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I FEEL AWFUL

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Hi patty,

Sounds like typical withdrawal symptoms to me, keep the fluids up, a little

OTC analgesic like motrin or aspirn might help. Remember, " Easy does it " and

" one day at a time " knowing that those days will end up as better days.

Might help going to a " meeting " , how long has it been?

Best wishes, Poncho - GA

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Hi Patty,

The power in a room can and will help you through the day. There may not be

many in your area, but I'll bet there are 1 or two a week. As you know, you

would be welcome.

Best wishes, Poncho - GA

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Hi Guys

Well I'm down to 30mg oxycontin bid. I am 2 weeks S/p thorascopic splenic nerve

division. I'm not having any pain but I think the symptoms of coming off this

stuff is making me feel bad. I am tingly all over, hot, stomach cramps,

diarrhea, and can' sit still. HOW LONG WILL THIS LAST!!!!Tomorrow I go down to

20mg bid and then on Wed to 10mg bid and then stop. I have to say that the

surgery did work but this feeling SUCKS!!

Sincerly,

Patty Duley,

Office Coordinator

L. Doering, MD

Louisville Oncology

3991 Dutchmans Lane, Suite 405

Louisville, KY 40207

(502)899-3366 ext. 142

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I haven't been to AA in several years. Matter of fact it was before I had my

panc attack. somewhere around 2001. I have thought about going but just

haven't done it. I have started taking ibuprofen for my back ache and it does

help. I can't wait to get past this and start living a normal life again. I

keep wondering how long it will be before I have another panc attack.

Thanks Poncho

Sincerly,

Patty Duley,

Office Coordinator

L. Doering, MD

Louisville Oncology

3991 Dutchmans Lane, Suite 405

Louisville, KY 40207

(502)899-3366 ext. 142

.jensen@... <

mailto:.jensen@...>

This message is confidential, intended only for the named recipient(s) and may

contain information that is privileged or exempt from disclosure under

applicable law. Any patient health information must be delivered immediately to

intended recipient(s). If you are not the intended recipient(s), you are

notified that the dissemination, distribution or copying of this message is

strictly prohibited. If you receive this message in error, or are not the named

recipient(s), please notify the sender at either the e-mail address or telephone

number above and discard this e-mail. Thank you.

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Hi Patty,

I may be wrong, but I thought the whole idea behind tapering

your medicines was so that the patient avoided or minimized to

the extreme, signs and symptoms of withdrawal.

It is my understanding that if the taper schedule is done correctly,

that the symptoms you are describing do not occur to such an

extent that it makes you feel this ill. I have been told that if

symptoms like this occur, to up the meds until they are gone and

then start tapering again, but more slowly. The recommended

schedule is 10% decrease every few days to a week, something

like that, I think. I am only mentioning this for you to consider

asking your doctor about changing the way you are tapering.

Maybe this is the way your doc wants it, but from what I have

learned, it seems like you are going through a hardship that may

not have been intended by your physician.

In addition, there are medication that can be taken while you are

tapering that can counter-act the withdrawal symptoms. I believe

that these medications address the muscle soreness, the

sleeplessness and the nausea / vomitting / diarrhea, among

others. It just seems to me that you are undergoing a very harsh

" clean-out " and are suffering more than you should be (Ideally

you shouldn't be suffering at all).

Laurie

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Patty,

after 3 months of being on Phenergan for nausea whilst I was

hospitalized, my body became dependent on it. I stopped it cold

turkey, as I didn't have a script for it and didn't know and wasn't

told that was a possibility. I was crawling out of my skin,

restless, nausea, pain and couldn't sleep for 5 days. I was so

tired, but all I could do at night was rest my body as best I could.

I'd shut my eyes, but nothing...I think I slept a total of 2 hours,

in 20 minute blocks over that 5 days.

I went and saw my oncologist who prescribed me a strong sleeping

pill, and I got 5 hours sleep. That short sleep was the equivalent

to a 10 hour sleep for me that night...after that I gradually got

back to normal. But I find now that every time I have Phenergan when

hospitalized, for nausea, more than 2 or 3 shots and those symptoms

kick in, as soon as it hits my vein...I try different nausea meds

when I can, but unfortunately, only 2 have worked well for me,

Anzamet and Phenergan. The Anzamet, the hospital I have my surgeries

at don't have it, so next time if there is a next time, I shall ask

them to order some in for me.

Regards,

Ward

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Hi Patty:

I've been there with the pain med reduction problem. Mine was cold turkey,

however. The doctor I was seeing and was happy with couldn't see me anymore

because his group, Aurora, didn't like my insurance. I had run up a big

bill unknowingly and so I was left to find a doctor who did accept United

Health Care.

I was on the duragesic patch and pills for break through and the scripts ran

out. I had the tingling like my extremities were burning and my joints were

aching and I didn't know why. I went to urgent care but they would not give

me the scripts and basically told me I would have to find a doctor within

the group there that would be my regular doctor and they would have to

prescribe something. Urgent Care basically told me I was going through the

withdrawal from the pain meds. That lasted the better part of two weeks.

I decided then that I would not even try to get back on the patches if this

was waiting for me around the corner, because in addition to the pain from

my pancreatitus, I now had to deal with the withdrawal, which was pure hell.

I am not sure it was the right decision, I went from some pain control to

little pain control. Right now the strongest thing I am taking is percecet

for break through pain. I've also gone from being more active to declining

outside activities because of the higher pain level. My attitude is now

more do what I have to do, and rest when I can.

My advice is to hang in there and try to get through the withdrawal, then

evaluate where you are so you can better judge whether it is better to be on

the serious narcotic pain control or to raise your tolerance.

Bob

Potter

bobpotter@...

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