Re: I need help pancreas attack to Esther

[Guest guest]

Esther...this story sounds exactly like mine and I mean exactly..

Do you have FAP or similar? I had all but 8 inches of my colon

removed due to precancerous polyps, as I had inherited Familial

Adenomatous Polyposis through my mothers side of the family.

Then Just over 6 years ago I woke up to the most horrendous pain I

could ever imagine. Over and over again I had attacks. I suggested

to a couple of doctors that perhaps it was a polyp blocking my

pancreatic duct, as polyps are known to grow in the duodenum and

stomach as well as the colon. This got dismissed as no, not a

chance, even though this same thing happened to my mother..

Finally, after 10 attacks or so, I found a GI who did an ERCP and

wouldn't you believe it? I was actually right..a precancerous polyp

was located at my papilla. I had a modified whipple to remove the

polyp and lining of the duodenum, and then had further attacks 3

months after the surgery. These attacks were caused by scar tissue

causing pressure on my duct. It took 2 years but a doctor finally

managed to fix the scar tissue problem around my duct and I am now

just left with billiary duct spasms which only last a few seconds

and are rare thank goodness.

If you wish to email me privately, you can do so...

Regards,

Ward / TN

PAI Administration Support Group

dceward@...