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>

> My daughter Katy has been ScD for past 7 wks and has been doing

> really

> very well.Three weeks ago we saw an SCD counseller in the UK who

was

> very helpful and advised we give Biocult probiotics.We have been

> dosing very slowly and Katy is only on 1/2 capsule a day.

> This past week Katy's tummy has become very distended,she also is

> having odd jerking movements of her arms and body and tensing her

> mouth.She is also biting her arms,and her face is slightly swollen.

> WE have been advised this is Die off.

>

> We have decided to stop the Biocult.Once thing hopefully settle

down

> would it be best for me to start her with some nut yoghurt or some

> SCD

> legal probiotics.

>

> Her stools great since starting SCD and constipation no longer a

> problem.

>

> Thanks for any input.

> Sharon.(mum to Katy 9yrs old ASD.SCD since 29/05/05)

>

hi,im giving my son hudhayfa 31/2 asd QUEST acidophilus plus which i

bought from holland & barret and he hasnt had v. bad reaction to it.

just a little hyper. maybe its not strong enough. may i ask if

Biocult can be bought over the counter as i dont know of any scd drs

in our area . thank you.

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---

Biocult contains maltodextrin and is therefore illegal on SCD. I

phoned Dr Natasha -McBrides clinic up and they confirmed it.

Regards

Glynis

In pecanbread , " ummrumaisa " wrote:

>

>

> >

> > My daughter Katy has been ScD for past 7 wks and has been doing

> > really

> > very well.Three weeks ago we saw an SCD counseller in the UK who

> was

> > very helpful and advised we give Biocult probiotics.We have been

> > dosing very slowly and Katy is only on 1/2 capsule a day.

> > This past week Katy's tummy has become very distended,she also is

> > having odd jerking movements of her arms and body and tensing her

> > mouth.She is also biting her arms,and her face is slightly

swollen.

> > WE have been advised this is Die off.

> >

> > We have decided to stop the Biocult.Once thing hopefully settle

> down

> > would it be best for me to start her with some nut yoghurt or some

> > SCD

> > legal probiotics.

> >

> > Her stools great since starting SCD and constipation no longer a

> > problem.

> >

> > Thanks for any input.

> > Sharon.(mum to Katy 9yrs old ASD.SCD since 29/05/05)

> >

> hi,im giving my son hudhayfa 31/2 asd QUEST acidophilus plus which

i

> bought from holland & barret and he hasnt had v. bad reaction to

it.

> just a little hyper. maybe its not strong enough. may i ask if

> Biocult can be bought over the counter as i dont know of any scd

drs

> in our area . thank you.

>

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Dear Sharon, About the odd jerking movements and tensing, you might want to get

this evaluated because it could be little seizures. My son has a seizure

disorder and I have always had to go very, very slowly with acidophulus and

probiotics. It seems like die-off reaction stresses his system and then he gets

seizure activity, which in his case is very harmful and decreases his speech and

language and causes regressions. In the case of my child, slow and steady

healing is the way to go -- nothing drastic. He can handle yogurt, but he can't

handle acidophulus capsules, at least not yet. I've learned this repeatedly

over the years. You may want to seek professional advice including from someone

who recognizes seizures. I hope it's nothing, but it sounds like it could be

seizures so you might want to check.

Thanks,

Mother of Virya, age 16, autism, LKS (a seizure disorder), SCD since March 07

but also previous attempts to kill yeast, etc.

ummrumaisa wrote:

>

> My daughter Katy has been ScD for past 7 wks and has been doing

> really

> very well.Three weeks ago we saw an SCD counseller in the UK who

was

> very helpful and advised we give Biocult probiotics.We have been

> dosing very slowly and Katy is only on 1/2 capsule a day.

> This past week Katy's tummy has become very distended,she also is

> having odd jerking movements of her arms and body and tensing her

> mouth.She is also biting her arms,and her face is slightly swollen.

> WE have been advised this is Die off.

>

> We have decided to stop the Biocult.Once thing hopefully settle

down

> would it be best for me to start her with some nut yoghurt or some

> SCD

> legal probiotics.

>

> Her stools great since starting SCD and constipation no longer a

> problem.

>

> Thanks for any input.

> Sharon.(mum to Katy 9yrs old ASD.SCD since 29/05/05)

>

hi,im giving my son hudhayfa 31/2 asd QUEST acidophilus plus which i

bought from holland & barret and he hasnt had v. bad reaction to it.

just a little hyper. maybe its not strong enough. may i ask if

Biocult can be bought over the counter as i dont know of any scd drs

in our area . thank you.

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

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Guest guest

leaky gut is strongly implicated in lks and seizures imo

you can go the medical route of course.....

> >

> > My daughter Katy has been ScD for past 7 wks and has been doing

> > really

> > very well.Three weeks ago we saw an SCD counseller in the UK who

> was

> > very helpful and advised we give Biocult probiotics.We have been

> > dosing very slowly and Katy is only on 1/2 capsule a day.

> > This past week Katy's tummy has become very distended,she also is

> > having odd jerking movements of her arms and body and tensing her

> > mouth.She is also biting her arms,and her face is slightly

swollen.

> > WE have been advised this is Die off.

> >

> > We have decided to stop the Biocult.Once thing hopefully settle

> down

> > would it be best for me to start her with some nut yoghurt or some

> > SCD

> > legal probiotics.

> >

> > Her stools great since starting SCD and constipation no longer a

> > problem.

> >

> > Thanks for any input.

> > Sharon.(mum to Katy 9yrs old ASD.SCD since 29/05/05)

> >

> hi,im giving my son hudhayfa 31/2 asd QUEST acidophilus plus which

i

> bought from holland & barret and he hasnt had v. bad reaction to

it.

> just a little hyper. maybe its not strong enough. may i ask if

> Biocult can be bought over the counter as i dont know of any scd

drs

> in our area . thank you.

>

>

>

>

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

>

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Hi ummrumaisa,

<< anyone know if you have to divide the probiotic dose or its ok to

give it all at once? >>

It is okay to give the dose all at once but you should gradually work

up to a full single dose.

It is best to split the dose in half when you start taking it. Half in

the morning and half in the evening.

Sheila, SCD Feb. 2001, UC 23yrs

mom of and

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