Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 I have been sick for around 4 years. They had tried many different things to help me and the pancrease enzymes have worked like a miracle for the most part. Since I started on them I have had only 2 real bad flare ups but the problem is that now when I have a flare up my doctor believes that its caused by withdrawal from the iv meds and his nurse pretty much blows me off when I call. He pretty much said that I'm just imagining the pain. I just wondered if anyone else has gone through this with their doctors. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 wrote:... > He pretty much said that I'm > just imagining the pain. I just wondered if anyone else has gone > through this with their doctors. , This sounds too, too familiar. If only it were possible for these people to experience a sample of what we go through. Just 5 minutes would convince them. I am regularly reduced to tears trying to explain that I need help with my pain. The doctor looks serious, sucks air through his teeth, tut tuts, and gives me a lecture. > my doctor > believes that its caused by withdrawal from the iv meds and his nurse > pretty much blows me off when I call. If only these " experts " would read the literature they'd see that withdrawal is not typical when people are taking opiate meds for PAIN rather than for PLEASURE. In the past I was threatened with being struck off my GP practice list ( " we don't treat junkies here " ) and referred to the local addiction service psychiatrist because I was taking 30mg MST am and pm. The psychiatrist didn't think I was an addict. I felt humiliated. Unfortunately these experiences of disrespect have left me feeling very bitter - and very defensive. If someone vaguely implies that I might be getting dependent on my meds I immediately react quite strongly - thereby convincing them that they may have discovered that I really am dependent. However, last year I had a good phase and came off my pain meds (no need to cut down I just stopped - I knew the literature and was confident). But painless/ good phase came to an end and after 6 months my pain is now worse than ever and the level of medication is inadequate. If things continue along their present course, I'll soon need to seek permission to increase my pain control again. I honestly do not want to have to sit through another lecture. Has anyone on the list found a way to cope with such idiots? Rosie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 , I think it's probably time to get another doctor if this one doesn't believe that you are having flares. It is possible to have flares and actual acute episodes with chronic pancreatitis while taking enzymes. If your doctor doesn't know this, he's the wrong type of doctor to treat you. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
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