Question...

[Guest guest]

Suzi,

I have had kidney stones. In fact I have passed 9 in the past 2 years. They

are no fun. At first they kind of feel like a pulled muscle and then the pain

gets more intense as they move. They detected mine through a sonogram. I had

kidney stones before my cp was diagnosed so I am not sure if there is a link

but maybe?

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "

[Guest guest]

Hello-

I know I don't post all that often, I read all the posts though. I

have been struggling with a lot of pain lately, and so, I retreat

within myself to try to deal with it and I don't post much. I was

wondering if any of you also deal with kidney stones...I haven't been

diagnosed yet, haven't even went to the doctor for it, but in the last

24 hours I have hurt down my back on the entire left side (this is

instead of the usual pain straight through my back and up in my left

shoulder blade, which, unfortunately is also still there, as always)

this pain is different had a different feel to it, not as bad as an

acute attack, but worse than bad pain day...does that make sense? I

was wondering if there is a connection between CP and kidney stones. I

haven't read much on this board, but I thought I might ask. Maybe it

isn't even kidney stones, who knows??! It may just be " new " pain level

that I will have to adjust to again. Any insight? Thanks in advance.

Hugs,

Suzi B.

Colorado

[Guest guest]

Suzi,

while I have never had kidney stones, I think it would be a good idea to

go see your doctor about this new pain. At least have yourself checked

for kidney stones to make sure it really is that and if so, what they

can do to help you deal with them. And if its not, to check to see if

it's something else you haven't thought of. You should always keep your

doctor informed about any new pains, or symptoms you have.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Hi Suzi,

While I do not have CP, I am a very experienced kidney stone patient.

This pain will start on the side of the affected kidney. It will begin

to hurt a lot as it maneuvers towards the ureter. The pain may be

colicky in nature as the stone tries to pass through the ureter.

Usually if the stone gets stuck, or blocks the ureter the pain

intensifies and it not tolerated without narcotics. The spasms will

begin to wrap around the side, even into the abdomen if the stone is

moving on its own. Otherwise, the pain continues to get worse and a

procedure is necessary to relieve it. Once the stone has passed into

the bladder, the pain is gone. I have made over 30 stones and have

passed about ten of them without intervention. At least ten times, I

went into the ER in excruciating pain and because there was no blood in

my urine, had to wait until CT scans or IVPs were done to confirm a

stone. I have much sympathy with all of you and the pain and ER docs

and nurses who think they only treat addicts. I hope you don't have

kidney stones, wouldn't wish that on anyone!!! The first time my son

had a pancreatitis attack, his dad and I took him to the hospital

certain that he was having a kidney stone - the intensity seemed to

compare. Best of luck.

> Hello-

> I know I don't post all that often, I read all the posts though. I

> have been struggling with a lot of pain lately, and so, I retreat

> within myself to try to deal with it and I don't post much. I was

> wondering if any of you also deal with kidney stones...

[Guest guest]

Suzi,

I have had many kidney stones. In fact, this is one of the reasons

they think that I have celiac disease. If I remember correctly, you

have celiac disease? The combo of my past history of autoimmune CP,

kidney stones, and stress fractures is why they think I have this

disease.

Crystal Galloway

[Guest guest]

Crystal-

Thank you for sharing with me...I am sorry that you are traveling the

same road I am...:-( I am beginning to think it is all related

somehow..CP..Celiac...Endometriosis...and now maybe kidney problems...I

swear there is a connection there somewhere, and the doctor who makes

the link and can perhaps fix it is going to be an angel!

Hugs,

Suzi B.

Colorado

> Suzi,

>

> I have had many kidney stones. In fact, this is one of the reasons

> they think that I have celiac disease. If I remember correctly, you

> have celiac disease? The combo of my past history of autoimmune CP,

> kidney stones, and stress fractures is why they think I have this

> disease.

>

> Crystal Galloway

[Guest guest]

I get a couple of kidney stones every year and it the only pain that I think

is worse than the cp.... I don't think you can adjust to kidney stone pain.

I had 5 surgeries for my cp and have never gone to the er for pain from the

cp, but I hit the er with every kidney stone. But then again there are

different types and sizes of kidney stones....

A Ruggieri

Question...

Hello-

I know I don't post all that often, I read all the posts though. I

have been struggling with a lot of pain lately, and so, I retreat

within myself to try to deal with it and I don't post much. I was

[Guest guest]

You know I got to add one thing here, ever notice how fast they give you and

injection to kill the pain when you go to the er and they know it's a kidney

stone. Why don't they know that cp is just as bad?

Re: Question...

Hi Suzi,

While I do not have CP, I am a very experienced kidney stone patient.

This pain will start on the side of the affected kidney. It will begin

to hurt a lot as it maneuvers towards the ureter. The pain may be

[Guest guest]

Hello,

Can I add my 2 cents worth to this.

Being a woman I can understand your thinking this way. When I was a

very young teenager, I was dx with Pelvic Inflammatory Disease, which to

my understanding is the upper end of endometriosis. I was 15 and the

doctors told me the only way I would have relief from the pain was a

total hysterectomy. I said no and suffered with the pain for many, many

years. I didn't have some relief from that until I had my son when I was

26. Another thing the doctors told me would never happen cause there

was nothing for an egg to adhere to and make a baby. They told me I was

basically infertile. Guess I showed them wrong. :-) Oh, the power of

prayer!

Anyway, I was to a point 5 years ago that my ob/gyn said my cervix was

so " angry " looking that she wanted me to have a scrape job done to see

if that made things better and I was put on the depo shot. If that

didn't help she was thinking of doing something more aggressive. Well,

since my pancreas has been under control for the last 3 years now (no

er, hospitals or surgeries) , my cervix has suddenly " fixed itself " and

it no longer needs this scrape job. It is perfectly normal looking now.

I wish I could remember the name they call it. I am still on the depo

and all my pap tests have come back normal too, instead of something

different. I think, just my opinion I am not a doctor, that all this

stuff is related. Get one thing going south and the rest of the woman

things follow. Get that one thing fixed and working well again, and all

other things follow suit. Does that make sense??? What do you think?

Sandy in Ca

Suzi wrote:

>

> I am beginning to think it is all related

>somehow..CP..Celiac...Endometriosis...and now maybe kidney problems...I

>swear there is a connection there somewhere, and the doctor who makes

>the link and can perhaps fix it is going to be an angel!

>

>

>

>