Guest guest Posted May 1, 2005 Report Share Posted May 1, 2005 I am thankful to be reading other's difficulty with auto immune CP. I don't feel so alone. I am so tired and frustrated living with this disease. I try to do things,and in the end the disease knocks me down and I am flat on my bed wishing I had never done what I did. My world is so small now. I was an excersise freak until this disease hit me. I feel like I have Mono, or some of it's symptoms. I get rested up try a few things, think I am doing just fine and the next day I have to take twenty steps back. I am sorry that Fliss and others that have auto immune CP. I am sorry I have it too. Sometimes I ask myself over and over again, how and why did I get this disease. I was supposed to go to Florida this spring with the children, and we couldn't go b because I wasn't strong enough. I ended up in the hospital during the vacation. Today, I can only say, this disease is not fair. There are no warnings that it is going to hit you again, there is no rhyme or reason to this disease. I hate it with a passion. Thank you for this complain time, because very few people in my life understand the struggles I go through every day just to exist. sincerely Paget Quote Link to comment Share on other sites More sharing options...
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