PLEASE HELP!! Can anybody relate???

[Guest guest]

Hi everybody I'm new to this group although am a member of

biomedicalautism group and autismdiet group.

is 15 months old and has been doing SCD for around 4 weeks.

Before that she was GFCF for around 4 months with huge improvement

at the start and then regression.

Although her paediatrician was reluctant to give a formal diagnosis

(at 10 months) her biomed doctor believes she has mild autism.

At the moment I just don't seem to know what I'm doing. My main

concern is her weight. I've just had her weighed, measured etc. and

she weighs only 7.65kg. She's not even on the chart for children

her age. Her length is fine, and her head cirumference too. But

since she turned 12 months old she has put on 10 grams!!! I'm so

worried about her. Her ribs are showing through, there's barely any

muscle on her limbs, she's just so thin.

She cannot walk, nor crawl. All she can do is commando crawl and

only started doing this at around 12 months old.

So far we are not progressing very far with the diet. I THINK

carrots are a problem as her BM's were quite orange when we first

started the diet - although she WAS having a lot of carrots (she

wouldn't eat the chicken or anything else unless there were carrots

with it). She didn't have diarrhea or anything, just formed, orange

stools.

Anyway then we introduced stewed apple - had horrible smelling

stools which stunk like rancid apple cider. So i cancelled them

out. Then tried bananas - again horrible, horrible stools. Not

quite diarrhea but very mushy and acidy with pieces of undigested

banana. So i cancelled them out too.

Anyway at the moment we've also crossed off zucchini but SEEM to

have had success with stewed pears, butternut pumpkin and green

beans. The only reason I think these things are working is because

we haven't had diarrhea (although BM's can sometimes smell pretty

bad still). BUT - my problem is that I'm TERRIBLE at figuring out

the other signs and symptoms of a bad reaction to a food. I keep

looking for red lips and ears Ear pulling, runny nose etc. etc.

But she's had a cold on and off for what seems like the last month

and over the last two days she's been in and out of the emergency

room with a terrible viral infection!!!!! Her sister has had a

similar bout of sicknesses so do I assume this is the diet causing

these viruses or is it just " going around " ????????? She's really

quite sick at the moment (sore ears, raging fever, vomiting etc.)

and its SO hard to guage whether or not she's tolerating a new food!!

My other question that I have is in regards to fats and SCD.

Because Jess is so underweight I'm really worried that she's never

going to learn to crawl/walk if she doesn't develop some muscle

mass. I'm at the moment introducing avocado in the hopes this will

first be tolerated and then hopefully she can put some weight on.

And I've been adding more oil to her meals.

Can ANYBODY who has been/still is on SCD with a child so young

PLEASE tell me about their experience???

I've already asked this question three or four times to other groups

but I just can't seem to get the answers I'm looking for....

I'm sorry this is such an incredibly long post, at the moment I'm

pretty stressed and frustrated and worried sick so I really thank

anybody who has taken the time to read it all!

Also she started Methyl B12 shots around 3 weeks ago and has been on

some of the Kirkmans supplements (Super Nu-Thera Liquid 12.5mg P5P,

calcium with vitamin D powder and pure cod liver oil).

Thankyou in advance,

Mum to Jess-ASD

[Guest guest]

Dear Sara, I wish I knew the answers to your questions but I'm pretty new to the

group too. I just wanted to share that my son, at that age, was very underweight

also, and the pediatrician was constantly pressuring me to induce him to eat

more and sending us to nutritionists. With time, he put on weight and now is a

normal height and weight, in fact, a little overweight due to my habit of always

overfeeding him. I know it is worrisome, but some kids with autism do seem to

have difficulty putting on weight when they are little. I'm hoping that with

time and patience, you will start to see some patterns in the food reactions and

figure out what to feed her.

Best,

Mother of Virya, age 16, autism and LKS, SCD since March 07

sarahellerbock <no_reply > wrote:

Hi everybody I'm new to this group although am a member of

biomedicalautism group and autismdiet group.

is 15 months old and has been doing SCD for around 4 weeks.

Before that she was GFCF for around 4 months with huge improvement

at the start and then regression.

Although her paediatrician was reluctant to give a formal diagnosis

(at 10 months) her biomed doctor believes she has mild autism.

At the moment I just don't seem to know what I'm doing. My main

concern is her weight. I've just had her weighed, measured etc. and

she weighs only 7.65kg. She's not even on the chart for children

her age. Her length is fine, and her head cirumference too. But

since she turned 12 months old she has put on 10 grams!!! I'm so

worried about her. Her ribs are showing through, there's barely any

muscle on her limbs, she's just so thin.

She cannot walk, nor crawl. All she can do is commando crawl and

only started doing this at around 12 months old.

So far we are not progressing very far with the diet. I THINK

carrots are a problem as her BM's were quite orange when we first

started the diet - although she WAS having a lot of carrots (she

wouldn't eat the chicken or anything else unless there were carrots

with it). She didn't have diarrhea or anything, just formed, orange

stools.

Anyway then we introduced stewed apple - had horrible smelling

stools which stunk like rancid apple cider. So i cancelled them

out. Then tried bananas - again horrible, horrible stools. Not

quite diarrhea but very mushy and acidy with pieces of undigested

banana. So i cancelled them out too.

Anyway at the moment we've also crossed off zucchini but SEEM to

have had success with stewed pears, butternut pumpkin and green

beans. The only reason I think these things are working is because

we haven't had diarrhea (although BM's can sometimes smell pretty

bad still). BUT - my problem is that I'm TERRIBLE at figuring out

the other signs and symptoms of a bad reaction to a food. I keep

looking for red lips and ears Ear pulling, runny nose etc. etc.

But she's had a cold on and off for what seems like the last month

and over the last two days she's been in and out of the emergency

room with a terrible viral infection!!!!! Her sister has had a

similar bout of sicknesses so do I assume this is the diet causing

these viruses or is it just " going around " ????????? She's really

quite sick at the moment (sore ears, raging fever, vomiting etc.)

and its SO hard to guage whether or not she's tolerating a new food!!

My other question that I have is in regards to fats and SCD.

Because Jess is so underweight I'm really worried that she's never

going to learn to crawl/walk if she doesn't develop some muscle

mass. I'm at the moment introducing avocado in the hopes this will

first be tolerated and then hopefully she can put some weight on.

And I've been adding more oil to her meals.

Can ANYBODY who has been/still is on SCD with a child so young

PLEASE tell me about their experience???

I've already asked this question three or four times to other groups

but I just can't seem to get the answers I'm looking for....

I'm sorry this is such an incredibly long post, at the moment I'm

pretty stressed and frustrated and worried sick so I really thank

anybody who has taken the time to read it all!

Also she started Methyl B12 shots around 3 weeks ago and has been on

some of the Kirkmans supplements (Super Nu-Thera Liquid 12.5mg P5P,

calcium with vitamin D powder and pure cod liver oil).

Thankyou in advance,

Mum to Jess-ASD

---------------------------------

8:00? 8:25? 8:40? Find a flick in no time

with theYahoo! Search movie showtime shortcut.

[Guest guest]

my son was diagnosed at 14 months old, and in the beginning of the

diet he was extremely thin with ribs showing. His low muscle tone

all over his body plus his sensory integration problems with his

mouth made eating very difficult for both of us.

Many, many days the only thing he would/could eat was the goat

yogurt blended with his supplements and a little cooked fruit or

honey plus acidophilus in the blender. Sometimes I added a raw egg

into the blender. He is almost 3 years old now and is about average

weight. Eating is still an issue but it's gotten much better.

I would say just experiment with the yogurt in the blender.

Sometimes I'd even put in some chicken. sometimes a teaspoon of

peanut butter or a tiny sliver of avocado. Bone marrow went in there

too sometimes and maybe a piece of vegetable. He had a difficult

time with cod liver oil so I had to stop it. Maybe I'll try it

again in another few months.

try not to stress too much if he's not eating solid food. The

blended drinks kept my son going for a long time.

good luck to you.

mom to broderick, asd, scd 20 months.

> Hi everybody I'm new to this group although am a member

of

> biomedicalautism group and autismdiet group.

> is 15 months old and has been doing SCD for around 4

weeks.

> Before that she was GFCF for around 4 months with huge improvement

> at the start and then regression.

> Although her paediatrician was reluctant to give a formal

diagnosis

> (at 10 months) her biomed doctor believes she has mild autism.

> At the moment I just don't seem to know what I'm doing. My main

> concern is her weight. I've just had her weighed, measured etc.

and

> she weighs only 7.65kg. She's not even on the chart for children

> her age. Her length is fine, and her head cirumference too. But

> since she turned 12 months old she has put on 10 grams!!! I'm so

> worried about her. Her ribs are showing through, there's barely

any

> muscle on her limbs, she's just so thin.

> She cannot walk, nor crawl. All she can do is commando crawl and

> only started doing this at around 12 months old.

> So far we are not progressing very far with the diet. I THINK

> carrots are a problem as her BM's were quite orange when we first

> started the diet - although she WAS having a lot of carrots (she

> wouldn't eat the chicken or anything else unless there were

carrots

> with it). She didn't have diarrhea or anything, just formed,

orange

> stools.

> Anyway then we introduced stewed apple - had horrible smelling

> stools which stunk like rancid apple cider. So i cancelled them

> out. Then tried bananas - again horrible, horrible stools. Not

> quite diarrhea but very mushy and acidy with pieces of undigested

> banana. So i cancelled them out too.

> Anyway at the moment we've also crossed off zucchini but SEEM to

> have had success with stewed pears, butternut pumpkin and green

> beans. The only reason I think these things are working is because

> we haven't had diarrhea (although BM's can sometimes smell pretty

> bad still). BUT - my problem is that I'm TERRIBLE at figuring out

> the other signs and symptoms of a bad reaction to a food. I keep

> looking for red lips and ears Ear pulling, runny nose etc. etc.

> But she's had a cold on and off for what seems like the last month

> and over the last two days she's been in and out of the emergency

> room with a terrible viral infection!!!!! Her sister has had a

> similar bout of sicknesses so do I assume this is the diet causing

> these viruses or is it just " going around " ????????? She's really

> quite sick at the moment (sore ears, raging fever, vomiting etc.)

> and its SO hard to guage whether or not she's tolerating a new

food!!

> My other question that I have is in regards to fats and SCD.

> Because Jess is so underweight I'm really worried that she's never

> going to learn to crawl/walk if she doesn't develop some muscle

> mass. I'm at the moment introducing avocado in the hopes this will

> first be tolerated and then hopefully she can put some weight on.

> And I've been adding more oil to her meals.

> Can ANYBODY who has been/still is on SCD with a child so young

> PLEASE tell me about their experience???

> I've already asked this question three or four times to other

groups

> but I just can't seem to get the answers I'm looking for....

> I'm sorry this is such an incredibly long post, at the moment I'm

> pretty stressed and frustrated and worried sick so I really thank

> anybody who has taken the time to read it all!

> Also she started Methyl B12 shots around 3 weeks ago and has been

on

> some of the Kirkmans supplements (Super Nu-Thera Liquid 12.5mg

P5P,

> calcium with vitamin D powder and pure cod liver oil).

>

> Thankyou in advance,

>

> Mum to Jess-ASD

>

>

>

>

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with theYahoo! Search movie showtime shortcut.

>

>

[Guest guest]

Welcome ,

<<... Also she started Methyl B12 shots around 3 weeks ago and has been

on > some of the Kirkmans supplements (Super Nu-Thera Liquid 12.5mg

P5P, > calcium with vitamin D powder and pure cod liver oil). >>

Is she on any probiotics? Have you considerd trying the goat yogurt?

Sheila, SCD Feb. 2001, UC 23 yrs

mom of and

[Guest guest]

Hello

I think you are doing things right. The reason you are not receiving many

answers to your last question is that only a few kids are diagnosed early and I

think your daughter is very lucky to be in the group. SCD is the appropiate diet

for kids in the spectrum so don't worry, I think is just a matter of time and

patience... just try to observe her behavior and not only her BMS. SCD is

helping her to " clean " her body from all the bad stuff and that's a process that

has ups and downs, but at the end she'll be fine.Just go one step at a time.

The most important thing to do now is to help her with her infection and once

that is under control, you can focus a little more on the food. I see you just

started the CLO and I think that's going to help her fight the infection.

Since your daughter seems not to have major GI problems (but we never know for

sure), maybe you could use a little more fat in her diet, maybe use avocado or

more meats... some one else can help you on this one.

I hope this helps a little. Blessings,

Ximena

sarahellerbock <no_reply > wrote:

Hi everybody I'm new to this group although am a member of

biomedicalautism group and autismdiet group.

is 15 months old and has been doing SCD for around 4 weeks.

Before that she was GFCF for around 4 months with huge improvement

at the start and then regression.

Although her paediatrician was reluctant to give a formal diagnosis

(at 10 months) her biomed doctor believes she has mild autism.

At the moment I just don't seem to know what I'm doing. My main

concern is her weight. I've just had her weighed, measured etc. and

she weighs only 7.65kg. She's not even on the chart for children

her age. Her length is fine, and her head cirumference too. But

since she turned 12 months old she has put on 10 grams!!! I'm so

worried about her. Her ribs are showing through, there's barely any

muscle on her limbs, she's just so thin.

She cannot walk, nor crawl. All she can do is commando crawl and

only started doing this at around 12 months old.

So far we are not progressing very far with the diet. I THINK

carrots are a problem as her BM's were quite orange when we first

started the diet - although she WAS having a lot of carrots (she

wouldn't eat the chicken or anything else unless there were carrots

with it). She didn't have diarrhea or anything, just formed, orange

stools.

Anyway then we introduced stewed apple - had horrible smelling

stools which stunk like rancid apple cider. So i cancelled them

out. Then tried bananas - again horrible, horrible stools. Not

quite diarrhea but very mushy and acidy with pieces of undigested

banana. So i cancelled them out too.

Anyway at the moment we've also crossed off zucchini but SEEM to

have had success with stewed pears, butternut pumpkin and green

beans. The only reason I think these things are working is because

we haven't had diarrhea (although BM's can sometimes smell pretty

bad still). BUT - my problem is that I'm TERRIBLE at figuring out

the other signs and symptoms of a bad reaction to a food. I keep

looking for red lips and ears Ear pulling, runny nose etc. etc.

But she's had a cold on and off for what seems like the last month

and over the last two days she's been in and out of the emergency

room with a terrible viral infection!!!!! Her sister has had a

similar bout of sicknesses so do I assume this is the diet causing

these viruses or is it just " going around " ????????? She's really

quite sick at the moment (sore ears, raging fever, vomiting etc.)

and its SO hard to guage whether or not she's tolerating a new food!!

My other question that I have is in regards to fats and SCD.

Because Jess is so underweight I'm really worried that she's never

going to learn to crawl/walk if she doesn't develop some muscle

mass. I'm at the moment introducing avocado in the hopes this will

first be tolerated and then hopefully she can put some weight on.

And I've been adding more oil to her meals.

Can ANYBODY who has been/still is on SCD with a child so young

PLEASE tell me about their experience???

I've already asked this question three or four times to other groups

but I just can't seem to get the answers I'm looking for....

I'm sorry this is such an incredibly long post, at the moment I'm

pretty stressed and frustrated and worried sick so I really thank

anybody who has taken the time to read it all!

Also she started Methyl B12 shots around 3 weeks ago and has been on

some of the Kirkmans supplements (Super Nu-Thera Liquid 12.5mg P5P,

calcium with vitamin D powder and pure cod liver oil).

Thankyou in advance,

Mum to Jess-ASD

---------------------------------

Pinpoint customers who are looking for what you sell.

[Guest guest]

--- Hi ,

I'm quite new to SCD too, so I can't answer your questions in that

regard. However, if this puts your mind at ease, my daughter at the

age of 18 months only weighed 7.12kg. She did not sit up

independently until she was 10 months old. She has a rare condition

which makes her hypotonic (low muscle tone) and she was

very " floppy " . I can remember thinking that she would never walk,

and was very anxious. She also has a visual impairment so I worried

how that would impact on her wanting to walk when she couldn't see

clearly. However, she began walking at 22 months . She still

struggles with her weight, but I have stopped worrying so much as one

day, as her gut function improves, I am sure this will cease to be an

issue. I am sooo glad to have found this group, and I take heart at

reading other parents success with SCD. I am hoping things improve

for your daughter, and hopefully, a list moderator will get back to

you to offer advice and support. I know this is so hard, but try not

to worry, you are trying to do the best you can for your daughter,

and the people here will support you in any way they can.

Regards

Glynis mam to Jasmine 7 yrs old

Diagnosed with Kabuki Syndrome

NG tube fed.

In pecanbread , " lipawe " wrote:

>

> my son was diagnosed at 14 months old, and in the beginning of the

> diet he was extremely thin with ribs showing. His low muscle tone

> all over his body plus his sensory integration problems with his

> mouth made eating very difficult for both of us.

>

> Many, many days the only thing he would/could eat was the goat

> yogurt blended with his supplements and a little cooked fruit or

> honey plus acidophilus in the blender. Sometimes I added a raw egg

> into the blender. He is almost 3 years old now and is about

average

> weight. Eating is still an issue but it's gotten much better.

>

> I would say just experiment with the yogurt in the blender.

> Sometimes I'd even put in some chicken. sometimes a teaspoon of

> peanut butter or a tiny sliver of avocado. Bone marrow went in

there

> too sometimes and maybe a piece of vegetable. He had a difficult

> time with cod liver oil so I had to stop it. Maybe I'll try it

> again in another few months.

>

> try not to stress too much if he's not eating solid food. The

> blended drinks kept my son going for a long time.

>

> good luck to you.

>

>

> mom to broderick, asd, scd 20 months.

>

> > Hi everybody I'm new to this group although am a member

> of

> > biomedicalautism group and autismdiet group.

> > is 15 months old and has been doing SCD for around 4

> weeks.

> > Before that she was GFCF for around 4 months with huge

improvement

> > at the start and then regression.

> > Although her paediatrician was reluctant to give a formal

> diagnosis

> > (at 10 months) her biomed doctor believes she has mild autism.

> > At the moment I just don't seem to know what I'm doing. My main

> > concern is her weight. I've just had her weighed, measured etc.

> and

> > she weighs only 7.65kg. She's not even on the chart for children

> > her age. Her length is fine, and her head cirumference too. But

> > since she turned 12 months old she has put on 10 grams!!! I'm so

> > worried about her. Her ribs are showing through, there's barely

> any

> > muscle on her limbs, she's just so thin.

> > She cannot walk, nor crawl. All she can do is commando crawl and

> > only started doing this at around 12 months old.

> > So far we are not progressing very far with the diet. I THINK

> > carrots are a problem as her BM's were quite orange when we first

> > started the diet - although she WAS having a lot of carrots (she

> > wouldn't eat the chicken or anything else unless there were

> carrots

> > with it). She didn't have diarrhea or anything, just formed,

> orange

> > stools.

> > Anyway then we introduced stewed apple - had horrible smelling

> > stools which stunk like rancid apple cider. So i cancelled them

> > out. Then tried bananas - again horrible, horrible stools. Not

> > quite diarrhea but very mushy and acidy with pieces of undigested

> > banana. So i cancelled them out too.

> > Anyway at the moment we've also crossed off zucchini but SEEM to

> > have had success with stewed pears, butternut pumpkin and green

> > beans. The only reason I think these things are working is

because

> > we haven't had diarrhea (although BM's can sometimes smell pretty

> > bad still). BUT - my problem is that I'm TERRIBLE at figuring out

> > the other signs and symptoms of a bad reaction to a food. I keep

> > looking for red lips and ears Ear pulling, runny nose etc. etc.

> > But she's had a cold on and off for what seems like the last

month

> > and over the last two days she's been in and out of the emergency

> > room with a terrible viral infection!!!!! Her sister has had a

> > similar bout of sicknesses so do I assume this is the diet

causing

> > these viruses or is it just " going around " ????????? She's really

> > quite sick at the moment (sore ears, raging fever, vomiting etc.)

> > and its SO hard to guage whether or not she's tolerating a new

> food!!

> > My other question that I have is in regards to fats and SCD.

> > Because Jess is so underweight I'm really worried that she's

never

> > going to learn to crawl/walk if she doesn't develop some muscle

> > mass. I'm at the moment introducing avocado in the hopes this

will

> > first be tolerated and then hopefully she can put some weight on.

> > And I've been adding more oil to her meals.

> > Can ANYBODY who has been/still is on SCD with a child so young

> > PLEASE tell me about their experience???

> > I've already asked this question three or four times to other

> groups

> > but I just can't seem to get the answers I'm looking for....

> > I'm sorry this is such an incredibly long post, at the moment I'm

> > pretty stressed and frustrated and worried sick so I really thank

> > anybody who has taken the time to read it all!

> > Also she started Methyl B12 shots around 3 weeks ago and has been

> on

> > some of the Kirkmans supplements (Super Nu-Thera Liquid 12.5mg

> P5P,

> > calcium with vitamin D powder and pure cod liver oil).

> >

> > Thankyou in advance,

> >

> > Mum to Jess-ASD

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with theYahoo! Search movie showtime shortcut.

> >

> >

[Guest guest]

>

> Thankyou to everybody who replied. It has helped to ease my mind

a little. At the moment she's not on any probiotics so i would

really like to try the goat yoghurt. I gave avocados a whirl over

the last two days but we've had pretty restless sleep, grumpy

grizzling with a little rash on her neck and total diarrhea. So i

assume thats a bad reaction????? I'm VERY disappointed as i was

really hoping she'd go okay on these. I'm fairly sure she has a

problem with salicylates. Every food i try that contains

salicylates doesn't get tolerated. I have started adding olive oil

to each meal but olives contain salicylates too so not sure if these

will cause a problem.... Is there a better oil thats low in

salicylates that she'll tolerate??

She eats so much food already. A basic breakfast consists of 2

scrambled eggs, 50 - 100 grams of chicken (minced or chopped), plus

about 1/4 cup of stewed pears with 1 tablespoon of olive oil mixed

in. It makes a huge bowl of food which she never has trouble

finishing and is on many occasions looking for more. Lunch and

Dinner are somewhat the same except no eggs, and i put 1/2 cup of

pumpkin in with green beans and some lamb or beef mince (again with

olive oil). She's also gotten into the habit of waking around

10:30pm (she goes to bed at 7:30) for another meal. So i feed her

at that time too. She doesn't have THAT many or very large BM's

considering the amount of food she eats (except in the case of

yesterday when she has had a bad reaction to something) so i assume

the food she's eating is getting absorbed - but why doesnt she put

on weight????? I'm just so confused.

Also what is the best yoghurt maker to buy? I'm going to order the

pro-gurt pretty soon, they have a yoghurt maker on their website,

would this be okay?? Is there a better one to find? I live in

Australia....

Thanks again,

Hello

> I think you are doing things right. The reason you are not

receiving many answers to your last question is that only a few kids

are diagnosed early and I think your daughter is very lucky to be in

the group. SCD is the appropiate diet for kids in the spectrum so

don't worry, I think is just a matter of time and patience... just

try to observe her behavior and not only her BMS. SCD is helping her

to " clean " her body from all the bad stuff and that's a process that

has ups and downs, but at the end she'll be fine.Just go one step at

a time.

> The most important thing to do now is to help her with her

infection and once that is under control, you can focus a little

more on the food. I see you just started the CLO and I think that's

going to help her fight the infection.

>

> Since your daughter seems not to have major GI problems (but we

never know for sure), maybe you could use a little more fat in her

diet, maybe use avocado or more meats... some one else can help you

on this one.

>

> I hope this helps a little. Blessings,

>

> Ximena

>

>

> >

>

>

>

>

>

> ---------------------------------

> Pinpoint customers who are looking for what you sell.

>

>

[Guest guest]

I " m just wondering if she's hungry hungry hungry because she needs more legal

carbohydrates to balance out all the protein? I think if you don't have enough

carbs, you burn the protein for energy. Kids seem to need a lot of carbs.

However, I'm no expert, just the mother of two kids. As I mentioned before, my

son was very underweight at that age, off the charts, and now is fine, in fact a

bit overweight and is the right height.

Good luck and hang in there, it will get easier.

sarahellerbock <no_reply > wrote:

>

> Thankyou to everybody who replied. It has helped to ease my mind

a little. At the moment she's not on any probiotics so i would

really like to try the goat yoghurt. I gave avocados a whirl over

the last two days but we've had pretty restless sleep, grumpy

grizzling with a little rash on her neck and total diarrhea. So i

assume thats a bad reaction????? I'm VERY disappointed as i was

really hoping she'd go okay on these. I'm fairly sure she has a

problem with salicylates. Every food i try that contains

salicylates doesn't get tolerated. I have started adding olive oil

to each meal but olives contain salicylates too so not sure if these

will cause a problem.... Is there a better oil thats low in

salicylates that she'll tolerate??

She eats so much food already. A basic breakfast consists of 2

scrambled eggs, 50 - 100 grams of chicken (minced or chopped), plus

about 1/4 cup of stewed pears with 1 tablespoon of olive oil mixed

in. It makes a huge bowl of food which she never has trouble

finishing and is on many occasions looking for more. Lunch and

Dinner are somewhat the same except no eggs, and i put 1/2 cup of

pumpkin in with green beans and some lamb or beef mince (again with

olive oil). She's also gotten into the habit of waking around

10:30pm (she goes to bed at 7:30) for another meal. So i feed her

at that time too. She doesn't have THAT many or very large BM's

considering the amount of food she eats (except in the case of

yesterday when she has had a bad reaction to something) so i assume

the food she's eating is getting absorbed - but why doesnt she put

on weight????? I'm just so confused.

Also what is the best yoghurt maker to buy? I'm going to order the

pro-gurt pretty soon, they have a yoghurt maker on their website,

would this be okay?? Is there a better one to find? I live in

Australia....

Thanks again,

Hello

> I think you are doing things right. The reason you are not

receiving many answers to your last question is that only a few kids

are diagnosed early and I think your daughter is very lucky to be in

the group. SCD is the appropiate diet for kids in the spectrum so

don't worry, I think is just a matter of time and patience... just

try to observe her behavior and not only her BMS. SCD is helping her

to " clean " her body from all the bad stuff and that's a process that

has ups and downs, but at the end she'll be fine.Just go one step at

a time.

> The most important thing to do now is to help her with her

infection and once that is under control, you can focus a little

more on the food. I see you just started the CLO and I think that's

going to help her fight the infection.

>

> Since your daughter seems not to have major GI problems (but we

never know for sure), maybe you could use a little more fat in her

diet, maybe use avocado or more meats... some one else can help you

on this one.

>

> I hope this helps a little. Blessings,

>

> Ximena

>

>

> >

>

>

>

>

>

> ---------------------------------

> Pinpoint customers who are looking for what you sell.

>

>

[Guest guest]

Hi ,

<<I " m just wondering if she's hungry hungry hungry because she needs

more legal carbohydrates to balance out all the protein? I think if

you don't have enough carbs, you burn the protein for energy...

Good luck and hang in there, it will get easier.

> >>

<< >> She doesn't have THAT many or very large BM's

> considering the amount of food she eats (except in the case of

> yesterday when she has had a bad reaction to something) so i

assume

> the food she's eating is getting absorbed - but why doesnt she put

> on weight????? I'm just so confused. >>

I think makes a good point that she needs to get adequate

calories (legal carbs) - it will help with the appetite.

Once people start the diet they often have increased

appetites for a few reasons:

-they don't feel sick anymore and actually get their appetite back

-their body is switching from rumen type digestion to actual human

digestion

-their body is healing (which will burn extra calories)

- and the big one we have noticed on the children's list is that

they start catching up in growth. Many have reported huge growth

spurts. Their body is able to continue normal growth patterns now

that it is absorbing nutrients whereas preSCD many have reported

their kids were at the lower percentiles for weight and height.

It may take a while for her to " stabilize " with the healing process

and start putting some of the good food energy into weight gain.

This happened to me when I started the diet. I was very underweight

and actually lost a little weight when I started the diet. The big

differenece was that I didn't feel sick any longer. After a few

weeks of " dedicated eating I started to put weight back on. I ate

smaller, more frequent meals rather than three large meals.

Sheila, SCD Feb. 2001, UC 23 yrs

mom of Em and Dan

[Guest guest]

I agree with Sheila that when kids are catching up on missed growth, they need

to eat much more than you would expect for their size. (I couldn't get my

email program to cut and paste what Sheila wrote.) When my son was underweight,

the doctors told me that when he started catching up, he would need to eat as if

he was at the higher weight, that is, he would need to eat as many calories as a

much larger child. Overall, it seems like a good sign, doesn't it?

---------------------------------

Need a vacation? Get great deals to amazing places on Yahoo! Travel.

[Guest guest]

Thankyou and Shiela for your help. It all definately makes

sense to me, I'm just now wondering how I'm going to be able to

provide more legal carbs? I've already tried her with banana and she

didn't seem to tolerate those. Avocados gave her terrible diarrhea

and now I fear because of the avocado I'm going to have to go back and

start everything over because she's suddenly stopped tolerating her

pumpkin and green beans!! Everything seemed fine with those before

and now they're coming out undigested..... She has trouble with

salicylates I think, everything I try with salicylates doesn't get

tolerated.

I can keep introducing more and more types of veggies low in

salicylates but I don't see how they're going to help put weight on

her?

I'm very confused.

[Guest guest]

Sheila is the expert, and I am certainly not, but what about honey as an

additional carb source? I make a sauce for my son's chicken and beef with

honey. (I add ginger and garlic, which he loves, but I'm not recommending that

for a little one. It can also be mixed with pureed fruit for a really nice

sauce before cooking the meat or chicken.) Could it also be added to other

things she can tolerate... eggs? A kind of custard made with whatever she

tolerates? What about legal fruit juices diluted with water? Those have carbs

too. I should really stay out of this though and see what Sheila says.

Good luck with it,

sarahellerbock <no_reply > wrote:

Thankyou and Shiela for your help. It all definately makes

sense to me, I'm just now wondering how I'm going to be able to

provide more legal carbs? I've already tried her with banana and she

didn't seem to tolerate those. Avocados gave her terrible diarrhea

and now I fear because of the avocado I'm going to have to go back and

start everything over because she's suddenly stopped tolerating her

pumpkin and green beans!! Everything seemed fine with those before

and now they're coming out undigested..... She has trouble with

salicylates I think, everything I try with salicylates doesn't get

tolerated.

I can keep introducing more and more types of veggies low in

salicylates but I don't see how they're going to help put weight on

her?

I'm very confused.

---------------------------------

Luggage? GPS? Comic books?

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[Guest guest]

Hello,

My son doesn't have a weight problem but he becomes extremely hostile

if he gets salicylates. No Fenol didn't work for us. We have been on

SCD for 3.5 months now and just this week he has been able to

tolerate pecan butter, beets, banana and carrots. For the past 3

months he only could tolerate in terms of BM and behavior acorn

squash. We would have acorn squash and chicken, acorn squash and

ground meat, I got very creative with acorn squash. Sometimes I

would just mash one up and add a raw egg, a little honey and a very,

very little cinamon. He loved it. It tastes like pumpkin pie. I

also made " cookies " with acorn squash, chicken, homemade mayo and

blended it together and placed them just like cookie doe on a cookie

sheet and baked for about 30 minutes. I use Canola oil even though

it is not recomended. It is legal but not recomended. It is the

only oil my son does not have a reaction to. I also made acorn

squash muffins...these are interesting.

My son was fine eating only acorn squash and a lot of it. I did

worry when his feet turned orange:) but that was ok too. I thought I

was going to lose my mind with worry about him the first 2 months

because he could not eat anything. I have found that fruits still

cause him to have D so I have just given up on them until he heals

some more. The banana I have just introduced was in some pecan

butter muffins so I don't know if he could tolerate it raw.

I hope your dear daughter feels better and I can assure you that she

will eventually tolerate more foods. Just take it easy and give her

a lot of what she can tolerate.

I hope this has helped

, mother to Benito, 3.5 yo, ASD, SCD since Feb 14, 2007

]

> Thankyou and Shiela for your help. It all

definately makes

> sense to me, I'm just now wondering how I'm going to be able to

> provide more legal carbs? I've already tried her with banana and

she

> didn't seem to tolerate those. Avocados gave her terrible diarrhea

> and now I fear because of the avocado I'm going to have to go back

and

> start everything over because she's suddenly stopped tolerating her

> pumpkin and green beans!! Everything seemed fine with those before

> and now they're coming out undigested..... She has trouble with

> salicylates I think, everything I try with salicylates doesn't get

> tolerated.

> I can keep introducing more and more types of veggies low in

> salicylates but I don't see how they're going to help put weight on

> her?

> I'm very confused.

>

>

>

>

>

>

> ---------------------------------

> Luggage? GPS? Comic books?

> Check out fitting gifts for grads at Yahoo! Search.

>

>

[Guest guest]

Hi ,

<< Thankyou and Shiela for your help. It all definately makes

> sense to me, I'm just now wondering how I'm going to be able to

> provide more legal carbs? I've already tried her with banana and she

> didn't seem to tolerate those. Avocados gave her terrible diarrhea

> and now I fear because of the avocado I'm going to have to go back

and

> start everything over because she's suddenly stopped tolerating her

> pumpkin and green beans!!>>

If she still isn't tolerating her usual variety it might speed things

up if you do the intro for a day or two.

<< Everything seemed fine with those before

> and now they're coming out undigested..... She has trouble with

> salicylates I think, everything I try with salicylates doesn't get

> tolerated.

> I can keep introducing more and more types of veggies low in

> salicylates but I don't see how they're going to help put weight on

> her? >>

It may take a while before her body is healed enough to start putting

on weight. It can be done without lots of fruits but you will probably

be feeding her more food and a lot of the same foods. It may seem

boring and repetitive but if she doesn't tolerate a food (that's high

in calories)it will slow down her healing.

If you think she has a problem with salicylates here is a post about

legal honey that's low in salicylates:

http://health.groups.yahoo.com/group/pecanbread/message/66482

Sheila, SCD, Feb. 2001, UC 23 yrs

mom of and