Aussie pancreatologist

[Guest guest]

I used to work very closely with the ERCP docs at MUSC. Namely Dr.

Cotton. He had 2 fellows; meaning academic fellows, who studied

under him for several years and were excellent. They were both

Australian and returned home after their 4 years (I think) with Dr.

Cotton. Drs. Devonshire and Hugo Tang. Debs if you can get to Aus

then I would strongly suggest you look up one of these guys. I knew

them personally and they were wonderful people as well as being some of

the best fellows I have ever met. You can even say I recommended them.

I hope you feel beter soon and for what its worth I think that pm doc

is a whack job who is just into torture. His practice sounds almost

illegal if not unethical.

Warmly,

[Guest guest]

Thank you so much, Do you know what city they might be in, I might

try and do a search on them. My brother now lives in Sydney so I

could ask him to look.

I dreamed of beign in Aussie to help me but never ever considered ot

possible until you guys suggested it and have thought of ways....

New Zealand is just so small, and I have seen the top guys, other

GI's early on said too hard and just outright said theres nothing

they can do . I was in the hospital and appalled. Even the guys I

did see kept palming me off , and the one who has helped tried to

say you need to see soemone else. I said you cant blow me off

eveyone else has, I have noone. he stayed, but is a surgeon and he

cant help me with pain relief. It so rare to have what happened to

me eg with a 3 day gallbladder surgery recovery that turned into

this 6 year nightmare and I just went downhill, my mum stayed with

me for 3 months in hospital and without her I knwo I would not have

made it. I know that now, I didnt think that at the time, but

after I got out I realised how close I was , why all my friends came

and left in tears they thought I would die.... I had deleyed shock

afterwards I couldnt stop gettign upset when I relaised,. I am

better now about it, but only because of the antidpressants and from

me accepting that maybe that they didnt need to know what is causing

my pain...... I was intially obsessed with finding an answer as I

though how do you treat something when you have no idea what it is?

I had every test here that they have. They dont do EUS, They dont

do PET Scans etc. There are only 4 million people here.

On the pain doc, yes my mum has also said that what he is doing

sounds experimental, she asked have I signed any consent forms for

the drugs, the block I said no.

She was stunned as when she had any tests for pain etc they got her

to sign stuff.

I just dont feel comfortable with his attitude, he is not a Nz'er,

and he feels cold, clinical, somehow detached.......I just want him

to understand that as i have said to him,,..... last week, I have

waited logn enough, I have waited 6 years please tell me, I had to

badger him to get what I got, instead he wants to sit face to face

and draw diagrams,

what further worries me is that I know in tha past that fentanyl has

helped wiht ketamien in hospital, but they only thing that got me

out of there was an epidural as well on top of and feeding tubes. It

was only then that I could, get on top of the pain. All had fentanyl

so I KNOW that , that works.

I also know that morphien accordign to him may not work , but it

does work because it brings down my pain and has allowed me to

fucntion to the level I can now. The last thing I want to do is go

backwards

It is going to take a very strong me to face him on tuesday morning

and listen..... when what I really want to do is tell him that what

he did re the nerve block was cold and not humane, that these kind

sof tests are too hard they have made me worse, increased my pain

etc.

I will have to control that...... but if he is no help my last

question will be at least I know that one, is if you cant help me

then who are you referrign me to that can. Eg who is the top pain

guy in this hsopital, failing that I am going to find my old one who

still works there but is no longer in the pain service. Its all I

can think of

What also amazes me is that noone else from any country has done

this kind of testing, why? and why is he doing it the blind way? I

dont know that either, I mean I knwo of placebo responses but I am

struggling

Thanks a lot I really appreciate your help

Debs

> is a whack job who is just into torture. His practice sounds

almost

> illegal if not unethical.

>

> Warmly,

>