Guest guest Posted May 21, 2005 Report Share Posted May 21, 2005 Hi . I am so sorry that you have gottn pancreatitis. I am glad however, that you have found us. This is wonderful group of people. they are kind, compassionate and very knowledgable about pancreatitis and the various treatments. I was diagnosed about 2.5 years ago and hav had tons of treatments and surgeries. It has been a very difficult time for me and my family. I dont know what I would have done with out the support, knowledge and love of the people on this board. I truly believe that I have made life long friendships with many members. Please feel free to share your story, insights, fears and ask any question you have. We talk about everything. Good luck and keep in touch. Warmly, (SC) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2005 Report Share Posted May 21, 2005 , Firstly i would like to welcome you to the group, where i'm sure you'll find most of your anxeties solved. You'll also find love, care comfort, in this group anytime you're in need, hard time, good time, rainny time.. sunny time. In regards to find somebody from your state, i'm sure (if we have any), they'll contact you or an idea for you to visit www.pancassociation.org (website of this group) and check Where in the world YOU ARE and the left hand side of the main page. It shows the members and their locality. I hope you'll have better days ahead. Rupesh Parajuli Nepal Chapter Pancreatitis Association International (PAI) Post Box No: 13946, Kathmandu, Nepal Tel: 977-1-4479627, Fax: 977-1-4476878/4460560 Mobile: 977-9851078750 rupesh_parajuli@... www.pancassociation.org __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2005 Report Share Posted May 22, 2005 Hi ; I too was receintly diagnoised with pancreatitis. Mine began last November (2004). Three hospitilizations since. Each was for about two weeks. I am soorry to hear that your pancreatitis is so severe as to require surgery. Have you ever had a problem before? Did they try medications, diet change, and less invasive proceedures? I'm always willing to e-mail if you need someone to converse with. Dick tterflybob2004@y...> wrote: > Hello everyone, I am and am new to the group. I have been > diagnosed with chronic pancreatitis since FEb. of this year 2005. I > have been in and out of the hospital several times since then. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 Dear , Welcome to the group. I have chronic pancreatitis also called cp. I have had this disease for twenty-five years. If you have any questions or just need to vent this is the place for you. This group has been a lifeline for me and I hope it will be for you as well. Most of us are on Social Security for dissability and it doe's take a long time to get it. They usually keep denying your claim but, you have to take it all the way up to a hearing in most cased to get SSD and they also will give you a medical card as well. I hope I have given you a little more insight on what you may need to know. You will be in our prayers. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Hi, I'm new to the group. My name is and as an adult I have had UC for over 10 years. I've been on SCD for a year now, been on it before but cheated unfortunately. I'm dedicated to it now as I want to get WELL!~ I've recently read a lot on pecan bread's web site and decided to join the yahoo group. Is it ok to join if you're an adult with UC? UC 10 yrs. SCD 1 year Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Hi , We welcome everyone! Glad to have you join us. Mimi > Hi, I'm new to the group. My name is and as an adult I have had > UC for over 10 years. I've been on SCD for a year now, been on it > before but cheated unfortunately. I'm dedicated to it now as I want to > get WELL!~ I've recently read a lot on pecan bread's web site and > decided to join the yahoo group. Is it ok to join if you're an adult > with UC? > > > UC 10 yrs. > SCD 1 year > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 Dear Robin, Your story is so similar to my own! I also have the same symptoms. I seem to only tolerate meat, fish, zucchini and avacados. Also much fatigue, frequent near fainting when I stand, and foggy brain /poor memory. I have been much improved after starting to take B12 shots. Now at least I don't get episodes where I am really tearful and depressed! My son used to have terrible ezcema too, as well as insomnia, teeth grinding, and tantrums. Stopping gluten and dairy cured the insomnia, teeth grinding and ezcema. His aggression and tantrums didn't stop until we went on the SCD though. That was so wonderful. He changed the day we started! I am desperately trying to find a cure for the blastocystis hominus. That is why I am writing you - I saw that you have it too. Have you found a successful treatment for it? Any advice you have would be much appreciated. What are you able to eat? I hope that the SCD is going well for you and your daughter! Warm regards, > > > Hello, > > I am new. I have a daughter who is 3 1/2 . She got diagnosed with > gluten sensitivity. She was off gluten for 10 months but we did not see > any differences. She has been off dairy for two weeks and now she is > finally developed an appetite for food. For the first time she actually > said she is hungry. However, currently she only weighs 27 pounds. Her > weight always worried me. The doctors tell me she is fine. But NO she > is NOT. > > also has ezema all over her body. In the past we had issues with > her not sleeping enough. She never slept longer than 45 minutes as a > baby. She also grindes her teeth during sleep and suffers from night > terrors. We started the SCDiet four days ago. Her exema is really > improving, as well as her appetite. The dark circles under her eyes are > getting better too. > > I am having a lot of food issues too. I am intolerant to almost > everything. I also have a candida problem (thrush) and caught a > parasite (blastocystis homininis). I suffer from chronic fatique, > dizziness, weakness and often mix up words. At my daughters age I used > to have all the problems she is now having. My parents did not know > about gluten back then. > > Probably as a result of being gluten intolerant for most my life, I also > develped Hashimotos (autoimmune thyroid disease). I have a lot of GI > problems too. Those got better after going on the SCDiet with my > daughter 4 days ago. However, for the last 4 days I am also having > migrane headaches like crazy. Die off ??? > > Just wanted to say hello. I am currently working on a meal plan for my > daughter. I am sure I'll have a lot of questions during the next > weeks/months or even years to come. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 Hi there, I can't say that this is the only reason we did SCD...but we truly have had success with the global delay part of it. WE have done SCD for 17 months. When we started our daughter was diagnosed with Moderately Severe Autism, CD, seizures and significant Hypotonia. This caused many delays in her development. Prior to SCD she never pointed...never waved....never tried to talk....never smiled....cried and screamed most the time....had severe sensory integration dysfunction, would shut down into a " sleep " ...and was must miserable for everyone and her self. She would vanish into delirium episodes and not respond to her name or have eye contact. She would have four or more seizures in one night. Her life was one of pain and misery. But one does not have to have out right GI symptoms to do SCD. Soon after we started " fanatical " SCD her seizures vanished. This was the first to go.... 9 months into the diet her heavy metal symptoms lessened or vanished. She started to communicate with speech/babble, point and wave. Most rewarding, is that we our first hugs from her, and her first true smiles and laughter. In February she evaluated at a 5 to 6 month level in speech. WE where thrilled that she was even talking!~ Yesterday we got her evaluation back for Speech. I am thrilled to be able to share it with you guys. Here was her scores Auditory Comprehension: 2 years 3 months; Expressive Communication 1 year 8 months; Total Language Score 1 year 10 months. We have yet to have her OT and PT evaluation done...but I know that this has improved too~ She is having it done today. Also go to www.amazon.com<http://www.amazon.com/> and read the 180 book reviews for BTVC! This is motivating too! Yes...SCD will help your daughter. WELCOME to the SCD world! If Elaine says to do it...do it! Amazing how this works. Antoinette and family of Five Silly Yaks (fanatical SCD 2/06) Mom to Kiki-38 months old (List of family problems we cam with: IBD, IBS, CD, Malabsorption, Candida, Bad Gut Flora, Leaky Gut, Food Intolerances, Allergies, Heavy Metals, ADHD, Autism/PDD, Global Delays, Seizures, Sensory Integration Dysfunction, Hypotonia, Mental Illness, Slow Growth, Hyperekplexia and more....plan and simple SCD has helped all of us!) Quote Link to comment Share on other sites More sharing options...
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