Fliss

[Guest guest]

I meant to respond to you and got sidetracked and spacey! But I did

read your posts to me and I did read that you have put your possible

total pancreatectomy on hold and involved in a cancer early warning

study of some sort. I think that is a good idea. I can say that if

you don't have to have your panc. hacked out you probably should

avoid it because there is no certainity in how things will go. I have

my doubts about the efficacy of my surgery though I still think it

was the only choice I really had. I am improving I just get set back

mostly by diabetes control issues. But I think I just have to be more

aggressive, use more insulin (a pump may be in my future)and things

will work themselves out. Then there is the issue of pain, which has

thankfully changed to something less pervasive. I still get flare ups

though and probably will for life but I no longer require heavy,

constant medication and go weeks without pain meds sometimes, have

never required more than 5 days of constant medication to squelch a

flare up. It just is tough because having moved away from where I had

my TP I am subject to a lot of misunderstandings and poor ER

treatment when I do have a flare up. You know people that doubt that

I really had a TP and think I have had a partial, and other doctors

that think I am just drug seeking.

Anyhow wanted to say thanks for your kind words, and that I hope your

CP is controlled and that you can avoid a TP.

Blessings,

Bert