Any cured celiacs out there?

[Guest guest]

Hi,

I am new to this list, and have a question. I have a niece recently

diagnosed with celiac disease. I have told her mom about the SCD,

as we had great success with it with our HFA child. But in looking

over this list, I am not easily finding any stories about people

who've been able to go from the SCD to a normal diet. This little

girl currently has pretty severe diarrhea that seems to be

controlled well by taking out gluten and, for now, milk. Her mom

thinks it would be very hard to put the girl on the SCD (she's 13),

and since I'm not finding stories of people who've been able to

return to a normal diet, why bother? She thinks a life of gluten-

free would be easier than a life of SCD, especially if gf alone

controls the symptoms--and it might.

I know Elaine, in her book, considered the SCD to be a couple years

of tough diet in order to attain the goal of being able to eat more

normally again someday. I am seeing only testimonials from people

who have been on the SCD for many, many years, and not from those

who have " graduated " to regular foods again.

Are there any " cured " celiacs on the list that could help me out

here? I understand my sister-in-law's point. Gluten-free is much

easier for a 12-yr-old, especially if the SCD's not a short-term

diet.

Thanks!

[Guest guest]

Hi ,

It is nice to have you visit us again!

I know of people who no longer need the diet....but they no longer

need to follow our discussions so you might not encounter them on this

list.

I will try to answer more tomorrow.

Mimi

> Hi,

> I am new to this list, and have a question. I have a niece recently

> diagnosed with celiac disease. I have told her mom about the SCD,

> as we had great success with it with our HFA child. But in looking

> over this list, I am not easily finding any stories about people

> who've been able to go from the SCD to a normal diet. This little

> girl currently has pretty severe diarrhea that seems to be

> controlled well by taking out gluten and, for now, milk. Her mom

> thinks it would be very hard to put the girl on the SCD (she's 13),

> and since I'm not finding stories of people who've been able to

> return to a normal diet, why bother? She thinks a life of gluten-

> free would be easier than a life of SCD, especially if gf alone

> controls the symptoms--and it might.

>

> I know Elaine, in her book, considered the SCD to be a couple years

> of tough diet in order to attain the goal of being able to eat more

> normally again someday. I am seeing only testimonials from people

> who have been on the SCD for many, many years, and not from those

> who have " graduated " to regular foods again.

>

> Are there any " cured " celiacs on the list that could help me out

> here? I understand my sister-in-law's point. Gluten-free is much

> easier for a 12-yr-old, especially if the SCD's not a short-term

> diet.

>

> Thanks!

>

>

>

>

[Guest guest]

Thank you Mimi. We are still gf/cf, so that isn't much

encouragement to my brother and his wife. They have never done any

diet intervention, so I know all of this must seem very overwhelming

for them. I know they've thought we were very odd with all we've

done for our son. Perhaps the biggest reason I want them to try the

SCD is that I think my niece has sensory issues that would be helped

as well. I'll look for your post!

> > Hi,

> > I am new to this list, and have a question. I have a niece

recently

> > diagnosed with celiac disease. I have told her mom about the

SCD,

> > as we had great success with it with our HFA child. But in

looking

> > over this list, I am not easily finding any stories about people

> > who've been able to go from the SCD to a normal diet. This

little

> > girl currently has pretty severe diarrhea that seems to be

> > controlled well by taking out gluten and, for now, milk. Her mom

> > thinks it would be very hard to put the girl on the SCD (she's

13),

> > and since I'm not finding stories of people who've been able to

> > return to a normal diet, why bother? She thinks a life of

gluten-

> > free would be easier than a life of SCD, especially if gf alone

> > controls the symptoms--and it might.

> >

> > I know Elaine, in her book, considered the SCD to be a couple

years

> > of tough diet in order to attain the goal of being able to eat

more

> > normally again someday. I am seeing only testimonials from

people

> > who have been on the SCD for many, many years, and not from those

> > who have " graduated " to regular foods again.

> >

> > Are there any " cured " celiacs on the list that could help me out

> > here? I understand my sister-in-law's point. Gluten-free is

much

> > easier for a 12-yr-old, especially if the SCD's not a short-term

> > diet.

> >

> > Thanks!

> >

> >

> >

> >

>

[Guest guest]

Hi ,

There are many conditions that occur together with celiac. For

example, depression and osteoporosis are very common among people with

celiac. Gram negative bacteria have been implicated for causing all

these conditions. If you do SCD then you are protected from the

unfortunate conditions that are associated with celiac.

Since GF does not eliminate the bacteria that cause the damage to the

villi and other parts of the GI tract, there is the possibility that

the condition will get worse and that GF will not work anymore.

If you want research studies, then I will provide them. Please send

our best regards to your son, Reid.

Mimi

> Thank you Mimi. We are still gf/cf, so that isn't much

> encouragement to my brother and his wife. They have never done any

> diet intervention, so I know all of this must seem very overwhelming

> for them. I know they've thought we were very odd with all we've

> done for our son. Perhaps the biggest reason I want them to try the

> SCD is that I think my niece has sensory issues that would be helped

> as well. I'll look for your post!

>

>

>

>

> > > Hi,

> > > I am new to this list, and have a question. I have a niece

> recently

> > > diagnosed with celiac disease. I have told her mom about the

> SCD,

> > > as we had great success with it with our HFA child. But in

> looking

> > > over this list, I am not easily finding any stories about people

> > > who've been able to go from the SCD to a normal diet. This

> little

> > > girl currently has pretty severe diarrhea that seems to be

> > > controlled well by taking out gluten and, for now, milk. Her mom

> > > thinks it would be very hard to put the girl on the SCD (she's

> 13),

> > > and since I'm not finding stories of people who've been able to

> > > return to a normal diet, why bother? She thinks a life of

> gluten-

> > > free would be easier than a life of SCD, especially if gf alone

> > > controls the symptoms--and it might.

> > >

> > > I know Elaine, in her book, considered the SCD to be a couple

> years

> > > of tough diet in order to attain the goal of being able to eat

> more

> > > normally again someday. I am seeing only testimonials from

> people

> > > who have been on the SCD for many, many years, and not from those

> > > who have " graduated " to regular foods again.

> > >

> > > Are there any " cured " celiacs on the list that could help me out

> > > here? I understand my sister-in-law's point. Gluten-free is

> much

> > > easier for a 12-yr-old, especially if the SCD's not a short-term

> > > diet.

> > >

> > > Thanks!

> > >

> > >

> > >

> > >

> >

>

>

>

[Guest guest]

Mimi--What fascinating input on " larger issues " related to celiac....I had not

thought of those issues.

Thank you.

Ellen

9 y/o dd scd since 5/06 for crohn's