Re : Hereditary pancreatitis

[Guest guest]

Hi Tim,

I'm so sorry you have a daughter with this disease.

I have been dignosed with HP. I had my first bad attack at the age of

5 and am now 59! I had bad attacks once or twice a year throughout my

childhood, adolescence and younger adulthood. Fierce abdominal pain

and in the back but no other symptoms. I had no diagnosis.

In my 30's I began having symptoms of malabsorption, lower abdominal

pain, weight loss, terrible diarrhoea etc. etc.

I was diagnosed as having coeliac disease in 1988, and I do have that

condition, but two years ago I got my final diagnosis of advanced

pancreatitis following a CT scan which showed calcifications

throughout the pancreas and atrophy. I am not yet diabetic but

expected to be so soon.

My current regime of Creon, low fat and no alcohol has certainly

helped my symptoms. My mother also had pancreatitis.

I do wish you success with treatment for your daughter. It is always

especially distressing to see your child ill.

Happy to talk at any time,

Fliss (UK)