Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 In a message dated 3/27/00 9:25:39 AM Eastern Standard Time, lpatric@... writes: << I suggested that Alan get a second test. Anybody, with any thoughts on this is welcome to offer their insite. Thank you in advance. Lawrence >> I suggest he doesn't waste his money on a second test andinstead starts treatment. I sent you off-list a meg-list of links on Lyme. If I was initially diagnosed with MS and then changed to LYme, I would definitely give antibiotics a go...if your friend wants to spend more money on lab testing, I def suggest testing for co-infections that are also tick-borne such as babesiosis, and HGE,HME (Human granulocytic erlichioisis, human monocytic erlichiosis. Personally I would not doubt the lab work for a second. Instead focus your energies on investigating adequete treatment for your friend. Good Luck to your friend. He is lucky to have a friend like you trying to dig up more info...Bernadette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 lawrence......what a good friend u are......the ?'s igenex is considered by the lyme community to be one of the best labs available for lyme testing.....what test's were done on ur friend there?....was one a urine test? qustion 2... lyme is a problem in all states and even in foreign countries...we have members of our group from france and england......while colorado may not have as many cases as NJ or other endemic states ....yes there are cases there.... one last note.... LYME IS A CLINICAL DIAGNOSES....THRU SYMPTOMS .... while there are some false pos tests......the main problem is tottally inacurate testing .....at best 50 % asccurate.....and most of that is false neg testing......i recomend that u go to www.lymealliance.org on there u will find a complete list of lyme symptoms.....while the joint pain and fatigue are well known there are many other symptoms......print it out and let ur frined compare.....sorry about the spelling .....i have bad hands thru lyme and it is hard to type somedays....everyone here is use to it.... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 In a message dated 3/27/00 9:25:39 AM Eastern Standard Time, lpatric@... writes: << I suggested that Alan get a second test. Anybody, with any thoughts on this is welcome to offer their insite. Thank you in advance. Lawrence >> I suggest he doesn't waste his money on a second test andinstead starts treatment. I sent you off-list a meg-list of links on Lyme. If I was initially diagnosed with MS and then changed to LYme, I would definitely give antibiotics a go...if your friend wants to spend more money on lab testing, I def suggest testing for co-infections that are also tick-borne such as babesiosis, and HGE,HME (Human granulocytic erlichioisis, human monocytic erlichiosis. Personally I would not doubt the lab work for a second. Instead focus your energies on investigating adequete treatment for your friend. Good Luck to your friend. He is lucky to have a friend like you trying to dig up more info...Bernadette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Hi Lawrence, I believe the lab you are referring to is IGeneX in California, here is their web site: http://www.igenex.com/ They are considered a good lab in the Lyme disease community. I would hazard a guess that your friend does not have MS at all, rather neurological problems from Lyme disease, but I am no doctor and I am working with only the information you provided. Many of us with Lyme disease do not recall our tick bite, and are often misdiagnosed with MS, Fibromyalgia, Lupus, Chronic Fatigue Syndrome, Lou Gehrig's disease and more. Lyme is mainly a clinical dx based on symptoms as the tests are very unreliable. I know Bernadette sent you lots of links, I don't know if she sent this one: http://www.geocities.com/HotSprings/Spa/6772/ms-index.html Lyme disease misdx'd as MS and as to your question regarding Lyme in Colorado, here is another informative link: http://www.geocities.com/HotSprings/Spa/6772/colorado-index.html Lyme and other tick diseases are world wide, and the Lyme disease is the second fastest growing disease nationwide, second only to AIDS. I hope your friend can convince his doctor to treat his Lyme disease with antibiotics, if not, he should look for another more literate physician. I also hope these resources give you an understanding of LD and you are a good friend to do this for your buddy. I wish you both well. Marta >From: lpatric@...>>I just received word that a good friend of mine in Denver has been>diagnosed with Lymes spirochetes. Alan also has multiple sclerosis>and has been battling that disease for a few years now. Because of>the debilitating nature of MS, Alan has asked me to do some leg work>for him. He posed two questions for me this morning.>>1. The lab that diagnosed him: Lggenics (California)>Is it credible etc...?>I found some research that suggested that 25% of diagnosis are false>positives....>>2. Is lyme disease prevalent in Colorado?>>I found a great deal of inf. online but most of it is very clinical>oriented. I suggested that Alan get a second test.>Anybody, with any thoughts on this is welcome to offer their insite.>Thank you in advance.>>Lawrence Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 lawrence......what a good friend u are......the ?'s igenex is considered by the lyme community to be one of the best labs available for lyme testing.....what test's were done on ur friend there?....was one a urine test? qustion 2... lyme is a problem in all states and even in foreign countries...we have members of our group from france and england......while colorado may not have as many cases as NJ or other endemic states ....yes there are cases there.... one last note.... LYME IS A CLINICAL DIAGNOSES....THRU SYMPTOMS .... while there are some false pos tests......the main problem is tottally inacurate testing .....at best 50 % asccurate.....and most of that is false neg testing......i recomend that u go to www.lymealliance.org on there u will find a complete list of lyme symptoms.....while the joint pain and fatigue are well known there are many other symptoms......print it out and let ur frined compare.....sorry about the spelling .....i have bad hands thru lyme and it is hard to type somedays....everyone here is use to it.... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Hi Lawrence, I believe the lab you are referring to is IGeneX in California, here is their web site: http://www.igenex.com/ They are considered a good lab in the Lyme disease community. I would hazard a guess that your friend does not have MS at all, rather neurological problems from Lyme disease, but I am no doctor and I am working with only the information you provided. Many of us with Lyme disease do not recall our tick bite, and are often misdiagnosed with MS, Fibromyalgia, Lupus, Chronic Fatigue Syndrome, Lou Gehrig's disease and more. Lyme is mainly a clinical dx based on symptoms as the tests are very unreliable. I know Bernadette sent you lots of links, I don't know if she sent this one: http://www.geocities.com/HotSprings/Spa/6772/ms-index.html Lyme disease misdx'd as MS and as to your question regarding Lyme in Colorado, here is another informative link: http://www.geocities.com/HotSprings/Spa/6772/colorado-index.html Lyme and other tick diseases are world wide, and the Lyme disease is the second fastest growing disease nationwide, second only to AIDS. I hope your friend can convince his doctor to treat his Lyme disease with antibiotics, if not, he should look for another more literate physician. I also hope these resources give you an understanding of LD and you are a good friend to do this for your buddy. I wish you both well. Marta >From: lpatric@...>>I just received word that a good friend of mine in Denver has been>diagnosed with Lymes spirochetes. Alan also has multiple sclerosis>and has been battling that disease for a few years now. Because of>the debilitating nature of MS, Alan has asked me to do some leg work>for him. He posed two questions for me this morning.>>1. The lab that diagnosed him: Lggenics (California)>Is it credible etc...?>I found some research that suggested that 25% of diagnosis are false>positives....>>2. Is lyme disease prevalent in Colorado?>>I found a great deal of inf. online but most of it is very clinical>oriented. I suggested that Alan get a second test.>Anybody, with any thoughts on this is welcome to offer their insite.>Thank you in advance.>>Lawrence Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Hi Donna- Like what sort of books, video's etc.. on JRA or related issues or ?? I just need more clarification on this. Issadora On Jan 12, 2008 6:57 AM, <ajaoky@...> wrote: > I am still developing a resource list that includes books, videos, > educational internet sites, chat rooms, boards, support groups, > etc..please, please if > you have recommendations could you please share them...thank you, thank > you, > thank you....Donna<BR><BR><BR>**************<BR>Start the year off right. > Easy ways to stay in > shape.<BR> > http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 > </HTML> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Can anyone comment regarding any research articles you have found from journals, etc regarding apraxia of speech and essential fatty acids (omega 3's and omega 6's)? Thanks in advance. Alan F. , MS, CCC/SLP Speech-Language Pathologist Liberty Elementary School 606.787.6961 This email communication and any attachments may contain confidential and privileged information for the use of the designated recipients. If you have received this communication by mistake, please destroy and contact the sender. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 google Dr. and Marilyn Agin, MD. They did a joint study in May 2007. Dr. is presenting something this year if it gets approved. Fish oil is generally mentioned for dyspraxia in The LCP Solution by Dr. Stordy as well. > > Can anyone comment regarding any research articles you have found from > journals, etc regarding apraxia of speech and essential fatty acids > (omega 3's and omega 6's)? Thanks in advance. > > > > Alan F. , MS, CCC/SLP > > Speech-Language Pathologist > > Liberty Elementary School > > 606.787.6961 > > > > This email communication and any attachments may contain confidential > and privileged information for the use of the designated recipients. If > you have received this communication by mistake, please destroy and > contact the sender. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 http://www.dyspraxiafoundation.org.uk/professionals/rs_ajr.php The potential role of fatty acids in developmental dyspraxia - Can dietary supplementation help? The predisposition to dyspraxia and related conditions may involve mild constitutional inefficiencies of fatty acid metabolism that increase the usual dietary requirements for HUFA. These could include (a) poor EFA-HUFA conversion, ( difficulties in incorporating HUFA into brain cell membranes and/or © unusually high rates of HUFA breakdown and loss, although there are other possible mechanisms. http://www.fabresearch.org/view_item.aspx?item_id=456 Fatty Acids in Dyslexia, Dyspraxia, ADHD and the Autistic Spectrum - An Overview Date: 2003 Dr , Senior Research Fellow, Mansfield College & University Lab. of Physiology, Oxford /message/64835 FINDING THE GREATEST COMMON DENOMINATOR http://www.speechville.com/alternative-therapy.html Click on Essential Fatty Acids http://www.durhamtrial.org/index.htm Durham Research Using Fatty Acids for Learning Conditions You can probably find more if you google dypraxia, Dr. , and EFAs. http://findarticles.com/p/articles/mi_qn4158/is_20050329/ai_n13480014 HEALTH: Essential mix " What's more, some people are more susceptible to a low ratio, " says neuroscientist Dr , a senior research fellow in physiology at Mansfield College, Oxford, and a member of the International Society for the Study of Fatty Acids and Lipids. " And some people may also have an in-built inefficiency in their conversion process, making them even more susceptible to deficiencies. Symptoms of low omega-3 status, which we know can affect neurotransmitters such as dopamine and serotonin in the brain, can include mental health problems ranging from depression, mood swings and anxiety to behavioural problems like ADHD, dyslexia and dyspraxia. " Hope these are helpful, Tina > > Can anyone comment regarding any research articles you have found from > journals, etc regarding apraxia of speech and essential fatty acids > (omega 3's and omega 6's)? Thanks in advance. > > > > Alan F. , MS, CCC/SLP > > Speech-Language Pathologist > > Liberty Elementary School > > 606.787.6961 > > > > This email communication and any attachments may contain confidential > and privileged information for the use of the designated recipients. If > you have received this communication by mistake, please destroy and > contact the sender. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 I think that If I could do it again.... I would start out with a good metabolic panel from a reputable lab rather than play the guessing game.... That way, you know for sure what your child is deficient in..... but without a doubt, all of the kids on this board who are tested reveal low EFA's of some sort, some Omega 3 kids.... my kid was low in all Omega 6's (but not 3) and many of the children are low in carnitine. I spent a long time supplementing Omega 3 when I should have been supplementing Omega 6.... it was no wonder that my child was not a fish oil responder! But... he WAS EFA deficient! I would bet that most of the kids are also low in glutathione and possibly COQ10 and vitamin A as well. I think that all of the kids before they get labs should start off with a good 3-6-9 oil ie. Nordic Naturals, carnitine and begin with a moderate amount of vitamin E (and ramp up slowly). I am a little hesitant about using too much E too fast. If they are not allergic, they could eat nuts throughout the day to work those fats. They should also take a high quality multi and look into dietary modifications as well as probiotics (ThreeLac) and digestive enzymes. But we all need to save up the money and get the biomedical metabolic labs done for our kids.... the sooner, the better... I so regret waiting.... I spent way too many years believing in all of the 'normal' results that mainstream medicine produced. The metabolic panels really tell you what is happening..... while the kids are all similiar.... they are actually all different, unique and individual. Note that there are a lot of similarities in the results between Wendi's child and mine but the results between My Mark and Colleen's Charlie are very different.... though again there are some similiarities.... We cannot cookie-cutter our children.... they are all different. Of course both Aedin and Mark have high lead readings and Charlie has high alluminium. Perhaps herein lies the true difference..... what kind of metal do you have? Note that heavy metal toxicity disable the body from absorbing nutrients properly.... how aweful. But at least I discovered it with you girls at my side. I don't know if I could have tackled learning all of this stuff without all of you right there with me.... Thank you all so much. Janice [sPAM][ ] Re: Resources google Dr. and Marilyn Agin, MD. They did a joint study in May 2007. Dr. is presenting something this year if it gets approved. Fish oil is generally mentioned for dyspraxia in The LCP Solution by Dr. Stordy as well. > > Can anyone comment regarding any research articles you have found from > journals, etc regarding apraxia of speech and essential fatty acids > (omega 3's and omega 6's)? Thanks in advance. > > > > Alan F. , MS, CCC/SLP > > Speech-Language Pathologist > > Liberty Elementary School > > 606.787.6961 > > > > This email communication and any attachments may contain confidential > and privileged information for the use of the designated recipients. If > you have received this communication by mistake, please destroy and > contact the sender. > > > > Quote Link to comment Share on other sites More sharing options...
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