NEED SOME ADVICE

[Guest guest]

Hello my name is . I have been one and off this site and have been reading

a lot of mail. I have amde my decesion to have the TPICT. My apt is on June 10

thats the big day. It is coming so fast and i have debated back and forth over

this decsion. I still have some doughts deep inside or maybe it's just fear but

I was hoping to get some words of encouragement. Right now I am in my 3rd years

of college struggling right now to get these finals done. So this has added

another stresser on my shoulders. Thanks so much for listening to me.

Scared and worried

ERIN

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[Guest guest]

Hi ,

I see you are up late worrying about your decision and just wanted to

say hello. My son has CP and we are anticipating the same thing. He

was supposed to be evaluated in late April, but he developed mono and

we can't do anything until his spleen returns to normal - which can

take 10-12 weeks according to his doctors. He is being treated at U

of M and is not making much progress. He has been able to decrease

his pain meds, but he still can't do any physical work and tires

rapidly. It is hard to decide if it is the pancreatitis or the

mono. We'll see soon enough. I think if decides the

procedure TP-ICT is the way he should go, I will be 100% satisfied

that he is doing the best possible thing to carry on his life and

enjoy his family and the things he loves. I would not want him to

suffer for twenty more years before he decided to do something

definitive. I will keep you in my prayers and hope to hear your

joyous shouts that you are pain free soon. --- >

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[Guest guest]

,

I applaud you on your decision and I am glad you have that option to get

relief. I have not had any surgery on my pancreas yet. Mine is the day before

yours but I am just having a sphincterplasty, so I can't offer much advice. I

just wanted to let you know I will be praying for you and hoping all will go

well!

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "

[Guest guest]

,

I know how difficult a decision major surgery can be to make. It

affects so many areas of a person's life, not to mention the other

members of the family it impacts on.

I haven't had this surgery, so I can't help you very much with

information about it, but Chrissy had it done last November and she

as well as the others who have had it done would be better qualified

to answer any concerns you have about the actual surgery.

If you wish to voice your thoughts and/or questions you still have,

please do and we shall try to answer them, or allay some fears as

best we can..remembering that any advice or information we give is

from a personal and experienced viewpoint, not medical..

Regards,

Ward

PAI Administration Support Group