Re: Re: LINDA

[Guest guest]

So you and your son are at the U of M now? You guys have made the decison to do

the procedure as soon as he recovers, right? My mom and I have decided that

this may be the only choice left to hopefully regain a normal life that a 21

year old should be living. I have been in constant pain for 5 years now in and

out of the hospital and on huge amounts of fentanyl (250mic) every 48 hours. I

am so scared with this amount of meds and going into surgery. I just hope that

when i have this I will be a least pain free if anyting. I am moving into my

first duplex with friends and statring my senior year of college and I so

despertly want to live a normal college life at least one semester. I hope that

your son gets better soon and I hope all will go well with future plans. Thanks

for your e-mail

wrote:

Hi ,

I see you are up late worrying about your decision and just wanted to

say hello. My son has CP and we are anticipating the same thing. He

was supposed to be evaluated in late April, but he developed mono and

we can't do anything until his spleen returns to normal - which can

take 10-12 weeks according to his doctors. He is being treated at U

of M and is not making much progress. He has been able to decrease

his pain meds, but he still can't do any physical work and tires

rapidly. It is hard to decide if it is the pancreatitis or the

mono. We'll see soon enough. I think if decides the

procedure TP-ICT is the way he should go, I will be 100% satisfied

that he is doing the best possible thing to carry on his life and

enjoy his family and the things he loves. I would not want him to

suffer for twenty more years before he decided to do something

definitive. I will keep you in my prayers and hope to hear your

joyous shouts that you are pain free soon. --- >

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