GI suggests getting off of SCD; going to GFCF

[Guest guest]

Hi-

My kiddo's GI, Dr Krigsman, has suggested taking him off of SCD and

putting him on GFCF. His reasoning, as I understand it, is that SCD

is just too limiting in terms of food choices and not appetizing

enough for a little kid. Dr Krigsman did suggest that some kids have

to be on SCD, but felt that many really don't need something that

restrictive.

My son (SCD since Feb 06) eats many kinds of meats, fruits,

vegetables, goat milk yogurt, an occasional egg, and very limited

honey and limited almond flour.

I wonder if any parents have followed this advice, and if so, what was

the outcome?

Thanks in advance!

[Guest guest]

Stefanie,

Its pretty obvious that this GI does not understand the intricacies of SCD and

how it works biochemically. GFCF does not promote healing and generally things

go backwards. I had a friend who put her Celiac son on SCD after being GFCF and

this kid is doing so amazing. Then her doc told her to put him back on potatoes.

She thought she would try it because he was doing so well. He regressed

immediately and took him off right away. He's back to himself again.

As your son heals his variety will expand, it just takes a bit of time.

Charlene

<><

Hi-

My kiddo's GI, Dr Krigsman, has suggested taking him off of SCD and

putting him on GFCF. His reasoning, as I understand it, is that SCD

is just too limiting in terms of food choices and not appetizing

enough for a little kid. Dr Krigsman did suggest that some kids have

to be on SCD, but felt that many really don't need something that

restrictive.

My son (SCD since Feb 06) eats many kinds of meats, fruits,

vegetables, goat milk yogurt, an occasional egg, and very limited

honey and limited almond flour.

I wonder if any parents have followed this advice, and if so, what was

the outcome?

Thanks in advance!

[Guest guest]

I think so much depends on how your child is doing.

I was concerned about weightloss for my son and

started to slowly wean him to gfcf and his seizures

came back, and he started to get constipated again.

He is obviously no where near ready.

If you do decide to do this, start with one small item

at a time and see how your child does with it.

If there are no more issues with yeast etc... your

child may be ready for a transition. I would really

watch it closely though. I didn't have any success

with it, but I know someone who is having success with

one child, and not the other.

Phyllis

--- stefanieblair wrote:

> Hi-

>

> My kiddo's GI, Dr Krigsman, has suggested taking him

> off of SCD and

> putting him on GFCF. His reasoning, as I understand

> it, is that SCD

> is just too limiting in terms of food choices and

> not appetizing

> enough for a little kid. Dr Krigsman did suggest

> that some kids have

> to be on SCD, but felt that many really don't need

> something that

> restrictive.

>

> My son (SCD since Feb 06) eats many kinds of meats,

> fruits,

> vegetables, goat milk yogurt, an occasional egg, and

> very limited

> honey and limited almond flour.

>

> I wonder if any parents have followed this advice,

> and if so, what was

> the outcome?

>

> Thanks in advance!

>

>

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[Guest guest]

Hi Stefanie,

Karyn Seroussi, the famous GFCF leader made a study about SCD during

the winter of 2003-2004. The control group was made of children who

were on the GFCF diet and the experimental group was composed of

children who did SCD.

Karyn Seroussi reported the following:

" several of the children in the study group showed remarkable

improvement during the 2-month study period, compared with those in

the control group, who overall showed mild improvement during that

time. About 80% of the parents in the study group have decided to

continue the SCD. Most of the gains were seen in health and GI

function, and then in cognitive and learning abilities.

Those in our study with the highest level of compliance had the best

results, but those who reported lower levels of compliance also made

great gains. At this point, it probably makes sense, if you're trying

the SCD, to do it 100%, as per Elaine Gottschall's instructions and

the advice of the Pecanbread website. "

--------------------------------------------------------------------------------\

----------------------------------------------------

My comment:

It is important to note that the children who did not do well reported

lower levels of compliance. Had all the children had high levels of

compliance,then we might have seen even better rate of success.

Mimi

PS I am wiling to give out the source of this statement in private email.

> Hi-

>

> My kiddo's GI, Dr Krigsman, has suggested taking him off of SCD and

> putting him on GFCF. His reasoning, as I understand it, is that SCD

> is just too limiting in terms of food choices and not appetizing

> enough for a little kid. Dr Krigsman did suggest that some kids have

> to be on SCD, but felt that many really don't need something that

> restrictive.

>

> My son (SCD since Feb 06) eats many kinds of meats, fruits,

> vegetables, goat milk yogurt, an occasional egg, and very limited

> honey and limited almond flour.

>

> I wonder if any parents have followed this advice, and if so, what was

> the outcome?

>

> Thanks in advance!

>

>

[Guest guest]

My child and SCD were because of digestive disorders, not any issues with ASD so

I understand if my comments don't help. But...I found on SCD that I had to

change the focus of who we were as a family from our food to other activities

that my daughter enjoys. To me, food is love and celebration. SCD involved

some loss/grief for me there because traditional foods were a big way our family

bonded. We did find SCD foods that we all enjoyed but we also found other

things to do together. We ended up getting into swimming, kickball and for us,

knitting:)

I guess I say this to your doctor's concerns about how limited SCD food choices

seem.

Good luck with your decision.

Cathy

Re: GI suggests getting off of SCD; going to GFCF

I think so much depends on how your child is doing.

I was concerned about weightloss for my son and

started to slowly wean him to gfcf and his seizures

came back, and he started to get constipated again.

He is obviously no where near ready.

If you do decide to do this, start with one small item

at a time and see how your child does with it.

If there are no more issues with yeast etc... your

child may be ready for a transition. I would really

watch it closely though. I didn't have any success

with it, but I know someone who is having success with

one child, and not the other.

Phyllis

--- stefanieblair wrote:

> Hi-

>

> My kiddo's GI, Dr Krigsman, has suggested taking him

> off of SCD and

> putting him on GFCF. His reasoning, as I understand

> it, is that SCD

> is just too limiting in terms of food choices and

> not appetizing

> enough for a little kid. Dr Krigsman did suggest

> that some kids have

> to be on SCD, but felt that many really don't need

> something that

> restrictive.

>

> My son (SCD since Feb 06) eats many kinds of meats,

> fruits,

> vegetables, goat milk yogurt, an occasional egg, and

> very limited

> honey and limited almond flour.

>

> I wonder if any parents have followed this advice,

> and if so, what was

> the outcome?

>

> Thanks in advance!

>

>

__________________________________________________________

Finding fabulous fares is fun.

Let Yahoo! FareChase search your favorite travel sites to find flight and hotel

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________________________________________________________________________

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at AOL.com.

[Guest guest]

Thanks so much to those who have replied so far, and if any one else

has comments, I would appreciate those too.

Based on how busy he is, my guess is that alot of people see Dr

Krigsman. So, I was thinking that maybe others have heard this from

him too, and am very curious about the outcomes ( so many thanks to

those who have already posted about trialing kids off of SCD).

Dr Krigsman's comments weren't based on my son being a picky eater

as he is not( he has a good variety in foods -- many meats, some

fish, many many veg, fruits, yogurt, occasional egg, little honey,

little almond flour).

That said, my son has always struggled with limited interest in all

food ( even prior to SCD) and with low weight gain, despite

consuming alot of calories -- but I dont feel that SCD has

contributed to either of those problems.

Anyway, again, I was really just curious if other people who had

seen good things on SCD have chosen to go off it, and what the

result was. I admit, I was taken aback by Dr K's strong suggestion

to go off of SCD.

Thanks so much!

>

> > Hi-

> >

> > My kiddo's GI, Dr Krigsman, has suggested taking him

> > off of SCD and

> > putting him on GFCF. His reasoning, as I understand

> > it, is that SCD

> > is just too limiting in terms of food choices and

> > not appetizing

> > enough for a little kid. Dr Krigsman did suggest

> > that some kids have

> > to be on SCD, but felt that many really don't need

> > something that

> > restrictive.

> >

> > My son (SCD since Feb 06) eats many kinds of meats,

> > fruits,

> > vegetables, goat milk yogurt, an occasional egg, and

> > very limited

> > honey and limited almond flour.

> >

> > I wonder if any parents have followed this advice,

> > and if so, what was

> > the outcome?

> >

> > Thanks in advance!

> >

> >

>

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>

>

[Guest guest]

Stefanie,

Dr. Krigsman has been treating my son since October. He has

consistently encouraged us to try SCD -- we finally took the plunge

just this week after being GFCF for a year -- so his recommendation

to you might be based on issues specific to your son and your

experience with him on SCD.

Best,

> >

> > > Hi-

> > >

> > > My kiddo's GI, Dr Krigsman, has suggested taking him

> > > off of SCD and

> > > putting him on GFCF. His reasoning, as I understand

> > > it, is that SCD

> > > is just too limiting in terms of food choices and

> > > not appetizing

> > > enough for a little kid. Dr Krigsman did suggest

> > > that some kids have

> > > to be on SCD, but felt that many really don't need

> > > something that

> > > restrictive.

> > >

> > > My son (SCD since Feb 06) eats many kinds of meats,

> > > fruits,

> > > vegetables, goat milk yogurt, an occasional egg, and

> > > very limited

> > > honey and limited almond flour.

> > >

> > > I wonder if any parents have followed this advice,

> > > and if so, what was

> > > the outcome?

> > >

> > > Thanks in advance!

> > >

> > >

> >

> > __________________________________________________________

> > Finding fabulous fares is fun.

> > Let Yahoo! FareChase search your favorite travel sites to find

> flight and hotel bargains.

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> >

> >

> >

>

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> free from AOL at AOL.com.

> >

> >

> >

[Guest guest]

Cathy--that was really beautifully put. I agree. So much of our culture

revolves around sharing food and having special food for special occasions....

Ellen

9 y/o dd scd since 5/06 for crohn's

[Guest guest]

Cathy, thank you for that post. It is very encouraging for me. Our

extended family is also very big into food. We have cookouts and

get togethers all of the time and it is always about what food will

everyone bring. After starting our daughter on SCD for colon issues

I realized how big of a role food plays in our lives as a family and

her life at school. It really made me sad to see how much food

rules our lives. We recently choose not to attend a family dinner

because it would have been difficult for our daughter. Not all of

our family understands this. We too have been trying to put our

energy into other activities. Such as horseback riding and biking.

We just keep trying to go one day at a time. Our issue is that we

have not seen great improvement on the diet yet. We have been on it

for 6 weeks. We are still having D 3 times a day. But I feel that

it is so much healthier than what we were eating that we have

choosen to continue with hopes that we will see improvement. OUr

extended family kind of feels if thier is no improvement then why

stay on the diet. It is a very hard choice to make. But I have put

so much energy into this I can't see giving up. Thanks for your

encouragement. Carla .

>

> > Hi-

> >

> > My kiddo's GI, Dr Krigsman, has suggested taking him

> > off of SCD and

> > putting him on GFCF. His reasoning, as I understand

> > it, is that SCD

> > is just too limiting in terms of food choices and

> > not appetizing

> > enough for a little kid. Dr Krigsman did suggest

> > that some kids have

> > to be on SCD, but felt that many really don't need

> > something that

> > restrictive.

> >

> > My son (SCD since Feb 06) eats many kinds of meats,

> > fruits,

> > vegetables, goat milk yogurt, an occasional egg, and

> > very limited

> > honey and limited almond flour.

> >

> > I wonder if any parents have followed this advice,

> > and if so, what was

> > the outcome?

> >

> > Thanks in advance!

> >

> >

>

> __________________________________________________________

> Finding fabulous fares is fun.

> Let Yahoo! FareChase search your favorite travel sites to find

flight and hotel bargains.

> http://farechase.yahoo.com/promo-generic-14795097

>

>

>

_____________________________________________________________________

___

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free from AOL at AOL.com.

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>

>

[Guest guest]

We are going through a similar situation as Graham is losing

weight as we are trying to do low protein SCD. We have been using

Klaire's vital zymes at each meal and snack and have been able to

add in some starches in small amounts without any adverse affects.

Do I think SCD is best? Yes, but it's just not working for us right

now. It's either go GFCFSF or back on neocate.

a

>

> Hi-

>

> My kiddo's GI, Dr Krigsman, has suggested taking him off of SCD

and

> putting him on GFCF. His reasoning, as I understand it, is that

SCD

> is just too limiting in terms of food choices and not appetizing

> enough for a little kid. Dr Krigsman did suggest that some kids

have

> to be on SCD, but felt that many really don't need something that

> restrictive.

>

> My son (SCD since Feb 06) eats many kinds of meats, fruits,

> vegetables, goat milk yogurt, an occasional egg, and very limited

> honey and limited almond flour.

>

> I wonder if any parents have followed this advice, and if so, what

was

> the outcome?

>

> Thanks in advance!

>

[Guest guest]

I'm confused by these posts -- are you all saying it is bad to celebrate with

food? Or just that it's hard to be left out?

-

ZagorskyGoldberg wrote:

Cathy--that was really beautifully put. I agree. So much of our

culture revolves around sharing food and having special food for special

occasions....

Ellen

9 y/o dd scd since 5/06 for crohn's

[Guest guest]

I'm shocked that Dr. Kriegsman would say such a thing. SCD is the

best therapy for lots of our kids. Does yours have a long list of

food alergies or something else that would cause him to give such

advice? He's usually highly in favor of of SCD.

>

> Hi-

>

> My kiddo's GI, Dr Krigsman, has suggested taking him off of SCD

and

> putting him on GFCF. His reasoning, as I understand it, is that

SCD

> is just too limiting in terms of food choices and not appetizing

> enough for a little kid. Dr Krigsman did suggest that some kids

have

> to be on SCD, but felt that many really don't need something that

> restrictive.

>

> My son (SCD since Feb 06) eats many kinds of meats, fruits,

> vegetables, goat milk yogurt, an occasional egg, and very limited

> honey and limited almond flour.

>

> I wonder if any parents have followed this advice, and if so, what

was

> the outcome?

>

> Thanks in advance!

>

[Guest guest]

>

> I'm confused by these posts -- are you all saying it is bad to

celebrate with food? Or just that it's hard to be left out?

>

> -

I wasn't one of the original posters, but I can relate to what they

are saying. Coming together with family or community (and that

includes classes at school these days) and eating of the same food is

a way of saying we are one with each other and is part of celebrations

in our culture, perhaps all cultures. Coming together, but not

eating, or eating the food that you brought for yourself, does not

express the same oneness. This can be more or less of a problem

depending on the people involved. We've had some really good

Thanksgivings because my extended family made numerous dishes, some

traditional and some SCD and there were many equivalent choices and I

think we achieved that oneness. But at some other gatherings where

we're not all on the same page, the oneness has not been achieved and

something has been lost. In those cases, there are only some where we

can do anything to improve the situation. Finding other kinds of

things to do together can be very helpful.

I eat so close to SCD on a regular basis that I find I am surprisingly

ok with never eating some of our traditional foods again. But my non

SCD sister mourns the passing of certain sugary, gluteny favorites of

our childhood that it is no longer appropriate for her to make and

share with us. Mom and Dad have recently passed on and so there is no

one for her to make the treats for. I think the holidays are

depressing to her now and I need to think about how to ease her into

some new ways to appreciate getting together.

My 2 cents.

, mom to

[Guest guest]

I was not saying that it is bad to celebrate with food at all. It

just upsets me when my child has to be left out of the celebration

or has to eat something totally different then her peers because of

her diet. Before this diet I didn't realize how much food plays a

part of our lives. As we progress with the diet hopefully this

will get better for us. At her school good behavior or a

celebration of any kind is using done with a sugary treat that she

can not have. Her teacher is Wonderful about letting me know when I

need to send a special treat for my daughter but it is not the same

for her. She wants to be just like everyone else!! We have tried

to focus her energy on things other than food, until the diet gets

easier for her. Carla

> Cathy--that was really beautifully put. I agree. So much

of our culture revolves around sharing food and having special food

for special occasions....

>

> Ellen

> 9 y/o dd scd since 5/06 for crohn's

>

>

[Guest guest]

Thanks to everyone who responded to my question.

Just to reply to some of the questions raised: 1) my kiddo doesnt

have a ton of food intolerances at this point ( in the past, prior

to SCD, he showed many more IGG intolerances) -- now he has just a

few; 2) my kiddo isnt really picky, as he eats many meats, some

fish, fruits, veg, and an occaisonal egg and some limited

honey/almond goods and yogurt; 3) my kiddo's appetite has always

been poor, although now it is within the acceptable range, with some

prodding -- he eats around 1800 - 2000 cal a day, and he is 2 years

old.

I see Dr Krigsman in person probably every month or two, and have

for more than a 1.5 years. I believe that his recommendation to

leave SCD ( and actually, this is the second time that he has

suggested this -- the first time, his suggestion was more in

passing. This time it was the entire focus of our appt) was in the

hope that adding a larger variety of gfcf fods might result in more

interest in food and in better weight gain. As he felt that my

kiddo isnt " so severe " to need SCD, he thought that going over to

GFCF would be a good idea.

The intent of my original post was to ask if anyone had done this

and what had happened as a result. I was trying to be open minded to

what Dr Krigsman was suggesting. I am really appreciative to those

who shared their experiences.

Thanks!

> >

> > Hi-

> >

> > My kiddo's GI, Dr Krigsman, has suggested taking him off of SCD

> and

> > putting him on GFCF. His reasoning, as I understand it, is that

> SCD

> > is just too limiting in terms of food choices and not appetizing

> > enough for a little kid. Dr Krigsman did suggest that some kids

> have

> > to be on SCD, but felt that many really don't need something

that

> > restrictive.

> >

> > My son (SCD since Feb 06) eats many kinds of meats, fruits,

> > vegetables, goat milk yogurt, an occasional egg, and very

limited

> > honey and limited almond flour.

> >

> > I wonder if any parents have followed this advice, and if so,

what

> was

> > the outcome?

> >

> > Thanks in advance!

> >

>