makes me frustrated to say the least. Some of them are looking only for continuous spike and wave, or for spiking only over the temporal zone. However, they are mistaken because some kids have other epileptiform abnormalities and other sites of spiking that are still classifiable by the world specialists as LKS variant or Epileptic Regression Syndrome. It just isn't taught in medical school, so it is poorly understood and in the opinion of the specialists I interviewed, it is way underdiagnosed. They believe that a large percentage of kids with autism may have it. Around 30 percent of these kids never have a noticeable seizure, although the child may be having undiagnosed absence seizures or other seizures that are hard to notice. Anticonvulsants such as Depakote are usually prescribed (do not use Tegretol, it makes these kids worse), but for their language to get better, they almost always need anti-inflammatories too, which in the medical world are meds such as prednisone or immunoglobulin infusions. However, each of these has its drawbacks and side effects, some of them quite unhealthy. This is where the SCD diet comes in -- if indeed it has anti-inflammatory properties or addresses the underlying causes of the brain inflammation, wow! All I know is, it is working for my son, although I do feel I'm still fine tuning on the diet. It really makes sense to me. The improvement in my son was noticeable from the start -- he started surprising us with the things he could say and was calmer at school. I'm very hopeful for more wholistic healing for him than the medications have provided. He is happier too, and he loves the recipes in Elaine's book. Wish I had found this diet years ago, but better late than never. The human body has an amazing ability to heal. Best of all, it is something I can do for him without having to enlist the help and support of a neurologist. Please feel free to email me privately if you would like to talk more about LKS. There is also a yahoo group for LKS, although I haven't been on the group for quite a while -- just really busy. Thanks, Mother of Virya, age 16, autism, LKS, apraxia, aphasia, on SCD since March 07 bstokes56 wrote: In " Gut and Psychology Syndrome " , Dr. -McBride after listing all of the positives of olive oil writes, " It is not a good idea to cook with it, as the heat will destroy the minor components and change unsaturated fatty acids into harmful trans-fatty acids. " ??? ??? ??? it seems we share a number of common threads. Our son " became " autistic 6 weeks before his 3rd birthday when he began a SEVERE behavior/language regression. Prior to that he was typical developing child, advanced in language. One of our 1st visits following this was with a neuroligist who told us that our son was a " classic, textbook defintion case of Landau-Kleffner " Apparently she even did her thesis or undergrad work or something on LKS. However an overnight EEG found her prelim. clinical dx unfounded. We later went to another nuerologist and we replayed the exact same scene...a believed clinical dx of L.K., overnight EEG proved otherwise... We also did CF-GF and probably did greater harm then good with all the yeast/sugar/rice etc. that dominated his diet. Our son continued to " regress " with CF-GF and 40 hours a week of ABA and the DAN! protocal. We, about six weeks ago traded CF-GF for SCD and continue with ABA and DAN! The latter has been scaled back a bit though as we removed a number of supplements that weren't legal. Back to the oils, we're looking for help with that too. We are using coconut oil and ghee with our NT daughter who is also SCD (and doing great!!!) but are hesitant to give it to our son when he continues to have loose BM's etc. We appreciate the opportunity to have this forum to learn from others and help our son. Thanks Again. & Angie parents of Garrett age 3 yrs 11 mos. (ASD) and Kylie 5 yrs (NT), SCD for 48 days Recent Activity 26 New Members 1 New Files Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Hi , << This would be more reassuring if it didn't come from an olive oil organization! Many chefs used olive oil and butter together in a fry pan to keep the olive oil from burning/getting too hot. This makes sense, since butter can reach higher temps than olive oil. I never liked cooking with straight olive oil for this reason, as it gets sticky from the heat (hard to clean), unlike butter or coconut oil. >> If using olive oil in cooking/frying you can use lower heats or extra light/light olive oil this will help prevent the oil from smoking. These tables will give you an idea which oils are good for higher temperature (incl. butter, coconut oil etc.) and which are best for salads: http://www.goodeatsfanpage.com/CollectedInfo/OilSmokePoints.htm http://www.cookingforengineers.com/article.php?id=50 http://www.oliveoilsource.com/cooking_olive_oil.htm Sheila, SCD Feb. 2001, UC 23 yrs mom of and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Hi , << There are various charts on the internet that give the smoke points of > various oils. The charts do not all agree. At the following Wikipedia > link, the smoke point of extra virgin olive oil is fairly low (320 > degrees F./ 160 degrees C.) > http://en.wikipedia.org/wiki/Smoke_point >> There are different smoke points for oils because it will depend on the exact properties of each type of oil tested. These properties can include level of water activity, acidity in the oil. Also batches of crops can be affected by temperature, humidity, nutrients in soil etc... You need to look at all the charts and average them out. Sheila, SCD Feb. 2001, UC 23 yrs mom of and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 Hi & Angie, << Our son's stools have consistently remained loose. Actually the > simplest description would be they look like green mud. Should they > still be looking like this? >> You may have considerable overgrowth to overcome- hence, the green stools. But them continuing to be soft may mean he is getting an illegal or food he is not tolerating yet. Please see the notes below which may help - they are written alongside possible trouble points: > We began the diet with the chicken soup (1st 2-3 days)He also had > grape juice and cider. He did not eat much of the soup. The juice > in part was for the supplements we continued to give: cod liver oil, > super GLA, lithium oratate, theanine and zinc.>> Any illegals in your supplements? << Thereafter, we introduced eggs, banana >> Were the bananas yellow and ripe with lots of brown spots/freckles? How many bananas/day? When you introduced the eggs how were his stools? what was the frequency of his bm's? What is the frequency now? << hamburger (beef), carrots >> Did you start with slow cooked carrots that are pureed (as per the chicken soup recipe)? << and applesauce for (2-3 days) > Then we added 1 -3 days in order: > pear sauce, >> Was this homemade applesauce and pearsauce? << zuchini,>> Is your zucchini peeled and cooked? << acorn & butternut squash, pork chop>> Is the pork chop seasoned? <<honey, >> Is your honey pure and filtered (clear)? Raw honey is okay as long as it is pure, 100% honey and has the pollen removed. << mustard,>> Is your mustard free of illegals (ie. garlic and onion powder etc..?) << buffalo burger, cinnamon, chicken,>> Is your buffalo and chicken free of illegals? Some chicken is seasoned with sugars etc.., check labels and ask the butcher. << scd chicken nuggets,>> Are you using almond flour on the nuggets. If still loose stool it may be too soon even for the nut flour. << green beans,>> What kind of green beans? regular green beans, french cut frozen. Some people can not tolerate beans for a longer period of time (ie. once stools become solid and regular) << turkey burgers, pork burgers, 5HTP supplement (day 30), > vitamin c supplement (day 33), pork roast, peaches (cooked) 1 time, > beef liver (added to hamburger). >> Are the turkey and pork burgers free of illegals? Are the peaches peeled and cooked until soft? What kind of viatmin C? << I should add that a morning staple was the bannana pancakes cooked > in heated olive oil. At times, we also cooked zucchini and squash > with it as well, until discovering that you shouldn't heat olive oil > at all being that it breaks down into a harmful fat etc...yet > another blunder by us. Now we are basically boiling everything. >> Olive oil *can* be heated just not too high. Low heat is okay. Also if using a nonstick pan (?) most manufacturers recommend only using them on low to medium heat anyway. However, boiling the foods now is a good choice since his stool is still soft. << have heard about using ghee and coconut oil but we were not sure if > it was too " early " to introduce/use these oils? >> Ghee and coconut oil are good fats. If you want to try them just start with a little and gradually increase the amounts. When you start coconut oil you may see increased die off as it has antifungal properties. << Fairly early on the diet we thought we experienced some yeast die > off (up at night/giggling etc.) And we credit the diet for > removing/healing a facial rash our son " carried " for some 6 mos. > (that dr.'s couldn't " solve " ) >> The clearing of the facial rash along with the green stool are good signs. The green stools mean that the microbial population is shifting. You son just may need a longer time to clear out the nasties. You " may " be able to speed it up by 1.) going back to the intro for a day or two and gradually readding foods one at a time to ensure that they are tolerated 2.) introducing some form of probiotic (probiotic powders/capsules, yogurt, fermented food etc.. Sheila, SCD Feb. 2001, UC 23 yrs mom of and Quote Link to comment Share on other sites More sharing options...
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