$$$ Funding for SCD diet ...application stage

[Guest guest]

Dear friends

SCD diet is one of the No.1 interventions for my ASD sons

I have been looking for funding for SCD diet for months now

since September 2006

This is where I got so far...

State of California (I believe every state has an equivalent)

supports medical care for chronic illnesses in children

(cancer, genetic disorder, etc they support specialized diets for

genetic disorder PKU...

autism is just another illness requiring specialized diets, I believe)

California Children's Services (CCS) will pay for treatments for

" chronic gastrointestinal inflammation "

(which is what our kids have!)

after getting endoscopy, colonoscopy, GI diagnoses from Dr. Krigsman

esophagitis, nodule in esophagus, gastritis, ilietis, duodenitis,

colitis,

also Prometheus IBD Serology Lab 7 showed positive CBir1 marker for

Crohn's disease (just a prediction, but fine enough, I think)

we filed a 1 page application form to CCS downloaded from their

website

and was approved (due to GI diagnoses we already have)

they authorized local pediatric gastroenterologist care,

(did not accept Dr. Krigsman's letter of support for diets coz he

is out of state for us Californians...but you guys in Texas

and New York are in luck!)

which you know, is allopathic and mainstream

I scoured the land for a CCS paneled ped GI doc who

would be open minded to diets (vs drugs only)

and found a Dr who is the mother of an ASD son...she is not

into DAN! or GFCF per se (all good things in due time...)

but very attentive and BELIEVES A LOT OF ASD SYMPTOMS ARE BASICALLY

GI SYMPTOMS!!! and that her son's symptoms improved with GI care

Thank God for that wonderful woman!

after developing a working relationship with this wonderful Dr.

(she ordered Mg citrate clean outs for my sons which are wonderful...

I feel everyone should try it)

I requested and she wrote 2 very simple letters in support of

" specialized diets " for each of my sons...SCD was not mentioned

(she is not very SCD conversant though I slipped her Elaine

Gottscall's medical veritas, other journal articles)

but I feel that may be great...no controversial or specifics

to contend with in the application...she wrote in very

generic terms that my children should be dairy free, a diet high

in produce and " low carb " (this is technically not correct but I let

it pass)

and that I should be supported in my endeavor to implement this

" essential diet " for their " food allergies and severe constipation "

generic, short and sweet letter, beautiful!

tomorrow, I am planning to request a meeting date with CCS nurse

armed with CCS doctor's recommendation

to see if I can set a precedent for funding of specialized diets

not for " autism " per se, since they think there's no cure (whatever)

but for their GI symptoms

wish me luck and BIG PRAYERS! I am very excited!!!

now questions...

if they OK it

I want to request financial assistance to implement specialized diets

what is the best method?

food stamps? we do not shop at major grocery chains

we only shop at Mother's type organic produce grocery stores,

farmer's market...how do they fund that?

have CCS set up account in those grocery stores?

I also requested nutritional intervention to correct

nutritional deficiencies associated with their gastrointestinal

problems

and listed some vitamins, minerals, B12, probiotics, the like

but have no idea if they will buy that

if they do, do I request some sort of monthly check or reimbursement

for my supplement invoices?

you see, these are very preliminary

but I feel hopeful

any ideas, prayers, experiences are greatly welcomed

love

Jzin Teng

California

Dimiter, age 6, ASD , SCD since Dec 2003

Vi, age 4, ASD, SCD since 2005...raw food stage SCD is miraculous!

Elena, age 2, SCD since birth