Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Hey Janice! YES -It's not split up so even like 4 days on and 4 off...but Tanner still has an off day here and there and of course we all wonder why. On Tanner's off days he stutters. I've been wanting to increase the vitamin E since we are still low according to -so wanted to add vitamin K -but between Tanner's " FOUR " ProEFA and " TWO " ProEPA and " FOUR " alpha/gamma vitamin E capsules -Tanner's counted up that he has to take TEN capsules a DAY! And " that's too much! " " what am I supposed to take more and more and MORE? By the time I'm twenty I be taking ONE HUNDRED capsules a day?!! " (yes that's pretty much how he says it every time I want to increase a bit!) That's what I told -and I'm sure you understand from Mark that working with an almost teen =in my case an 11 year old tweenie -he's got his own mind and is very strong in what he does and doesn't want to do. Not like working with a young child for sure. Gone are the days I could just tweak this or that and Tanner wouldn't notice. Have you noticed that with Mark? But as I just said in a recent message -sometimes the bad days could have nothing to do with a regression -but perhaps because in another way he is growing. There are so many changes -too many to even think of all at once. Tanner's has developed into a " young man " (what he wants to be called) that likes to communicate and talk to just about everyone even though yes his speech isn't 100%. Most of the time for the type of talking he does it's perfect- just certain words -longer more complex thoughts- he has trouble still. We talk about the planet, space, current events, things he is learning at school, how things are made, what happens if you do this or that. Just like week we had a very long and deep conversation about death since Tanner had a bad dream that me and Glenn both died and it upset him. I never knew how much he was thinking before and it's like now that he can talk more -we are all getting to know Tanner even better! Well on the good days -on the bad days Tanner doesn't talk non stop. He is very aware and even though he participates with all his friends -he laughs and plays -just doesn't talk much on the " bad " days. So about the bad days -perhaps it's because our boys are no longer boys- but young men and they are going through the start of puberty. Tanner just keeps sprouting up -I'm 5 foot 51/2 and Tanner at 11 years old is my height now, wears a man's size 9 shoe, and doesn't look like he's going to stop shooting up anytime soon. In addition to physical growing -he's learning about so much more intellectual subjects than he ever did before in school. He's being encouraged to think in a much more sophisticated way for his work in 5th grade. I can't even help Tanner with his math homework anymore as that was never my forte -if I had to divide fractions I'd have to use a calculator! Fortunately Tanner rarely needs help with homework and for the most part does things himself. (but math homework is Daddy or Dakota to the rescue if he needs any help!) Tanner's very aware and is willing to talk about what he remembers and the way things are for him now. Tanner's been on the phone with quite a few parents to explain how he used to have trouble getting words out and how things are for him now. And speaking of talking...We should have our two boys talk. Who knows -perhaps the two of them can figure out the whys of the up and down days. If nothing else I'm sure it would just be great for the two of them to get to know someone around their own age who has the same type of condition. None of Tanner's friends have had any speech issues since we've moved to Florida. There aren't many other kids like him around. Call me at 772 335 5135 after 4 or send me your number and I'll have Tanner call you! BTW -Tanner's " the " song to listen to is Soulja Boy - Crank That Soulja Boy. LOVES it!! I try to dance like they do in this video and he laughs and corrects me to show me the right way to do it (he's learning Hip Hop at school now too) Also does Mark have Rock Band or Guitar Hero? We don't (goodness knows why as we have everything else! My neighbor Laurie says why should I get it when she has it and our boys play with it together) but my neighbor's boys have Rock Band and they take turns being the different parts and that too is very fun for Tanner and Dakota -all the kids. Actually from what I hear adults love it too. ===== Quote Link to comment Share on other sites More sharing options...
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