Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 HI again, Hope you were able to get some sleep last night (Tonight for me) said that she hopes other people are lucky enough to get to meet up with PAI members and I vote to meet up with you! My husband and I always talk about a trip by boat to NZ when we retire! I am not an airplane person so unless they build a big bridge, a slow boat " down-under " will be my preferred route! Anyways to answer you question: The muscle relaxer that I tried was Tizanidine (zanaflex). It made me feel really achy and flu-like - on the verge of throwing up; way different from the nausea that I have with CP alone. I tried it for a week or so then every once in a while after that to see if it really affected me like that and it did every time. So I gave up on it. The trigger point injections were done with lidocaine and a couple of times with lidocaine and a steroid (to stop the inflammation from the injection). They were quite painful while they are being done because that is the only way the doctor can locate your pain area in the muscle. She pokes you until you jump off the table then she injects. She got the general location by palpating the area that was suspect for the muscle pain and pressed deeply with her finger then probed with the needle then injected in the area that she found. My understanding is that there are fairly predictable areas for the muscle pain that is associated with pancreas problems. I had injections in my RUQ just below the arch of the ribcage and below the tip of the ribcage. There are also areas in the back...for me it was the right back to the right of mid-line and again, just below the ribcage arch. She stuck me in a few different places about two weeks apart. She wanted to do it for a few months because it seemed to help. But, my insurance didn't approve and it would have been 500 to 1,000 dollars every two weeks - nothing that I could afford. The day of the shots the trauma pain is pretty awful but by day three the good effects were apparent. I thought that they were worth it. I would be willing to try them again if the insurance changed its mind. I also had some superficial scar release injections with lidocaine which helped dissolve that hard scar tissue that entraps nerves. I think that helped too, although it is still fairly sore and painful if I press deeply on the surgical scar. Not too sure if the knot came back or we just didn't get it all. But basically the TPIs work to " unknot " the spasming muscles.....however, they usually have to be done in a series because what can happen is that as one part of the muscle is unknoted, another area may kink up in kind of a rebounc effect or ripple effect is how my doctor explained it. Sometimes you have to chase this until you hit all the areas. I think there is some literature on this but I know that TPIs for migraines are common....and they principles are the same. I have to say, my pain clinic doc was / is very open to trying new things. The latest is that pain psych. So we have tried alot of different things....but she didn't do any kind of evaluation like you are describing though. I just bascially told her what my diagnosis is, what my biggest problems are and what my goals are and how I see her as helping. So far, so good. In fact, this is the only doctor that I have seen that I feel is worth anything. But I am glad to help. I haven't forgotten about your other questions. I am planning on getting back to you no later than tomorrow so you have time to think about things before your appointment. I am happy to hear that you are feeling a little bit better since your really bad dizzy spells. Not a fun thing for you to be going through, that is for sure. Glad that I put a smile on your face though and I will be sure to add your names to our list of candidates for " behaviour modification " . Laurie Quote Link to comment Share on other sites More sharing options...
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