Jump to content
RemedySpot.com

messages

Rate this topic


Guest guest

Recommended Posts

Cheryl ... I`m getting you loud and clear. I have trouble with Harper`s

for some reason. It is only when she includes the message to which she

is replying. Everybody else`s are fine.

Jerry

Hey all, Let me know if you got this message. Maybe it's how I'm sending

it. I sent this one as a new message. Cheryl ID

Link to comment
Share on other sites

gefox@... wrote:

> Cheryl ... I`m getting you loud and clear. I have trouble with Harper`s

> for some reason. It is only when she includes the message to which she

> is replying. Everybody else`s are fine.

> Jerry

>

>

>

Link to comment
Share on other sites

(Passing an ice bag to Cheryl for the nose)

Remember, as for opening the cupboard into your nose, was not

dumb...was BRAIN FOG! I do hope you are feeling better.

nne

>

> > Cheryl ... I`m getting you loud and clear. I have trouble with

Harper`s

> > for some reason. It is only when she includes the message to which she

> > is replying. Everybody else`s are fine.

> > Jerry

> >

> >

> >

Link to comment
Share on other sites

Cheryl ....I`m glad you`re feeling better...

I don`t know anything about liver flukes or the like but I will see what

I can find...

Try to stop leading with your nose..

love and serenity

jerry

gefox@... wrote:

Pruned fingers and a bruised nose? I wonder

how your doctor will

diagnose that.

LOL Jerry

Link to comment
Share on other sites

Leona, are you checked for cataracts as well as glaucoma? To what does your doctor attribute your tiredness?

I, too, tire very easily. I'm down to 7.5 mg Prednisone, 100 mg Imuran. My doctor says the prednisone is about equivalent to what my body would produce normally. He seems surprised and uneasy that I'm so very tired but, according to my husband, who listened more carefully than I, he says I've been very sick for a year and will just take time to recover. I'm doing well, but the tiredness does discourage me. I believe my mental functions are recovering lately; they seem to be a problem mostly when I'm tired. He suggests that my fatigue might be due to depression and suggests that I consider an antidepressant, but I just don't think that I am depressed -- sometimes I'm angry or sad about specific things, as anyone would be, but I THINK I'm unusually happy most of the time. I'm throwing out these bits of information about me in case some of it might be useful to you. I was diagnosed AIH 5/00 (I'm 57, female) and find that I'm doing very well recently, although my gp said she thought I was "a goner, done for" in May!

Now that I know things are going well, I'm going to try walking for as long as possible every day to see if that gives me more energy. I gained 40 pounds in six weeks, and surely that weight must be contributing to fatigue -- that's like carrying a fully loaded camping backpack everywhere I go.

Weight Watchers, maybe? It goes against my nature to sign up for such a program, but I want to do all I can to get strong again, to take advantage of my good fortune in recovery. Harper

Link to comment
Share on other sites

  • 2 years later...

O. K. I'll start trying to remember to delete the message I'm replying to,

but let me just say that I don't understand what the problem is. It

actually helps me to have the original post tacked on so that I can know

what's being discussed. If, for instance, I had left the original post on

this message one could easily just read what I've typed here and then just

don't scroll to see the leftover message. Am I missing something? Did I

not understand the post about messages? If anyone on this forum didn't see

the post about messages won't they have to take more time to try to figure

out how to find the post about messages? Not all of us are very computer

literate. Should we be left out of the support group because we're not

computer gurus? I don't go online to go to other groups, therefore I don't

know anything about online group etiquette. Nor do I have the time,

patience, energy, or will to figure out what all the rules are. I've seen

several posts as of late where people are complaining about the way people

post their messages. I would think that for people who are sick, and would

have the understanding of what goes on when one is sick with an autoimmune

disease that we would just let some things slide. I try very hard to be

positive and uplifting to everyone, and I have ignored several posts on this

subject, but I am getting really frustrated and yes, irritable, over people

complaining about the forum. It's full of lots of wonderful information and

support and very nice folks. ly, I don't even understand how a person

has trouble scrolling through an email when they can manage to sit in a

chair, turn on a computer, and type. Think about it, is this petty, or

what? Why ruin a good thing by complaining all the time. Can't we all just

be a little more tolerant? Perhaps I'm not being very tolerant! I don't

mean to sound mean, but I have really been enjoying this forum and the

complaints are getting tedious. You can't please everyone.

Link to comment
Share on other sites

I don't even read the complaints anymore. As soon as I realize it is one, I

delete it immediately! No time in my life for petty bull shi*!!! Ignore

complaints, and post however you want to post. If someone doesn't like it, they

can delete it... just like I do their complaints!

In a message dated 2/27/2003 1:33:04 AM Eastern Standard Time,

troycheryl@... writes:

> Think about it, is this petty, or

> what? Why ruin a good thing by complaining all the time. Can't we all just

> be a little more tolerant? Perhaps I'm not being very tolerant! I don't

> mean to sound mean, but I have really been enjoying this

> forum and the

> complaints are getting tedious. You can't please everyone.

Link to comment
Share on other sites

In a message dated 2/27/03 7:59:23 PM Eastern Standard Time,

pookiegut@... writes:

>

>

>

> I don't even read the complaints anymore. As soon as I realize it is one, I

> delete it immediately! No time in my life for petty bull shi*!!! Ignore

> complaints, and post however you want to post. If someone doesn't like it,

> they can delete it... just like I do their complaints!

>

>

>

> In a message dated 2/27/2003 1:33:04 AM Eastern Standard Time,

> troycheryl@... writes:

>

> >Think about it, is this petty, or

> >what? Why ruin a good thing by complaining all the time. Can't we all

> just

> >be a little more tolerant? Perhaps I'm not being very tolerant! I don't

> >mean to sound mean, but I have really been enjoying this

> >forum and the

> >complaints are getting tedious. You can't please everyone.

Well put ! Don't we all have to much else to worry about (like our

health) than how people reply to posts? Come one everyone, just read what

you want and hit delete on all other things. The moaning and groaning is

getting a bit old. Put that energy to better use!

Link to comment
Share on other sites

I myself just copy the pertinent part of the message I am replying to, so

there is a reference point to look at in regard to my reply. That way my

answer is tied to the original message.

Carol in Vancouver, Washington

Link to comment
Share on other sites

I can see both sides of this thing. I agree that it helps to set the context

of a reply by including the significant part of a previous post that parlays

into the reply where you want to elaborate on or mention a related thought.

The legitimate complaint is with copying a whole message or at times even a

whole string of messages into one reply. Beyond that should one place

their reply comments before the excerpt of a previous post or after? I think

before. Then if the reader cant understand the context Then they can scroll

down to get an excerpt of the post that was replied to.

n a message dated 2/27/03 1:23:45 PM Central Standard Time,

troycheryl@... writes:

> It

> actually helps me to have the original post tacked on so that I can know

> what's being discussed

[Ed. Note: I agree Orin. I usually put my reply before the post to which I'm

replying, but on most bulletin boards the reply is placed afterwards or even

interspersed within the original message if more than one point is being

addressed. As long as people stick solely to this forum they can do pretty much

whatever they want, but on most other forums (especially USENET forums) people

who include multiple previous messages in their entirety would be booted out. If

you have a news-reader (Outlook Express, Netscape, etc), check out

news:alt.support.skin-diseases.psoriasis sometime. Ron]

Link to comment
Share on other sites

Thanks .

I'll take your advice!

Cheryl

Re: [ ] Messages

> I don't even read the complaints anymore. As soon as I realize it is one,

I delete it immediately! No time in my life for petty bull shi*!!! Ignore

complaints, and post however you want to post. If someone doesn't like it,

they can delete it... just like I do their complaints!

>

>

>

Link to comment
Share on other sites

Well said .

Re: [ ] Messages

I don't even read the complaints anymore. As soon as I realize it is

one, I delete it immediately! No time in my life for petty bull shi*!!!

Ignore complaints, and post however you want to post. If someone doesn't

like it, they can delete it... just like I do their complaints!

[Ed. Note: Apparently everyone else must also have a 1.5 Mbps high-speed DSL

Internet connection like I have, since download time doesn't seem to be a

concern. ;-) Ron]

Link to comment
Share on other sites

Ron,

Thanks for your thoughtful response. When I stated that I don't understand

what the problem is, I really meant that literally. I couldn't understand

why, if for instance, I left your whole message at the bottom of this post,

that would bother someone. It seems like they would just read what I've

written here and then move on to the next post. It's o.k., though, don't

try to explain it to me. I stated that I would try to remember to delete

the message I'm replying to, because I do want to be courteous of others. I

don't know how to just pull out parts of a message and respond to those

parts, and make a distinction in who the author is. That is unless I

retype the whole thing along with who said what.

As I said, I had seen several complaints as of late, it wasn't just that

particular one to which I was responding. So, my apologies to whomever

started the whole " messages " postings, I was not trying to single out that

one complaint. I just felt myself becoming increasingly uncomfortable

responding to posts because I thought I might be the next one to get

chastised for improper " netiquette " .

You're right about Gordon. Perhaps he has learned more patience and wisdom

over the years, and I know he doesn't suffer from p.m.s! Ha!

Cheryl

[Ed. Note: Heavens forbid Cheryl, you needn't ever worry about being chastised

for improper " Netiquette " on this forum - at least not if I am the moderator who

runs across such a message in the pending queue, because I would reject it with

a note to the author to be more polite. I do think it is perfectly proper to

make general suggestions to the group as a whole however. If everyone posted

their messages above the message being replied to, it wouldn't be much of a

problem except for those with a slow modem connection to the Internet who would

have to wait while all the extra stuff downloaded. Some people like to post

their messages at the bottom of the message being replied to however, and that

is perfectly Ok. Also, I've seen replies with a couple of hundred lines of text

consisting of a half-dozen prior messages that no one ever deleted. However, if

it's a problem don't worry about it - no one will chastise you. Deleting text

from the message being replied to is very easy however. I don't know which email

program you use, but when you click the " Reply " button, most email programs will

quote the message being replied to with the greater-than sign ( " > " ), and then

put the cursor above the message. It's simply a matter of selecting the old text

you want to delete with the mouse or cursor keys (hold down the left mouse key

while moving the mouse around over the message), and then press the " Delete "

key. If you or anyone else doesn't know how to do it or would like to learn,

please feel free to contact me privately at PA@... Best wishes, Ron]

Link to comment
Share on other sites

Sorry, but I've just gotta ask. Orin, how did you get your message to print

the message; " In a message dated 2/27/03 1:23:45 PM Central Standard Time,

troycheryl@... writes: " I don't get it. Where does that

come from?

You're all laughing at me now aren't you? I can hear it!

Cheryl

>

>

Link to comment
Share on other sites

In a message dated 3/1/03 2:42:28 AM Central Standard Time,

troycheryl@... writes:

> Sorry, but I've just gotta ask. Orin, how did you get your message to print

> the message; " In a message dated 2/27/03 1:23:45 PM Central Standard Time,

> troycheryl@... writes: " I don't get it. Where does that

> come from

I just like to type! ha ha No seriously, I dont know if this only works with

AOL but you select the text you want to respond to by left clicking and

dragging to highlight the selected text then click on reply and it will

insert the selected text along with the info on the original author. If you

want to respond to several posts in one and have original author info on each

one you have to select the text in each one and reply to that to create its

own window, then copy the entire text of the second reply over to the first

one. Make sense? I dont even remember how I discovered that most likely

accidently. Another good example of the value of turning all stones ha ha

Orin

Link to comment
Share on other sites

Guest guest

Cheryl,

If they are laughing at you, they are laughing at me, because I am truly

clue-less at this disucssion about deleting the original message. I read

everything that Ron wrote, and I, too, do not want to offend anyone, but I

don't see how I do it. If you figure it out, please let me know ,

Carol M (there are lots of Carols in this group).

Link to comment
Share on other sites

Guest guest

Thanks for the support, Carol M. Maybe we could start a support group for

people in online support groups who are computer illiterate! Ha ha.

Actually, I think the consensus is that we should just do the best we can

and move on. I think most people here are patient with those who don't know

what they're doing. I think I was not being patient with those who DO know

what they're doing! Thanks again,

Cheryl

[Ed. Note: Absolutely right Cheryl. Everyone is welcome to post here regardless

of their computer expertise, and I'm sorry if I gave any other impression. Those

who *are* old hands with computers and are familiar with online posting

etiquette, have my appreciation for using those skills however. Ron]

Link to comment
Share on other sites

Guest guest

Cheryl....thank you for the support group. You're providing a great service.

Don't worry about those who can't use it. Maybe they can come up with another

one for the " advanced " .

Cheryl Samons <troycheryl@...> wrote:Thanks for the support,

Carol M. Maybe we could start a support group for

people in online support groups who are computer illiterate! Ha ha.

Actually, I think the consensus is that we should just do the best we can

and move on. I think most people here are patient with those who don't know

what they're doing. I think I was not being patient with those who DO know

what they're doing! Thanks again,

Cheryl

[Ed. Note: Absolutely right Cheryl. Everyone is welcome to post here regardless

of their computer expertise, and I'm sorry if I gave any other impression. Those

who *are* old hands with computers and are familiar with online posting

etiquette, have my appreciation for using those skills however. Ron]

Link to comment
Share on other sites

Guest guest

As much as I regret that some cannot scroll very much; for others it's very

helpful to see the original message. I realize that it's difficult to help

everyone especially when we are all at different paid levels and certainly

different technology levels. Again thanks for you help.

Dandcmayer@... wrote:Cheryl,

If they are laughing at you, they are laughing at me, because I am truly

clue-less at this disucssion about deleting the original message. I read

everything that Ron wrote, and I, too, do not want to offend anyone, but I

don't see how I do it. If you figure it out, please let me know ,

Carol M (there are lots of Carols in this group).

Link to comment
Share on other sites

  • 4 years later...

I can tell you that subject matter doesn't determine how quickly the

messages are posted. This is a very high volume message board and

there is always messages waiting to be approved even at midnight due

to the time difference of West coast vs. East coast. Subject line

does make a huge difference for those that are sifting through the

subjects to read or not to read. But again subject matter doesn't

determine how long the message sits to be approved. There are only so many

moderators and sometimes there are around 15-20 messages sitting there every

couple hours on a busy day.

Tina

> > > >

> > > > Cincy,

> > > >

> > > > I think you missed my point. I'm not againt discussing any

> > > > intervention, but people need to self regulate. I wouldn't

> mind a

> > > > periodic summary of what helped someone's child get better.

I

> > like

> > > > to know what else is available, but I don't need to hear

every

> > minor

> > > > detail 20-30 times a day. I don't think many people would be

> > > > interested in all my seizure disorder discussions even though

> > that is

> > > > what caused my son's apraxia. There is a limit to what is

> > > > appropriate for a particular group. The therapy and IEP

> questions

> > > > should not be lost in the shuffle.

> > > >

> > > > On most of my lists, people say what helped them and if

others

> are

> > > > interested they usually join a group that discusses that

> > intervention

> > > > in detail.

> > > >

> > > >

> > > >

> > >

> >

>

Link to comment
Share on other sites

  • 2 years later...

Hi Kathy and all,

You can all send Racine a message via this link:

https://www.ucsfhealth.org/send_a_patient_a_message/index.html

I think, given her surgery that she won't even be in a room until sometime in

late afternoon (CA time).

>

> Hi all - Could someone please tell me how to send R. a message at UCSF?

Do I E-mail or call...or what?

>

> ..........Kathy

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...