Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 Hello, just recognized several of my symptoms. Get low bloodpressure like 90/60 and the docs have laughed and said, Well you are lucky you can eat as much salt as you want-????Are they funny? I also start itching, on my face, scalp, chest also seems to be more frequent when attack is on the run, red spots. Once again asking, have done it before - anyone with swollen membran like bulbs in the mouth on and off during the day when about to have and having and attack (pain under left rib, back, midabdomen) and dry mouth+metaltaste (thanks Heidi for the info you sent) on and off during the day. Seems to be related to food couple of hours after the little I eat. Try on liquid for a while, helps a bit. Interested in the higher doses of Creon now I take 3x25.000 with meals (but they are not big!) and 1 with snacks (at the most a banana), I get this dreadful tiredness which kicks me off my feet, feels like I am fainting, can hardly make it home or at night nearly falling going to the lo from bed. Cramps in my legs as well. Jumping bloodsugar but better when on liquids. Well dear fellows I wish you as much of painless night as possible, time for bed in Sweden. Best regards Sonja Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 Sonja, I also get that metallic taste in my mouth. I am having pretty bad blood sugar swings also. They put me on a medication called precose and it has helped. Angie in SC " The happiest of people don't necessarily have the best of everything; they just make the best of everything that comes along their way. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 Sonja- I was reading your post and I have some similar symptoms like yours. I have the low pressure when I hurt, my heart rate drops low too. I don't get the itch unless I have taken pain killers. I do get swollen saliva glands..not usually before an acute attack, but after a day or two of an attack. I do get a metal taste in my mouth...it is awful...and it is worse when the pain is worse. I am sorry you experienced all of these things. I hope you get a good night's rest. Hugs, Suzi Colorado > Hello, just recognized several of my symptoms. Get low bloodpressure like > 90/60 and the docs have laughed and said, Well you are lucky you can eat as > much salt as you want-????Are they funny? I also start itching, on my face, > scalp, chest also seems to be more frequent when attack is on the run, red > spots. Once again asking, have done it before - anyone with swollen membran > like bulbs in the mouth on and off during the day when about to have and > having and attack (pain under left rib, back, midabdomen) and dry > mouth+metaltaste (thanks Heidi for the info you sent) on and off during the > day. Seems to be related to food couple of hours after the little I eat. Try > on liquid for a while, helps a bit. > Interested in the higher doses of Creon now I take 3x25.000 with meals (but > they are not big!) and 1 with snacks (at the most a banana), I get this > dreadful tiredness which kicks me off my feet, feels like I am fainting, can > hardly make it home or at night nearly falling going to the lo from bed. > Cramps in my legs as well. Jumping bloodsugar but better when on liquids. > Well dear fellows I wish you as much of painless night as possible, time for > bed in Sweden. Best regards Sonja > > > Quote Link to comment Share on other sites More sharing options...
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