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Hi . I am so sorry that you have gottn pancreatitis. I am glad

however, that you have found us. This is wonderful group of people.

they are kind, compassionate and very knowledgable about pancreatitis

and the various treatments. I was diagnosed about 2.5 years ago and

hav had tons of treatments and surgeries. It has been a very difficult

time for me and my family. I dont know what I would have done with out

the support, knowledge and love of the people on this board. I truly

believe that I have made life long friendships with many members.

Please feel free to share your story, insights, fears and ask any

question you have. We talk about everything. Good luck and keep in

touch.

Warmly,

(SC)

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,

Firstly i would like to welcome you to the group, where i'm sure you'll find

most of your anxeties solved. You'll also find love, care comfort, in this group

anytime you're in need, hard time, good time, rainny time.. sunny time.

In regards to find somebody from your state, i'm sure (if we have any), they'll

contact you or an idea for you to visit www.pancassociation.org (website of this

group) and check Where in the world YOU ARE and the left hand side of the main

page. It shows the members and their locality.

I hope you'll have better days ahead.

Rupesh Parajuli

Nepal Chapter

Pancreatitis Association International (PAI)

Post Box No: 13946, Kathmandu, Nepal

Tel: 977-1-4479627, Fax: 977-1-4476878/4460560

Mobile: 977-9851078750

rupesh_parajuli@...

www.pancassociation.org

__________________________________________________

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Hi ;

I too was receintly diagnoised with pancreatitis. Mine began last

November (2004). Three hospitilizations since. Each was for about

two weeks.

I am soorry to hear that your pancreatitis is so severe as to require

surgery. Have you ever had a problem before? Did they try

medications, diet change, and less invasive proceedures?

I'm always willing to e-mail if you need someone to converse with.

Dick

tterflybob2004@y...> wrote:

> Hello everyone, I am and am new to the group. I have been

> diagnosed with chronic pancreatitis since FEb. of this year 2005.

I

> have been in and out of the hospital several times since then.

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Dear ,

Welcome to the group. I have chronic pancreatitis also called cp.

I have had this disease for twenty-five years. If you have any

questions or just need to vent this is the place for you. This group

has been a lifeline for me and I hope it will be for you as well. Most

of us are on Social Security for dissability and it doe's take a long

time to get it. They usually keep denying your claim but, you have to

take it all the way up to a hearing in most cased to get SSD and they

also will give you a medical card as well. I hope I have given you a

little more insight on what you may need to know.

You will be in our prayers.

Janet

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  • 1 year later...
Guest guest

Hi, I'm new to the group. My name is and as an adult I have had

UC for over 10 years. I've been on SCD for a year now, been on it

before but cheated unfortunately. I'm dedicated to it now as I want to

get WELL!~ I've recently read a lot on pecan bread's web site and

decided to join the yahoo group. Is it ok to join if you're an adult

with UC?

UC 10 yrs.

SCD 1 year

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Hi ,

We welcome everyone! Glad to have you join us.

Mimi

> Hi, I'm new to the group. My name is and as an adult I have had

> UC for over 10 years. I've been on SCD for a year now, been on it

> before but cheated unfortunately. I'm dedicated to it now as I want to

> get WELL!~ I've recently read a lot on pecan bread's web site and

> decided to join the yahoo group. Is it ok to join if you're an adult

> with UC?

>

>

> UC 10 yrs.

> SCD 1 year

>

>

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  • 1 month later...
Guest guest

Dear Robin,

Your story is so similar to my own! I also have the same symptoms. I

seem to only tolerate meat, fish, zucchini and avacados. Also much

fatigue, frequent near fainting when I stand, and foggy brain /poor

memory. I have been much improved after starting to take B12 shots.

Now at least I don't get episodes where I am really tearful and

depressed!

My son used to have terrible ezcema too, as well as insomnia, teeth

grinding, and tantrums. Stopping gluten and dairy cured the insomnia,

teeth grinding and ezcema. His aggression and tantrums didn't stop

until we went on the SCD though. That was so wonderful. He changed

the day we started!

I am desperately trying to find a cure for the blastocystis hominus.

That is why I am writing you - I saw that you have it too. Have you

found a successful treatment for it? Any advice you have would be

much appreciated.

What are you able to eat?

I hope that the SCD is going well for you and your daughter!

Warm regards,

>

>

> Hello,

>

> I am new. I have a daughter who is 3 1/2 . She got diagnosed with

> gluten sensitivity. She was off gluten for 10 months but we did

not see

> any differences. She has been off dairy for two weeks and now she

is

> finally developed an appetite for food. For the first time she

actually

> said she is hungry. However, currently she only weighs 27 pounds.

Her

> weight always worried me. The doctors tell me she is fine. But NO

she

> is NOT.

>

> also has ezema all over her body. In the past we had issues

with

> her not sleeping enough. She never slept longer than 45 minutes as

a

> baby. She also grindes her teeth during sleep and suffers from

night

> terrors. We started the SCDiet four days ago. Her exema is really

> improving, as well as her appetite. The dark circles under her

eyes are

> getting better too.

>

> I am having a lot of food issues too. I am intolerant to almost

> everything. I also have a candida problem (thrush) and caught a

> parasite (blastocystis homininis). I suffer from chronic fatique,

> dizziness, weakness and often mix up words. At my daughters age I

used

> to have all the problems she is now having. My parents did not know

> about gluten back then.

>

> Probably as a result of being gluten intolerant for most my life, I

also

> develped Hashimotos (autoimmune thyroid disease). I have a lot of

GI

> problems too. Those got better after going on the SCDiet with my

> daughter 4 days ago. However, for the last 4 days I am also having

> migrane headaches like crazy. Die off ???

>

> Just wanted to say hello. I am currently working on a meal plan

for my

> daughter. I am sure I'll have a lot of questions during the next

> weeks/months or even years to come.

>

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Guest guest

Hi there,

I can't say that this is the only reason we did SCD...but we truly have had

success with the global delay part of it.

WE have done SCD for 17 months. When we started our daughter was diagnosed with

Moderately Severe Autism, CD, seizures and significant Hypotonia. This caused

many delays in her development. Prior to SCD she never pointed...never

waved....never tried to talk....never smiled....cried and screamed most the

time....had severe sensory integration dysfunction, would shut down into a

" sleep " ...and was must miserable for everyone and her self. She would vanish

into delirium episodes and not respond to her name or have eye contact. She

would have four or more seizures in one night. Her life was one of pain and

misery. But one does not have to have out right GI symptoms to do SCD.

Soon after we started " fanatical " SCD her seizures vanished. This was the first

to go.... 9 months into the diet her heavy metal symptoms lessened or vanished.

She started to communicate with speech/babble, point and wave. Most rewarding,

is that we our first hugs from her, and her first true smiles and laughter.

In February she evaluated at a 5 to 6 month level in speech. WE where thrilled

that she was even talking!~

Yesterday we got her evaluation back for Speech. I am thrilled to be able to

share it with you guys.

Here was her scores Auditory Comprehension: 2 years 3 months; Expressive

Communication 1 year 8 months; Total Language Score 1 year 10 months. We have

yet to have her OT and PT evaluation done...but I know that this has improved

too~ She is having it done today.

Also go to www.amazon.com<http://www.amazon.com/> and read the 180 book reviews

for BTVC! This is motivating too!

Yes...SCD will help your daughter. WELCOME to the SCD world! If Elaine says to

do it...do it! Amazing how this works.

Antoinette and family of Five Silly Yaks (fanatical SCD 2/06)

Mom to Kiki-38 months old

(List of family problems we cam with: IBD, IBS, CD, Malabsorption, Candida, Bad

Gut Flora, Leaky Gut, Food Intolerances, Allergies, Heavy Metals, ADHD,

Autism/PDD, Global Delays, Seizures, Sensory Integration Dysfunction, Hypotonia,

Mental Illness, Slow Growth, Hyperekplexia and more....plan and simple SCD has

helped all of us!)

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