Re: Pain Specialist tests results told morphine or eqiuvalent wont help pain

[Guest guest]

Debs,

I don't know that I know your whole story but if I read right (I

included the snippet below) WHY would you stop the morphine if it helps

you with the pain? It is my belief that you should get yourself relief

in any legal way you can.

What you said there sounds like a pancreatic attack, but also sounds

like a SOD attack as well. So you have morphine with you that you can

use to help control the pain? Then I say use it at moderate discretion

until you can see this doctor again. Then go see another one until you

have 2 that give you the same answer.

I can tell you that when I have a pancreatic attack morphine is the only

pain reliever that works for me.

Gosh, I hope you feel better very very soon.

Sandy in Ca

debzdebznz wrote:

>I dont understand what this means? why do I get pain that worsens on

>eating drinking, at night lying down. Why does it help when i take

>large doses of Morphine.?

>

>I dont knwo what to do now, do I stop the morphine, do I what

>

>Debs

>

>

>

>

[Guest guest]

Debs,

I'd find another doctor. This guy seems to want to just experiment on

you and not actually treat your pain. I'm mean, if it can't be treated

by narcotics (which have actually worked to lessen your pain), HOW CAN

it be treated? He hasn't seem to come up with any ideas that have

actually worked. Please, please, find another pain doctor. I hate to

hear what this guy is doing to you. I am very worried about you.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Unless he gave you Morphine, and a decent dose of it, along with

other narcotic pain meds, he can't say that Morphine or any other

drug is not going to help your pain.

As you are already getting relief from the Morphine, that already

makes little of his statement.

As medications affect each person individually, means that one pain

med will help one person, but not the next. For example, Demerol and

Morphine don't touch my pain and Dilaudid takes it all away, yet for

Joe Bloe, Dilaudid doesn't help with the pain, in fact it gives Joe

a bad migraine, whereas Demerol works for him..

Deb, if I remember rightly, you are from NZ? have you contacted

these people at all?

http://www.northridgesurgery.co.nz/location.html#staff

They have descriptions on their site for Pancreatitis, ERCP's etc,

and should have a doctor there who knows something, or can at least

give you the name of a doctor close by who can help you.

Otherwise, you do have the other option of obtaining treatment in

Australia, which I mentioned before...well at least it was possible

when I lived in Oz 5 1/2 years ago....and things might have changed

since then..

Ward

PAI Administration Support Staff

dceward@...

[Guest guest]

Kimber

Thanks

I went looking for help, I am at the point where I am losing all

hope, I dont understand why when I take the morphine for time

release it helps and when itake it for break throuh it helps, since

goign to see him, I have been unable to work, due to pain and stress

and

My pain or the extent to which I had to be in pain for his tests in

th emornings has left me chasing the pain in catchup mode with sever

flares where I have taken 10 times my dose of pain med sin break

through

I have now got shingles, and since Friday my pain is worse, on

eatign drinking sitting, I am fainting, vomiting and I am

desperately searching for answers as I have come to the conclusion

that I am the only one that has the most vested interest to find an

answer or treat my pain.

I am at a loss now as to what they future may hold to treat my pain,

and am worried that if I stop the meds whcih is more or less what he

is saying eg they dont help that I will get uncontrollable pain and

lose what i have left. I just dont have the strength to comprehend,

undestand, solve and fix / cope

I have no other specialist, they have all left the hospital. I only

went back to pain management because I couldnt cope anymore by

myself and I thought I was goign to see my old pain doc ..... and he

was gone.

I dont know what to do now, or where to go or who to see, I have

been dismissed by all the top specialists as they cant fix my pain.

One has given a doagnosis of Cp previously he's now in another city

so I cant travel to see him. I asked him what to dohe said to go

back to my old pain doc, and thats failed. he helped me though. But

he cant treat me remotely

Debs-

[Guest guest]

Debs,

I wish there was more I could do to help, but I'm not familiar with NZ.

There really isn't a cure for pancreatitis and the only main treatment

is pain medication. Some people have had a total pancreatectomy with

islet transplant, but it doesn't work for every one. I wish there was

more I could do

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Yes Thats what i cant work out if morphine didnt help then why does

it in combination with clonidine, notryptiline etc reduce my pai

the only other things I could think of was ketamine...Is anyone

taking that> I searched on the net and found that it may help along

with neurontin .

I wasnt sure if fentnyl is a morphine equivalent eg does it mean

that that migth be better

>

> Deb, if I remember rightly, you are from NZ? have you contacted

> these people at all?

>

Yes I am in New Zealand and thanks I have looked at that sight.

I am not sure how I would go about getting treated in australia . do

they charge kiwis????? when you were there?

Debs

[Guest guest]

Deb,

I am Australian, but married an American and have been living in TN

for the past 5 1/2 years...I shall inquire for you regarding medical

treatment in Australia for New Zealanders...(didn't want to say

Kiwi's in case I should offend you and I don't want to do

that..besides, it's not in my nature to use Kiwi's unless talking

about the bird *L*)

Try contacting the staff on that site, they should be able to at

least give you the names of other GI's and pain specialists who can

help you until then..

Fentanyl is an opiod, in the same class as Morphine. If I were in

your shoes right now, I would be getting as far away from that

doctor as I possibly could and be suffering through the ER &

hospital stays until I found someone, at least you would be getting

decent pain control.

Give me a couple of days and I should be able to find something out

for you..even by the end of today hopefully..

Regards,

Ward

PAI Administration Support Staff

dceward@...

[Guest guest]

Debs,

Without question, I think you need to consider Kimber's advice about

getting another doctor. This one doesn't seem to be having your best

interests at heart....this is twice now that he's let you suffer

through extreme pain without making any efforts to relieve it. It's

as though you were only a guinea pig to test and analyze, not a person

who needs to be treated with compassion.

If the morphine relieves your pain, could you continue it until

something better is found? It is contraindicated for persons with

SOD, but as far as I know, you've not been diagnosed with SOD, have

you? I would think that if that's what you've used in the past

without any side effects, that it wouldn't hurt to take some

temporarily until something else is suggested. If this doctor says

that morphine or it's equivalent isn't something you should take, he

needs to tell you WHY. If he says " no " to the morphine, then he

should call in something else, NOW, for you to use. It's inhumane to

keep you waiting, in pain, another week until you are supposed to see him.

Can you call him back and ask him to substitute something else for

you? Explain to him that you can't get through with no meds at all

until your appointment.

IMHO, I don't think this doctor is helping you at all. I think he's

too concerned with the technical aspect of diagnosis other than

listening to you, and his treatment of you this far has shown no

compassion or listening skills. This is only my opinion, though, and

you must do what you feel is best for your health.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina Rep.

South Eastern Regional Rep. PAI

Note: Any comments or advice are based on personal experience or

opinion only, and should not be substituted for professional medical

consultation.

[Guest guest]

Heidi

> I idd feel like a guine pig and I want answers

I am going to try and take an advocate with me when i go back to get

the results and for support

The morphine does rleive my pain and I do have enough to continue

It is contraindicated for persons with

> I haveny been diagnised with SOD but have had to 2 sphincter cuts

> I have got relief from orphien in the past.

If this doctor says that morphine or it's equivalent isn't

something you should take, he

> needs to tell you WHY. If he says " no " to the morphine, then he

> should call in something else, NOW, for you to use.

>

I too think that he hasnt been helping me all thes tests have caused

my head to trip and pain meds and stress and attackes have spiralled

I have to get his answers see what they are if i dont like them I

will go above him,,,...... I want releif I dont want to end up worse

because what ever drugs i use now keep me upright.

cheers and thanks

Debs

[Guest guest]

Hi

Yes I am a kiwi and your the ozzy

I had a look at that site thanks

>So would fentanyl be a morphine equivalenT? i was wonderign if

fentanyl pain patches woudl work for me...... eg i understand reduced

constipation

...

I appreciate you looking into wehther kiwis can be treated over in

aussie health eg free like here>

>

Cheers

Debs

[Guest guest]

KImber I agree

I am goign to hear him I want the results see what plan he has and I

will be asking lots a of qustions which i now need to collate,

-

I'm mean, if it can't be treated

> by narcotics (which have actually worked to lessen your pain),

HOW CAN

> it be treated? He hasn't seem to come up with any ideas that have

> actually worked.

yeh thats it they do work, I use also Clonodine I have tried to get

neurontin but they wont give it to me, and nortrytpiline

I need now to amass questiosn so I can see what all this drugs were

I will look for somone to go with me

thanks once more

..

[Guest guest]

sandy

Yes --

) WHY would you stop the morphine if it helps

> you with the pain? It is my belief that you should get yourself

relief in any legal way you can. What you said there sounds like a

pancreatic attack, but also sounds

> like a SOD attack as well. So you have morphine with you that you

can use to help control the pain?

Yes Sandy I do

Then I say use it at moderate discretion

> until you can see this doctor again. Then go see another one until

you

> have 2 that give you the same answer.

Good advice i will certainly go elswhere if this is bad.

I dont understand how he sees it sodesnt work when it does reduce my

pain, fentanyl does too, and epidurals work as well as feeding tubes

I get the feeling he has seen me as somoen that noone has been able

to solve. But I dont want that

I dont want the fear of my meds that work being taken and th efull

pain hitting and me then not being able to function at all. that

terrifies me

debs

[Guest guest]

From what i've been told by someone on my Aussie support group, Kiwis

can be treated in Australia if visiting, however there are some

limitations and that is treatment already arranged can't be done...

I can try and contact Medicare to see how it would be for your

situation, or I can give you their number and you can try. I can't

ring their 1300 number from here in the States.

I tried sending them an email, but their email address is

invalid...strange for a government department...hmmmmmm

[Guest guest]

Debs,

I'm glad you will be taking someone else with you when you go see him.

My question for him is what I said before " If narcotics won't work to

help stop pain, what WILL work and are you willing to give it to me

(you)? " . Let me know how the appointment with im goes. I'm worried

about you.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Kimber,

I am yet to get somone but will ring around tomorrow, to see, but I

will have a list of questions, if I dont do that I will get nowehere,

I just feel so intimidated.... and dont feel we click hmmm

Thanks for that question

-

I will let you know and thanks for caring that means a lot

think we go back a few years from memory on here

Debs

--

[Guest guest]

Hi

Thanks. I never even thought it was possible to do at all, I just

dreamed of it

So you think that if I was visiting then eg holiday I could get

treated??

Let me know the medicare email address / number and I can see what I

can do

Thanks

Debs-

--

[Guest guest]

Deb,

here are the details..

Medicare Public Enquiries Line

Phone

132 011 (local call rate)

(during business hours)

Mail

Medicare

GPO Box 9822

in your capital city

You might need to get your brother to call them and find a normal

number to call them with, unless you can call those 13 numbers from

NZ. I can't from here.

He could also call them and ask on your behalf. You can see a doctor

and be treated for your pancreatitis as long as you DON'T make any

arrangments from NZ with him.

You would have to start it all whilst you are in Australia. If you

are residing in Australia, you will be entitled to the full medicare

benefits.

Good luck, and I'd be going this way...

[Guest guest]

Wow what can I say , I never even knew that it was possible, I

wondered from here previoulsy but never had been able to even begin to

figure what you have been able to tell me

yes I can talk with my brother and ask him to make some enquires

Thanks matey

Debs

[Guest guest]

Debs.

let us know how things go with the doctor. Try not to let them

intimidate you. they aren't all powerful, omnescient beings, just humans

like you and me. And yes, we've known each other for several years now

on this group.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.