Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 We are new to SCD -- just two weeks now -- and are interested to find out whether anyone has experienced what we have. My 4 year old son, who has PDD, started SCD two weeks ago today. Unfortunately, he also contracted a stomach virus the same day and did not eat -- literally not a morsel -- for a week. (We know it was a stomach virus because other kids and adults in our town have had the same thing). Since he started eating again, he has been eating an unbelievable amount of food, to the point of being disgusting. He has gone from not eating breakfast at all to asking for one and then another muffin and then (when a third was refused) asking for a hamburger. He had four small hamburgers for dinner last night, when he used to eat two. He has been sneaking into the freezer to get muffins, so that we now hide them in the basement. And he seems to constantly be hungry. (His poops, which only recently have been controlled by 6-MP, are still fine, except that he had 4 BMs yesterday). We are wondering if this is something others have seen when they are new to SCD -- and whether we should expect it to go back to normal any time soon. Also, two mornings this week, for the first time ever, he woke up completely dry (although he is mostly toilet trained during the day, he has always woken up with a full pullup. Could this be related to the diet? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 The extreme hunger is very commong. It's hard to say how long it can last...anywhere from a few days to a few months. Their littles bodies are healing, and growing so well now. I think they just need the nutrition that they hadn't been getting. Too many nut products such as the muffins can cause more or just lloser stools, so you might want to limit him to one of two nut flour goods per day. If he is so incredibly hungry, I'd encourage you to give him more of his tolerated veggies. I'm just saying that because they contain the most vitamin and mineral sources for him. Be careful not to over feed him the meats, cheese, yogurt, ect. Just make sure that itis a balanced diet even though it is an enormous amount of food. Meleah Excessive Eating and Dry at Night We are new to SCD -- just two weeks now -- and are interested to find out whether anyone has experienced what we have. My 4 year old son, who has PDD, started SCD two weeks ago today. Unfortunately, he also contracted a stomach virus the same day and did not eat -- literally not a morsel -- for a week. (We know it was a stomach virus because other kids and adults in our town have had the same thing). Since he started eating again, he has been eating an unbelievable amount of food, to the point of being disgusting. He has gone from not eating breakfast at all to asking for one and then another muffin and then (when a third was refused) asking for a hamburger. He had four small hamburgers for dinner last night, when he used to eat two. He has been sneaking into the freezer to get muffins, so that we now hide them in the basement. And he seems to constantly be hungry. (His poops, which only recently have been controlled by 6-MP, are still fine, except that he had 4 BMs yesterday). We are wondering if this is something others have seen when they are new to SCD -- and whether we should expect it to go back to normal any time soon. Also, two mornings this week, for the first time ever, he woke up completely dry (although he is mostly toilet trained during the day, he has always woken up with a full pullup. Could this be related to the diet? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 Hi Our three and a half year old twins with ASD have been on the diet for three weeks. Week one and week two they ate as though they had never had a bite to eat ever. It wasn't uncommon for them to sit and eat a whole chicken between them, twelve carrot egg muffin like things I made, three beef patties and down it all with four glasses of diluted juice. And that was all at one sitting! As week three has gone by, they have eaten much less food although they do have meals where they just can't get enough to eat. Just try to balance everything even if you have to puree the carrots and stick them in his beef patties. We made the mistake of not giving enough carbs and our one twins were taking 6 hour naps and were completely out of it for two days. BALANCE is important not the amount at this point. Stick to the diet. I can only say the progress my twins have made in one month is near miraculous. Giving them epsom salt baths help them get rid of the toxins. Take it slow and steady. I must say it is getting much easier. It is rough to watch their bodies adjust and detox but the noticeable progress is hopeful. All the best, Cindy robin wrote: > The extreme hunger is very commong. It's hard to say how long it can last...anywhere from a few days to a few months. Their littles bodies are healing, and growing so well now. I think they just need the nutrition that they hadn't been getting. Too many nut products such as the muffins can cause more or just lloser stools, so you might want to limit him to one of two nut flour goods per day. If he is so incredibly hungry, I'd encourage you to give him more of his tolerated veggies. I'm just saying tha > t because they contain the most vitamin and mineral sources for him. Be careful not to over feed him the meats, cheese, yogurt, ect. Just make sure that itis a balanced diet even though it is an enormous amount of food. > Meleah > Excessive Eating and Dry at Night > > > We are new to SCD -- just two weeks now -- and are interested to find > out whether anyone has experienced what we have. > > My 4 year old son, who has PDD, started SCD two weeks ago today. > Unfortunately, he also contracted a stomach virus the same day and > did not eat -- literally not a morsel -- for a week. (We know it was > a stomach virus because other kids and adults in our town have had > the same thing). Since he started eating again, he has been eating > an unbelievable amount of food, to the point of being disgusting. He > has gone from not eating breakfast at all to asking for one and then > another muffin and then (when a third was refused) asking for a > hamburger. He had four small hamburgers for dinner last night, when > he used to eat two. He has been sneaking into the freezer to get > muffins, so that we now hide them in the basement. And he seems to > constantly be hungry. (His poops, which only recently have been > controlled by 6-MP, are still fine, except that he had 4 BMs > yesterday). > > We are wondering if this is something others have seen when they are > new to SCD -- and whether we should expect it to go back to normal > any time soon. > > Also, two mornings this week, for the first time ever, he woke up > completely dry (although he is mostly toilet trained during the day, > he has always woken up with a full pullup. Could this be related to > the diet? > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 Hi Cindy, 's wife here (Elise). I'm dying to know what gains your twins have made on SCD. I guess I'm hoping some good stories will give us encouragement. We're not really sure we're seeing much of anything, but I'd love to hear about your little guys (girls?). I'm also interested in knowing whether you have a recipe for the carrot egg muffins. My son is currently living on banana muffins and apple muffins made with almond flour, pancakes and waffles made with almond flour, " crackers " made out of cashews (I swear the odor almost makes me physically ill, but my son likes them for some reason) and then the usual proteins and fruits (chicken, hamburgers, turkey, strawberries, apples, grapes, an occasional pear - don't even get me started on the oxalate issue). The only vegetable he'll eat is cucumber, which of course has the fewest nutrients of any veggie on the planet! If he sees a carrot, he gags (sensory issues). I am concerned about the amount of protein he is eating (I have now read in numerous places that it is not the best source of energy for people with autoimmunity), but we've got a long way to go in the vegetable department. Anyway, we're happy to hear you're seeing results and hope to have the opportunity to hear more about how your kids are doing. Thanks. Sincerely, Elise > > The extreme hunger is very commong. It's hard to say how long it can last...anywhere from a few days to a few months. Their littles bodies are healing, and growing so well now. I think they just need the nutrition that they hadn't been getting. Too many nut products such as the muffins can cause more or just lloser stools, so you might want to limit him to one of two nut flour goods per day. If he is so incredibly hungry, I'd encourage you to give him more of his tolerated veggies. I'm just saying tha > > t because they contain the most vitamin and mineral sources for him. Be careful not to over feed him the meats, cheese, yogurt, ect. Just make sure that itis a balanced diet even though it is an enormous amount of food. > > Meleah > > Excessive Eating and Dry at Night > > > > > > We are new to SCD -- just two weeks now -- and are interested to find > > out whether anyone has experienced what we have. > > > > My 4 year old son, who has PDD, started SCD two weeks ago today. > > Unfortunately, he also contracted a stomach virus the same day and > > did not eat -- literally not a morsel -- for a week. (We know it was > > a stomach virus because other kids and adults in our town have had > > the same thing). Since he started eating again, he has been eating > > an unbelievable amount of food, to the point of being disgusting. He > > has gone from not eating breakfast at all to asking for one and then > > another muffin and then (when a third was refused) asking for a > > hamburger. He had four small hamburgers for dinner last night, when > > he used to eat two. He has been sneaking into the freezer to get > > muffins, so that we now hide them in the basement. And he seems to > > constantly be hungry. (His poops, which only recently have been > > controlled by 6-MP, are still fine, except that he had 4 BMs > > yesterday). > > > > We are wondering if this is something others have seen when they are > > new to SCD -- and whether we should expect it to go back to normal > > any time soon. > > > > Also, two mornings this week, for the first time ever, he woke up > > completely dry (although he is mostly toilet trained during the day, > > he has always woken up with a full pullup. Could this be related to > > the diet? > > > > Thanks, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 I have had enormous success with veggie popscicles. My son would not touch any veggies with a ten foot pole. We started out doing squash/pear/coconut oil which are pretty darn tasty believe it or not. Then it evolved and evolved more and more. Since my son does NOT chew, popscicles have become his main staple. He also eats meat (but not more than one serving in a day) eggs (but not daily), and fruits of course. He has gained 4 pounds in two months and I didn't measure, but judging from how I'm not having to roll his pants legs up as much, he's grown at least an inch. This is on a mostly veggie diet. Just to give an idea of where we are at now - we have 2 varieties of popscicles, orange ones and green ones. The orange are the yummiest. They are squash, peaches, coconut milk and stewed prunes for sweetness but you could use honey for that if prunes are too much for you. The green ones started out doing spinach / avocado / grape juice and those pretty much tasted like grape juice. Now we do a spinach / apple / banana one that's really good and does not taste like spinach, but here are the heavy duty ones. (they are going to make you gag as you read, but honestly, they aren't that bad, kind of an orange juice gone wild flavor) green bean, cauliflower, pea, cucumber, zucchini, red pepper, avocado, stewed dates, and orange juice. I've even made them with bone broth. Anyway, I know it sounds totally crazy, but my son lives on them and I just thought I'd try to give you an idea of what you can do with veggies and a freezer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Elise, How long has your son been on SCD? Cashew nuts or cashew flour is a very advanced food as cashews are the starchiest of the nut family. Peanut and cashew products should be reserved for many months down the road of healing. I'd say that Sheila or Mimi would say at least six months after being strictly SCD before trying them. We've had our son on SCD for 13 months now, and are just venturing back in to the world of peanutbutter(SCD legal, of course). I tried peanutbutter shortly in to SCD...probably about six to eight weeks in...and is caused problems that I didn't even connect. Fortunately, one of the veterans on the list caught the possible intolerance. When I dropped the peanutbutter, the issue went away. Also, are all of his fruits pealed, seeded, and well cooked? What about the berries? Are you straining them after cooking to remove those little seeds? These are all things that I see as potential hold ups. Have you tried mixing his cooked veggies into his hamburger patty? Also, just because you're not seeing miraculous progress right away doesn't mean that healing isn't happening. Our son's progress has been slow and steady over the course of the past year. Very rarely has he made a big jump forward, but he is a completely different child than one year ago. It is evident to all of our friends and family. Meleah Excessive Eating and Dry at Night > > > > > > We are new to SCD -- just two weeks now -- and are interested to find > > out whether anyone has experienced what we have. > > > > My 4 year old son, who has PDD, started SCD two weeks ago today. > > Unfortunately, he also contracted a stomach virus the same day and > > did not eat -- literally not a morsel -- for a week. (We know it was > > a stomach virus because other kids and adults in our town have had > > the same thing). Since he started eating again, he has been eating > > an unbelievable amount of food, to the point of being disgusting. He > > has gone from not eating breakfast at all to asking for one and then > > another muffin and then (when a third was refused) asking for a > > hamburger. He had four small hamburgers for dinner last night, when > > he used to eat two. He has been sneaking into the freezer to get > > muffins, so that we now hide them in the basement. And he seems to > > constantly be hungry. (His poops, which only recently have been > > controlled by 6-MP, are still fine, except that he had 4 BMs > > yesterday). > > > > We are wondering if this is something others have seen when they are > > new to SCD -- and whether we should expect it to go back to normal > > any time soon. > > > > Also, two mornings this week, for the first time ever, he woke up > > completely dry (although he is mostly toilet trained during the day, > > he has always woken up with a full pullup. Could this be related to > > the diet? > > > > Thanks, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Is there an exact recipe? My daughter isn't on SCD (I am for CD), but I have enormous trouble getting her to eat vegetables. When I read this I was very excited to try it, but how much of each thing do you use? > > I have had enormous success with veggie popscicles. My son would > not touch any veggies with a ten foot pole. We started out doing > squash/pear/coconut oil which are pretty darn tasty believe it or > not. Then it evolved and evolved more and more. Since my son does > NOT chew, popscicles have become his main staple. He also eats meat > (but not more than one serving in a day) eggs (but not daily), and > fruits of course. He has gained 4 pounds in two months and I didn't > measure, but judging from how I'm not having to roll his pants legs > up as much, he's grown at least an inch. This is on a mostly veggie > diet. > > Just to give an idea of where we are at now - we have 2 varieties of > popscicles, orange ones and green ones. The orange are the > yummiest. They are squash, peaches, coconut milk and stewed prunes > for sweetness but you could use honey for that if prunes are too > much for you. The green ones started out doing spinach / avocado / > grape juice and those pretty much tasted like grape juice. Now we > do a spinach / apple / banana one that's really good and does not > taste like spinach, but here are the heavy duty ones. (they are > going to make you gag as you read, but honestly, they aren't that > bad, kind of an orange juice gone wild flavor) green bean, > cauliflower, pea, cucumber, zucchini, red pepper, avocado, stewed > dates, and orange juice. I've even made them with bone broth. > Anyway, I know it sounds totally crazy, but my son lives on them and > I just thought I'd try to give you an idea of what you can do with > veggies and a freezer. > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.