Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Please help! Gas became much worse when I gave Amber pears. I thought pears were easy to digest (cooked and peeled) so I let her eat as many as she wanted. She had about 20 pears over the last 2 days and is now very bloated and slept poorly the last 2 nights. Could this be a fructose sensitivity? If so, do I have her on the wrong diet? Bananas did the same thing. Her gas is worse than before the diet. I don't think that gas could be caused by die-off since the bacteria have to be alive to produce gas. I'm about ready to throw in the towel and maybe try a low-fructose diet. Any advice would be welcome! Thanks Katy > > Please help! I started this diet for my daughter mostly to help control > her gas, and it is worse than ever! Could this be die-off? My > mother-in-law says that it is from eating too much of the same food in a day > (eg today she had almost 10 pears) but how can I help this when her choices > are so limited? Should I try introducing foods more quickly so she has more > variety? > > So far we have: > chicken breasts > carrots > pears > gelatin > 1-2 tsp Welch's 100% white grape juice mixed with > melatonin for sleep in a cellulose base > > I tried and eliminated bananas and eggs but I'm not so sure they were > causing the gas because it is still here. On the plus side, her stools are > more formed. > > Thanks so much > Katy > mom to Amber 2 yo -Magenis Syndrome, excessive gas and bloating > SCD 8 days > > > > > > > Katy, > > Welcome to the list, and I think you have found something really great > > for your daughter. I would absolutely pull those bananas out of her diet. > > Five bananas in a day is definitely too many, but the fact that the gas and > > bloating returned is a sign of intolerance. The lethargy that you saw on > > Sunday is a die off reaction. The harmful bacteria and yeast die off > > displays itself in many different ways because everyone is different. Some > > parents see increased irritability, stimming, nausia, lethargy, vomitting, > > constepation, diharea, ect. I would do the intro diet for two days again > > just to get her back to square one, and moving in the right direction. Also, > > you should stick to ground beef rather than steak for a little while just > > because the ground beef is easier for her to digest. I would introduce a new > > food every two to three days after that, and watch for symptoms. If her > > bloating or gas return, then I would pull that food out for a good while. We > > have noticed that some children have trouble with carrots, bananas, or > > apples. It appears that she did fine with the carrots, but not the bananas. > > If she has problems with the pealed, seeded, and cooked apples, you can try > > pears instead. Keep us posted. > > Meleah > > Help - Bananas causing gas > > > > Hello, > > > > My 2-year-old daughter Amber has a genetic disorder called -Magenis > > Syndrome. She is very social and is not considered autistic but she does > > bang her head when she gets upset. Sometimes she gets upset for no > > reason > > and often passes gas a few minutes later so I know that she has gas > > pain. > > She is generally under-sensitive to pain (doesn't cry when she scrapes > > her > > knee or gives blood) so the gas pain must be bad. > > > > Amber has had to be on Miralax for months at a time but usually her > > stools > > are loose. She has been off Miralax for several months now. Even with > > loose stools she only has a BM once every day or two so it's not > > diarrhea. > > She craves crackers, bread, and bananas. I heard about SCD and talked to > > a > > dietician about it who said that Amber has a hard time digesting carbs. > > She > > had never heard of SCD but said it would help Amber feel better. > > > > Before the diet Amber was not casein-free (she drank soy milk in her cup > > but > > I gave her cheese fairly often) so I thought I would try the regular > > cow's-milk version of SCD. I had her on the intro for two days. She ate > > some chicken pancakes and a pound of cooked carrots (not pureed) the > > first > > day. She didn't like the fruit-juice jello or fruit juice and doesn't > > usually like meat or eggs. She kept asking for crackers and bananas but > > was > > in a pretty good mood. The second day she wouldn't eat chicken pancakes > > but > > continued to ask for carrots at every snack and ate another pound that > > day. > > She was starting to get a little grouchy. > > > > The third day Amber slept in until 7:30 (usually she is up at 5:00) and > > was > > very lethargic. She wouldn't eat anything for breakfast but just looked > > at > > it and didn't ask for anything else. She fell asleep in church even > > though > > she is usually very alert in the mornings. I was worried that maybe she > > was > > needing carbs for energy so I decided that two days of the intro was > > enough > > and started her on ripe bananas. She perked right up and ate 5 bananas > > that > > day, and nothing else, except for half of a Dorito that she found. She > > wanted more bananas but I wouldn't let her have more than five. > > > > Now she has been having bananas for three days and is back to her old > > self > > -- also the gas has returned. While on the intro I didn't hear her pass > > gas > > and her bloated pot-belly went away. I didn't know she was bloated until > > it > > went away, I thought that was the natural shape of her belly. After > > starting bananas she began passing gas again and is bloated again. > > > > I guess she must be having a hard time with bananas and I will have to > > discontinue them. The problem is that I have since introduced cooked > > apples > > and cheddar cheese so I guess I will have to discontinue these as well > > since > > I wasn't able to see their effects. > > > > Here are my questions: Do I have to do the intro again, and for how > > long? > > Would one day be enough this time or should I do two or three again? It > > was > > scary when she was so lethargic and I thought she must be hungry. I was > > so > > relieved to see her eat bananas. What should I look out for when I give > > her > > a new food? Is a little gas normal or should I consider any gas to be a > > warning sign? At first I didn't discontinue the bananas because I > > thought a > > little gas was normal, but now it is pretty bad. So should I be > > concerned > > if she has even a little gas? That is a sign that the bacteria are > > fermenting her food, right? > > > > Is it okay to have cinnamon on the intro diet? I found that Amber likes > > the > > sneaky veggie pancakes made with carrots, but they have cinnamon and > > butter > > in them so are they intro foods? > > > > Here is what Amber is eating now: > > whole cooked baby carrots > > cooked apple slices > > ripe bananas > > chicken cupcakes (chicken, bananas, carrots, eggs) > > carrot pancakes (carrots, eggs, cinnamon, butter) > > cheddar cheese > > chicken pancakes (she had these at first but won't touch them now) > > one bite of beef hamburger > > one bite of steak but I don't think she swallowed it > > 1-2 tsp of Welch's 100% white grape juice that I mix her medicine in > > Amber takes melatonin for sleep, it is in a cellulose tablet > > > > Thank you so much for your help! > > Katy > > mom to Amber 2 years old -Magenis Syndrome > > SCD 6 days > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 It sounds like you are doing the intro diet too long & giving way too much fruit. When you hear that fruit and vegetables are good for you -- it's really the vegetables that are good and the fruit is a nice treat. Critics of the food pyramid who have suggested their own pyramid give examples of eating 9 servings of vegetables and 1 serving of fruit/day for optimum health. That's not written in stone anywhere, but it's something to think about. I know that if I ate 20 pears in 2 days or 5 bananas in one day, I would not feel well either. Why is she eating so much fruit? We had problems on the intro diet/stage 1 because my son turned out to have a chicken sensitivity. We instead rotated meat groups and kept it very simple otherwise. We did no fruit except for lemon juice in his yogurt. So our intro basically failed, stage 1 was rotated meats (5-day rotation) with simple vegetables (also rotated) and yogurt blended with avocado, honey and lemon juice. - Katy Tra wrote: Please help! Gas became much worse when I gave Amber pears. I thought pears were easy to digest (cooked and peeled) so I let her eat as many as she wanted. She had about 20 pears over the last 2 days and is now very bloated and slept poorly the last 2 nights. Could this be a fructose sensitivity? If so, do I have her on the wrong diet? Bananas did the same thing. Her gas is worse than before the diet. I don't think that gas could be caused by die-off since the bacteria have to be alive to produce gas. I'm about ready to throw in the towel and maybe try a low-fructose diet. Any advice would be welcome! Thanks Katy > > Please help! I started this diet for my daughter mostly to help control > her gas, and it is worse than ever! Could this be die-off? My > mother-in-law says that it is from eating too much of the same food in a day > (eg today she had almost 10 pears) but how can I help this when her choices > are so limited? Should I try introducing foods more quickly so she has more > variety? > > So far we have: > chicken breasts > carrots > pears > gelatin > 1-2 tsp Welch's 100% white grape juice mixed with > melatonin for sleep in a cellulose base > > I tried and eliminated bananas and eggs but I'm not so sure they were > causing the gas because it is still here. On the plus side, her stools are > more formed. > > Thanks so much > Katy > mom to Amber 2 yo -Magenis Syndrome, excessive gas and bloating > SCD 8 days > > > > > > > Katy, > > Welcome to the list, and I think you have found something really great > > for your daughter. I would absolutely pull those bananas out of her diet. > > Five bananas in a day is definitely too many, but the fact that the gas and > > bloating returned is a sign of intolerance. The lethargy that you saw on > > Sunday is a die off reaction. The harmful bacteria and yeast die off > > displays itself in many different ways because everyone is different. Some > > parents see increased irritability, stimming, nausia, lethargy, vomitting, > > constepation, diharea, ect. I would do the intro diet for two days again > > just to get her back to square one, and moving in the right direction. Also, > > you should stick to ground beef rather than steak for a little while just > > because the ground beef is easier for her to digest. I would introduce a new > > food every two to three days after that, and watch for symptoms. If her > > bloating or gas return, then I would pull that food out for a good while. We > > have noticed that some children have trouble with carrots, bananas, or > > apples. It appears that she did fine with the carrots, but not the bananas. > > If she has problems with the pealed, seeded, and cooked apples, you can try > > pears instead. Keep us posted. > > Meleah > > Help - Bananas causing gas > > > > Hello, > > > > My 2-year-old daughter Amber has a genetic disorder called -Magenis > > Syndrome. She is very social and is not considered autistic but she does > > bang her head when she gets upset. Sometimes she gets upset for no > > reason > > and often passes gas a few minutes later so I know that she has gas > > pain. > > She is generally under-sensitive to pain (doesn't cry when she scrapes > > her > > knee or gives blood) so the gas pain must be bad. > > > > Amber has had to be on Miralax for months at a time but usually her > > stools > > are loose. She has been off Miralax for several months now. Even with > > loose stools she only has a BM once every day or two so it's not > > diarrhea. > > She craves crackers, bread, and bananas. I heard about SCD and talked to > > a > > dietician about it who said that Amber has a hard time digesting carbs. > > She > > had never heard of SCD but said it would help Amber feel better. > > > > Before the diet Amber was not casein-free (she drank soy milk in her cup > > but > > I gave her cheese fairly often) so I thought I would try the regular > > cow's-milk version of SCD. I had her on the intro for two days. She ate > > some chicken pancakes and a pound of cooked carrots (not pureed) the > > first > > day. She didn't like the fruit-juice jello or fruit juice and doesn't > > usually like meat or eggs. She kept asking for crackers and bananas but > > was > > in a pretty good mood. The second day she wouldn't eat chicken pancakes > > but > > continued to ask for carrots at every snack and ate another pound that > > day. > > She was starting to get a little grouchy. > > > > The third day Amber slept in until 7:30 (usually she is up at 5:00) and > > was > > very lethargic. She wouldn't eat anything for breakfast but just looked > > at > > it and didn't ask for anything else. She fell asleep in church even > > though > > she is usually very alert in the mornings. I was worried that maybe she > > was > > needing carbs for energy so I decided that two days of the intro was > > enough > > and started her on ripe bananas. She perked right up and ate 5 bananas > > that > > day, and nothing else, except for half of a Dorito that she found. She > > wanted more bananas but I wouldn't let her have more than five. > > > > Now she has been having bananas for three days and is back to her old > > self > > -- also the gas has returned. While on the intro I didn't hear her pass > > gas > > and her bloated pot-belly went away. I didn't know she was bloated until > > it > > went away, I thought that was the natural shape of her belly. After > > starting bananas she began passing gas again and is bloated again. > > > > I guess she must be having a hard time with bananas and I will have to > > discontinue them. The problem is that I have since introduced cooked > > apples > > and cheddar cheese so I guess I will have to discontinue these as well > > since > > I wasn't able to see their effects. > > > > Here are my questions: Do I have to do the intro again, and for how > > long? > > Would one day be enough this time or should I do two or three again? It > > was > > scary when she was so lethargic and I thought she must be hungry. I was > > so > > relieved to see her eat bananas. What should I look out for when I give > > her > > a new food? Is a little gas normal or should I consider any gas to be a > > warning sign? At first I didn't discontinue the bananas because I > > thought a > > little gas was normal, but now it is pretty bad. So should I be > > concerned > > if she has even a little gas? That is a sign that the bacteria are > > fermenting her food, right? > > > > Is it okay to have cinnamon on the intro diet? I found that Amber likes > > the > > sneaky veggie pancakes made with carrots, but they have cinnamon and > > butter > > in them so are they intro foods? > > > > Here is what Amber is eating now: > > whole cooked baby carrots > > cooked apple slices > > ripe bananas > > chicken cupcakes (chicken, bananas, carrots, eggs) > > carrot pancakes (carrots, eggs, cinnamon, butter) > > cheddar cheese > > chicken pancakes (she had these at first but won't touch them now) > > one bite of beef hamburger > > one bite of steak but I don't think she swallowed it > > 1-2 tsp of Welch's 100% white grape juice that I mix her medicine in > > Amber takes melatonin for sleep, it is in a cellulose tablet > > > > Thank you so much for your help! > > Katy > > mom to Amber 2 years old -Magenis Syndrome > > SCD 6 days > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Thank you so much for your reply! I was basically letting my daughter eat as much as she wanted of any food that had been introduced. I was worried that otherwise she might not get enough calories. But today she has had no fruit and is eating plenty of chicken, green beans, and carrots. I'll try limiting her to one or two servings of fruit a day. Is there a limit to the amount of meat, eggs, dairy, or veggies that I can give her in a day? Thanks for the help. I am ready to stick with the diet a little longer. At least now I know for sure that Amber's diet affects her behavior! Katy mom to Amber, 2 years old, -Magenis Syndrome, excessive gas and bloating and behavior/sleep problems SCD 9 days > > It sounds like you are doing the intro diet too long & giving way too > much fruit. When you hear that fruit and vegetables are good for you -- it's > really the vegetables that are good and the fruit is a nice treat. Critics > of the food pyramid who have suggested their own pyramid give examples of > eating 9 servings of vegetables and 1 serving of fruit/day for optimum > health. That's not written in stone anywhere, but it's something to think > about. > > I know that if I ate 20 pears in 2 days or 5 bananas in one day, I would > not feel well either. Why is she eating so much fruit? > > We had problems on the intro diet/stage 1 because my son turned out to > have a chicken sensitivity. We instead rotated meat groups and kept it very > simple otherwise. We did no fruit except for lemon juice in his yogurt. So > our intro basically failed, stage 1 was rotated meats (5-day rotation) with > simple vegetables (also rotated) and yogurt blended with avocado, honey and > lemon juice. > > - > > Katy Tra <katytra@... <katytra%40gmail.com>> wrote: > Please help! Gas became much worse when I gave Amber pears. I thought > pears were easy to digest (cooked and peeled) so I let her eat as many as > she wanted. She had about 20 pears over the last 2 days and is now very > bloated and slept poorly the last 2 nights. Could this be a fructose > sensitivity? If so, do I have her on the wrong diet? Bananas did the same > thing. Her gas is worse than before the diet. I don't think that gas could > be caused by die-off since the bacteria have to be alive to produce gas. > I'm about ready to throw in the towel and maybe try a low-fructose diet. > > Any advice would be welcome! > Thanks > Katy > > On 6/2/07, Katy Tra <katytra@... <katytra%40gmail.com>> wrote: > > > > Please help! I started this diet for my daughter mostly to help control > > her gas, and it is worse than ever! Could this be die-off? My > > mother-in-law says that it is from eating too much of the same food in a > day > > (eg today she had almost 10 pears) but how can I help this when her > choices > > are so limited? Should I try introducing foods more quickly so she has > more > > variety? > > > > So far we have: > > chicken breasts > > carrots > > pears > > gelatin > > 1-2 tsp Welch's 100% white grape juice mixed with > > melatonin for sleep in a cellulose base > > > > I tried and eliminated bananas and eggs but I'm not so sure they were > > causing the gas because it is still here. On the plus side, her stools > are > > more formed. > > > > Thanks so much > > Katy > > mom to Amber 2 yo -Magenis Syndrome, excessive gas and bloating > > SCD 8 days > > > > > > On 5/30/07, robin <rmcorner@... <rmcorner%40bellsouth.net>> > wrote: > > > > > > Katy, > > > Welcome to the list, and I think you have found something really great > > > for your daughter. I would absolutely pull those bananas out of her > diet. > > > Five bananas in a day is definitely too many, but the fact that the > gas and > > > bloating returned is a sign of intolerance. The lethargy that you saw > on > > > Sunday is a die off reaction. The harmful bacteria and yeast die off > > > displays itself in many different ways because everyone is different. > Some > > > parents see increased irritability, stimming, nausia, lethargy, > vomitting, > > > constepation, diharea, ect. I would do the intro diet for two days > again > > > just to get her back to square one, and moving in the right direction. > Also, > > > you should stick to ground beef rather than steak for a little while > just > > > because the ground beef is easier for her to digest. I would introduce > a new > > > food every two to three days after that, and watch for symptoms. If > her > > > bloating or gas return, then I would pull that food out for a good > while. We > > > have noticed that some children have trouble with carrots, bananas, or > > > apples. It appears that she did fine with the carrots, but not the > bananas. > > > If she has problems with the pealed, seeded, and cooked apples, you > can try > > > pears instead. Keep us posted. > > > Meleah > > > Help - Bananas causing gas > > > > > > Hello, > > > > > > My 2-year-old daughter Amber has a genetic disorder called > -Magenis > > > Syndrome. She is very social and is not considered autistic but she > does > > > bang her head when she gets upset. Sometimes she gets upset for no > > > reason > > > and often passes gas a few minutes later so I know that she has gas > > > pain. > > > She is generally under-sensitive to pain (doesn't cry when she scrapes > > > her > > > knee or gives blood) so the gas pain must be bad. > > > > > > Amber has had to be on Miralax for months at a time but usually her > > > stools > > > are loose. She has been off Miralax for several months now. Even with > > > loose stools she only has a BM once every day or two so it's not > > > diarrhea. > > > She craves crackers, bread, and bananas. I heard about SCD and talked > to > > > a > > > dietician about it who said that Amber has a hard time digesting > carbs. > > > She > > > had never heard of SCD but said it would help Amber feel better. > > > > > > Before the diet Amber was not casein-free (she drank soy milk in her > cup > > > but > > > I gave her cheese fairly often) so I thought I would try the regular > > > cow's-milk version of SCD. I had her on the intro for two days. She > ate > > > some chicken pancakes and a pound of cooked carrots (not pureed) the > > > first > > > day. She didn't like the fruit-juice jello or fruit juice and doesn't > > > usually like meat or eggs. She kept asking for crackers and bananas > but > > > was > > > in a pretty good mood. The second day she wouldn't eat chicken > pancakes > > > but > > > continued to ask for carrots at every snack and ate another pound that > > > day. > > > She was starting to get a little grouchy. > > > > > > The third day Amber slept in until 7:30 (usually she is up at 5:00) > and > > > was > > > very lethargic. She wouldn't eat anything for breakfast but just > looked > > > at > > > it and didn't ask for anything else. She fell asleep in church even > > > though > > > she is usually very alert in the mornings. I was worried that maybe > she > > > was > > > needing carbs for energy so I decided that two days of the intro was > > > enough > > > and started her on ripe bananas. She perked right up and ate 5 bananas > > > that > > > day, and nothing else, except for half of a Dorito that she found. She > > > wanted more bananas but I wouldn't let her have more than five. > > > > > > Now she has been having bananas for three days and is back to her old > > > self > > > -- also the gas has returned. While on the intro I didn't hear her > pass > > > gas > > > and her bloated pot-belly went away. I didn't know she was bloated > until > > > it > > > went away, I thought that was the natural shape of her belly. After > > > starting bananas she began passing gas again and is bloated again. > > > > > > I guess she must be having a hard time with bananas and I will have to > > > discontinue them. The problem is that I have since introduced cooked > > > apples > > > and cheddar cheese so I guess I will have to discontinue these as well > > > since > > > I wasn't able to see their effects. > > > > > > Here are my questions: Do I have to do the intro again, and for how > > > long? > > > Would one day be enough this time or should I do two or three again? > It > > > was > > > scary when she was so lethargic and I thought she must be hungry. I > was > > > so > > > relieved to see her eat bananas. What should I look out for when I > give > > > her > > > a new food? Is a little gas normal or should I consider any gas to be > a > > > warning sign? At first I didn't discontinue the bananas because I > > > thought a > > > little gas was normal, but now it is pretty bad. So should I be > > > concerned > > > if she has even a little gas? That is a sign that the bacteria are > > > fermenting her food, right? > > > > > > Is it okay to have cinnamon on the intro diet? I found that Amber > likes > > > the > > > sneaky veggie pancakes made with carrots, but they have cinnamon and > > > butter > > > in them so are they intro foods? > > > > > > Here is what Amber is eating now: > > > whole cooked baby carrots > > > cooked apple slices > > > ripe bananas > > > chicken cupcakes (chicken, bananas, carrots, eggs) > > > carrot pancakes (carrots, eggs, cinnamon, butter) > > > cheddar cheese > > > chicken pancakes (she had these at first but won't touch them now) > > > one bite of beef hamburger > > > one bite of steak but I don't think she swallowed it > > > 1-2 tsp of Welch's 100% white grape juice that I mix her medicine in > > > Amber takes melatonin for sleep, it is in a cellulose tablet > > > > > > Thank you so much for your help! > > > Katy > > > mom to Amber 2 years old -Magenis Syndrome > > > SCD 6 days > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Unfortunately, none of this is laid out anywhere in SCD to my knowledge and this could vary from person to person. Always aim for balance and perhaps keep in mind that most growing kids need a little more protein and fat than adults. My son and I work with a nutritional counselor in addition to SCD. She ran many tests on both of us and found that my son would do best on more protein and fats, no fruit and she was thrilled that we were doing goat yogurt for him. She also wanted him to have cheese. She said he had a somewhat typical chemistry of most kids (he burns/metabolizes things quickly), so she wanted us to avoid fast burning sources of energy (sugars, fruits, complex carbs). For my chemistry, she recommended no dairy, some fruit and lean meats, less fats (I'm used to eating my son's left overs so I had to adjust my diet more than his!). It's helped us, so maybe these guidelines will help you since she said my son needed what kids typically need. Don't give up on the diet yet. We spun our wheels for 4 months, but have now refined what my son needs. For others it clicks right away. The wheel spinning for us was not a waste by any means, it was a learning process. It sounds like you are a bit anxious over the dietary changes. Is your daughter difficult to work with in terms of feeding (making you crazy?!). I can relate to that if that is the case. It makes things doubly hard. - Katy Tra wrote: Thank you so much for your reply! I was basically letting my daughter eat as much as she wanted of any food that had been introduced. I was worried that otherwise she might not get enough calories. But today she has had no fruit and is eating plenty of chicken, green beans, and carrots. I'll try limiting her to one or two servings of fruit a day. Is there a limit to the amount of meat, eggs, dairy, or veggies that I can give her in a day? Thanks for the help. I am ready to stick with the diet a little longer. At least now I know for sure that Amber's diet affects her behavior! Katy mom to Amber, 2 years old, -Magenis Syndrome, excessive gas and bloating and behavior/sleep problems SCD 9 days > > It sounds like you are doing the intro diet too long & giving way too > much fruit. When you hear that fruit and vegetables are good for you -- it's > really the vegetables that are good and the fruit is a nice treat. Critics > of the food pyramid who have suggested their own pyramid give examples of > eating 9 servings of vegetables and 1 serving of fruit/day for optimum > health. That's not written in stone anywhere, but it's something to think > about. > > I know that if I ate 20 pears in 2 days or 5 bananas in one day, I would > not feel well either. Why is she eating so much fruit? > > We had problems on the intro diet/stage 1 because my son turned out to > have a chicken sensitivity. We instead rotated meat groups and kept it very > simple otherwise. We did no fruit except for lemon juice in his yogurt. So > our intro basically failed, stage 1 was rotated meats (5-day rotation) with > simple vegetables (also rotated) and yogurt blended with avocado, honey and > lemon juice. > > - > > Katy Tra <katytra@... <katytra%40gmail.com>> wrote: > Please help! Gas became much worse when I gave Amber pears. I thought > pears were easy to digest (cooked and peeled) so I let her eat as many as > she wanted. She had about 20 pears over the last 2 days and is now very > bloated and slept poorly the last 2 nights. Could this be a fructose > sensitivity? If so, do I have her on the wrong diet? Bananas did the same > thing. Her gas is worse than before the diet. I don't think that gas could > be caused by die-off since the bacteria have to be alive to produce gas. > I'm about ready to throw in the towel and maybe try a low-fructose diet. > > Any advice would be welcome! > Thanks > Katy > > On 6/2/07, Katy Tra <katytra@... <katytra%40gmail.com>> wrote: > > > > Please help! I started this diet for my daughter mostly to help control > > her gas, and it is worse than ever! Could this be die-off? My > > mother-in-law says that it is from eating too much of the same food in a > day > > (eg today she had almost 10 pears) but how can I help this when her > choices > > are so limited? Should I try introducing foods more quickly so she has > more > > variety? > > > > So far we have: > > chicken breasts > > carrots > > pears > > gelatin > > 1-2 tsp Welch's 100% white grape juice mixed with > > melatonin for sleep in a cellulose base > > > > I tried and eliminated bananas and eggs but I'm not so sure they were > > causing the gas because it is still here. On the plus side, her stools > are > > more formed. > > > > Thanks so much > > Katy > > mom to Amber 2 yo -Magenis Syndrome, excessive gas and bloating > > SCD 8 days > > > > > > On 5/30/07, robin <rmcorner@... <rmcorner%40bellsouth.net>> > wrote: > > > > > > Katy, > > > Welcome to the list, and I think you have found something really great > > > for your daughter. I would absolutely pull those bananas out of her > diet. > > > Five bananas in a day is definitely too many, but the fact that the > gas and > > > bloating returned is a sign of intolerance. The lethargy that you saw > on > > > Sunday is a die off reaction. The harmful bacteria and yeast die off > > > displays itself in many different ways because everyone is different. > Some > > > parents see increased irritability, stimming, nausia, lethargy, > vomitting, > > > constepation, diharea, ect. I would do the intro diet for two days > again > > > just to get her back to square one, and moving in the right direction. > Also, > > > you should stick to ground beef rather than steak for a little while > just > > > because the ground beef is easier for her to digest. I would introduce > a new > > > food every two to three days after that, and watch for symptoms. If > her > > > bloating or gas return, then I would pull that food out for a good > while. We > > > have noticed that some children have trouble with carrots, bananas, or > > > apples. It appears that she did fine with the carrots, but not the > bananas. > > > If she has problems with the pealed, seeded, and cooked apples, you > can try > > > pears instead. Keep us posted. > > > Meleah > > > Help - Bananas causing gas > > > > > > Hello, > > > > > > My 2-year-old daughter Amber has a genetic disorder called > -Magenis > > > Syndrome. She is very social and is not considered autistic but she > does > > > bang her head when she gets upset. Sometimes she gets upset for no > > > reason > > > and often passes gas a few minutes later so I know that she has gas > > > pain. > > > She is generally under-sensitive to pain (doesn't cry when she scrapes > > > her > > > knee or gives blood) so the gas pain must be bad. > > > > > > Amber has had to be on Miralax for months at a time but usually her > > > stools > > > are loose. She has been off Miralax for several months now. Even with > > > loose stools she only has a BM once every day or two so it's not > > > diarrhea. > > > She craves crackers, bread, and bananas. I heard about SCD and talked > to > > > a > > > dietician about it who said that Amber has a hard time digesting > carbs. > > > She > > > had never heard of SCD but said it would help Amber feel better. > > > > > > Before the diet Amber was not casein-free (she drank soy milk in her > cup > > > but > > > I gave her cheese fairly often) so I thought I would try the regular > > > cow's-milk version of SCD. I had her on the intro for two days. She > ate > > > some chicken pancakes and a pound of cooked carrots (not pureed) the > > > first > > > day. She didn't like the fruit-juice jello or fruit juice and doesn't > > > usually like meat or eggs. She kept asking for crackers and bananas > but > > > was > > > in a pretty good mood. The second day she wouldn't eat chicken > pancakes > > > but > > > continued to ask for carrots at every snack and ate another pound that > > > day. > > > She was starting to get a little grouchy. > > > > > > The third day Amber slept in until 7:30 (usually she is up at 5:00) > and > > > was > > > very lethargic. She wouldn't eat anything for breakfast but just > looked > > > at > > > it and didn't ask for anything else. She fell asleep in church even > > > though > > > she is usually very alert in the mornings. I was worried that maybe > she > > > was > > > needing carbs for energy so I decided that two days of the intro was > > > enough > > > and started her on ripe bananas. She perked right up and ate 5 bananas > > > that > > > day, and nothing else, except for half of a Dorito that she found. She > > > wanted more bananas but I wouldn't let her have more than five. > > > > > > Now she has been having bananas for three days and is back to her old > > > self > > > -- also the gas has returned. While on the intro I didn't hear her > pass > > > gas > > > and her bloated pot-belly went away. I didn't know she was bloated > until > > > it > > > went away, I thought that was the natural shape of her belly. After > > > starting bananas she began passing gas again and is bloated again. > > > > > > I guess she must be having a hard time with bananas and I will have to > > > discontinue them. The problem is that I have since introduced cooked > > > apples > > > and cheddar cheese so I guess I will have to discontinue these as well > > > since > > > I wasn't able to see their effects. > > > > > > Here are my questions: Do I have to do the intro again, and for how > > > long? > > > Would one day be enough this time or should I do two or three again? > It > > > was > > > scary when she was so lethargic and I thought she must be hungry. I > was > > > so > > > relieved to see her eat bananas. What should I look out for when I > give > > > her > > > a new food? Is a little gas normal or should I consider any gas to be > a > > > warning sign? At first I didn't discontinue the bananas because I > > > thought a > > > little gas was normal, but now it is pretty bad. So should I be > > > concerned > > > if she has even a little gas? That is a sign that the bacteria are > > > fermenting her food, right? > > > > > > Is it okay to have cinnamon on the intro diet? I found that Amber > likes > > > the > > > sneaky veggie pancakes made with carrots, but they have cinnamon and > > > butter > > > in them so are they intro foods? > > > > > > Here is what Amber is eating now: > > > whole cooked baby carrots > > > cooked apple slices > > > ripe bananas > > > chicken cupcakes (chicken, bananas, carrots, eggs) > > > carrot pancakes (carrots, eggs, cinnamon, butter) > > > cheddar cheese > > > chicken pancakes (she had these at first but won't touch them now) > > > one bite of beef hamburger > > > one bite of steak but I don't think she swallowed it > > > 1-2 tsp of Welch's 100% white grape juice that I mix her medicine in > > > Amber takes melatonin for sleep, it is in a cellulose tablet > > > > > > Thank you so much for your help! > > > Katy > > > mom to Amber 2 years old -Magenis Syndrome > > > SCD 6 days > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Hi Katy, An afterthought to my post... My friend's daughter was thought to have SMS, so I remember reading about it a year ago, but I went back and refreshed my memory. Since hypercholesterolemia/hypertriglyceridemia and constipation is often a characteristic, I would request that your doctor assign a dietician to help you work out the balance aspect of her diet. Your child might have an altogether different metabolism. My son has a few mixed-dx's, so we take advantage of the hospital's dietician and also a private nutritionist as well to help us fine-tune my son's diet. I have found this to be invaluable. - Katy Tra wrote: Thank you so much for your reply! I was basically letting my daughter eat as much as she wanted of any food that had been introduced. I was worried that otherwise she might not get enough calories. But today she has had no fruit and is eating plenty of chicken, green beans, and carrots. I'll try limiting her to one or two servings of fruit a day. Is there a limit to the amount of meat, eggs, dairy, or veggies that I can give her in a day? Thanks for the help. I am ready to stick with the diet a little longer. At least now I know for sure that Amber's diet affects her behavior! Katy mom to Amber, 2 years old, -Magenis Syndrome, excessive gas and bloating and behavior/sleep problems SCD 9 days > > It sounds like you are doing the intro diet too long & giving way too > much fruit. When you hear that fruit and vegetables are good for you -- it's > really the vegetables that are good and the fruit is a nice treat. Critics > of the food pyramid who have suggested their own pyramid give examples of > eating 9 servings of vegetables and 1 serving of fruit/day for optimum > health. That's not written in stone anywhere, but it's something to think > about. > > I know that if I ate 20 pears in 2 days or 5 bananas in one day, I would > not feel well either. Why is she eating so much fruit? > > We had problems on the intro diet/stage 1 because my son turned out to > have a chicken sensitivity. We instead rotated meat groups and kept it very > simple otherwise. We did no fruit except for lemon juice in his yogurt. So > our intro basically failed, stage 1 was rotated meats (5-day rotation) with > simple vegetables (also rotated) and yogurt blended with avocado, honey and > lemon juice. > > - > > Katy Tra <katytra@... <katytra%40gmail.com>> wrote: > Please help! Gas became much worse when I gave Amber pears. I thought > pears were easy to digest (cooked and peeled) so I let her eat as many as > she wanted. She had about 20 pears over the last 2 days and is now very > bloated and slept poorly the last 2 nights. Could this be a fructose > sensitivity? If so, do I have her on the wrong diet? Bananas did the same > thing. Her gas is worse than before the diet. I don't think that gas could > be caused by die-off since the bacteria have to be alive to produce gas. > I'm about ready to throw in the towel and maybe try a low-fructose diet. > > Any advice would be welcome! > Thanks > Katy > > On 6/2/07, Katy Tra <katytra@... <katytra%40gmail.com>> wrote: > > > > Please help! I started this diet for my daughter mostly to help control > > her gas, and it is worse than ever! Could this be die-off? My > > mother-in-law says that it is from eating too much of the same food in a > day > > (eg today she had almost 10 pears) but how can I help this when her > choices > > are so limited? Should I try introducing foods more quickly so she has > more > > variety? > > > > So far we have: > > chicken breasts > > carrots > > pears > > gelatin > > 1-2 tsp Welch's 100% white grape juice mixed with > > melatonin for sleep in a cellulose base > > > > I tried and eliminated bananas and eggs but I'm not so sure they were > > causing the gas because it is still here. On the plus side, her stools > are > > more formed. > > > > Thanks so much > > Katy > > mom to Amber 2 yo -Magenis Syndrome, excessive gas and bloating > > SCD 8 days > > > > > > On 5/30/07, robin <rmcorner@... <rmcorner%40bellsouth.net>> > wrote: > > > > > > Katy, > > > Welcome to the list, and I think you have found something really great > > > for your daughter. I would absolutely pull those bananas out of her > diet. > > > Five bananas in a day is definitely too many, but the fact that the > gas and > > > bloating returned is a sign of intolerance. The lethargy that you saw > on > > > Sunday is a die off reaction. The harmful bacteria and yeast die off > > > displays itself in many different ways because everyone is different. > Some > > > parents see increased irritability, stimming, nausia, lethargy, > vomitting, > > > constepation, diharea, ect. I would do the intro diet for two days > again > > > just to get her back to square one, and moving in the right direction. > Also, > > > you should stick to ground beef rather than steak for a little while > just > > > because the ground beef is easier for her to digest. I would introduce > a new > > > food every two to three days after that, and watch for symptoms. If > her > > > bloating or gas return, then I would pull that food out for a good > while. We > > > have noticed that some children have trouble with carrots, bananas, or > > > apples. It appears that she did fine with the carrots, but not the > bananas. > > > If she has problems with the pealed, seeded, and cooked apples, you > can try > > > pears instead. Keep us posted. > > > Meleah > > > Help - Bananas causing gas > > > > > > Hello, > > > > > > My 2-year-old daughter Amber has a genetic disorder called > -Magenis > > > Syndrome. She is very social and is not considered autistic but she > does > > > bang her head when she gets upset. Sometimes she gets upset for no > > > reason > > > and often passes gas a few minutes later so I know that she has gas > > > pain. > > > She is generally under-sensitive to pain (doesn't cry when she scrapes > > > her > > > knee or gives blood) so the gas pain must be bad. > > > > > > Amber has had to be on Miralax for months at a time but usually her > > > stools > > > are loose. She has been off Miralax for several months now. Even with > > > loose stools she only has a BM once every day or two so it's not > > > diarrhea. > > > She craves crackers, bread, and bananas. I heard about SCD and talked > to > > > a > > > dietician about it who said that Amber has a hard time digesting > carbs. > > > She > > > had never heard of SCD but said it would help Amber feel better. > > > > > > Before the diet Amber was not casein-free (she drank soy milk in her > cup > > > but > > > I gave her cheese fairly often) so I thought I would try the regular > > > cow's-milk version of SCD. I had her on the intro for two days. She > ate > > > some chicken pancakes and a pound of cooked carrots (not pureed) the > > > first > > > day. She didn't like the fruit-juice jello or fruit juice and doesn't > > > usually like meat or eggs. She kept asking for crackers and bananas > but > > > was > > > in a pretty good mood. The second day she wouldn't eat chicken > pancakes > > > but > > > continued to ask for carrots at every snack and ate another pound that > > > day. > > > She was starting to get a little grouchy. > > > > > > The third day Amber slept in until 7:30 (usually she is up at 5:00) > and > > > was > > > very lethargic. She wouldn't eat anything for breakfast but just > looked > > > at > > > it and didn't ask for anything else. She fell asleep in church even > > > though > > > she is usually very alert in the mornings. I was worried that maybe > she > > > was > > > needing carbs for energy so I decided that two days of the intro was > > > enough > > > and started her on ripe bananas. She perked right up and ate 5 bananas > > > that > > > day, and nothing else, except for half of a Dorito that she found. She > > > wanted more bananas but I wouldn't let her have more than five. > > > > > > Now she has been having bananas for three days and is back to her old > > > self > > > -- also the gas has returned. While on the intro I didn't hear her > pass > > > gas > > > and her bloated pot-belly went away. I didn't know she was bloated > until > > > it > > > went away, I thought that was the natural shape of her belly. After > > > starting bananas she began passing gas again and is bloated again. > > > > > > I guess she must be having a hard time with bananas and I will have to > > > discontinue them. The problem is that I have since introduced cooked > > > apples > > > and cheddar cheese so I guess I will have to discontinue these as well > > > since > > > I wasn't able to see their effects. > > > > > > Here are my questions: Do I have to do the intro again, and for how > > > long? > > > Would one day be enough this time or should I do two or three again? > It > > > was > > > scary when she was so lethargic and I thought she must be hungry. I > was > > > so > > > relieved to see her eat bananas. What should I look out for when I > give > > > her > > > a new food? Is a little gas normal or should I consider any gas to be > a > > > warning sign? At first I didn't discontinue the bananas because I > > > thought a > > > little gas was normal, but now it is pretty bad. So should I be > > > concerned > > > if she has even a little gas? That is a sign that the bacteria are > > > fermenting her food, right? > > > > > > Is it okay to have cinnamon on the intro diet? I found that Amber > likes > > > the > > > sneaky veggie pancakes made with carrots, but they have cinnamon and > > > butter > > > in them so are they intro foods? > > > > > > Here is what Amber is eating now: > > > whole cooked baby carrots > > > cooked apple slices > > > ripe bananas > > > chicken cupcakes (chicken, bananas, carrots, eggs) > > > carrot pancakes (carrots, eggs, cinnamon, butter) > > > cheddar cheese > > > chicken pancakes (she had these at first but won't touch them now) > > > one bite of beef hamburger > > > one bite of steak but I don't think she swallowed it > > > 1-2 tsp of Welch's 100% white grape juice that I mix her medicine in > > > Amber takes melatonin for sleep, it is in a cellulose tablet > > > > > > Thank you so much for your help! > > > Katy > > > mom to Amber 2 years old -Magenis Syndrome > > > SCD 6 days > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 , Thanks so much for all of your help. Amber's cholesterol and triglycerides are fine, but she has had periods of constipation. Usually her stools are loose (but only once every day or two) and I didn't realize until recently that that wasn't normal for a 2-year-old. I can't believe that you have even heard of SMS! I did talk with a dietician before starting the diet and plan to call her again tomorrow to set up another appointment. She had never heard of SCD but agreed that it would help Amber. Maybe she can recommend some additional tests. After the first couple of days, it hasn't been a struggle to get Amber to eat the SCD food -- I can even eat other food in front of her now. But she has been crying/tantruming more and having more sleep problems, mostly because of the gas which actually became worse on the diet. I can see now that I was letting her overload on fruit. Hopefully she'll do better with limited fruit. Thanks again, Katy > > Unfortunately, none of this is laid out anywhere in SCD to my knowledge > and this could vary from person to person. Always aim for balance and > perhaps keep in mind that most growing kids need a little more protein and > fat than adults. My son and I work with a nutritional counselor in addition > to SCD. She ran many tests on both of us and found that my son would do best > on more protein and fats, no fruit and she was thrilled that we were doing > goat yogurt for him. She also wanted him to have cheese. She said he had a > somewhat typical chemistry of most kids (he burns/metabolizes things > quickly), so she wanted us to avoid fast burning sources of energy (sugars, > fruits, complex carbs). For my chemistry, she recommended no dairy, some > fruit and lean meats, less fats (I'm used to eating my son's left overs so I > had to adjust my diet more than his!). > > It's helped us, so maybe these guidelines will help you since she said my > son needed what kids typically need. > > Don't give up on the diet yet. We spun our wheels for 4 months, but have > now refined what my son needs. For others it clicks right away. The wheel > spinning for us was not a waste by any means, it was a learning process. > > It sounds like you are a bit anxious over the dietary changes. Is your > daughter difficult to work with in terms of feeding (making you crazy?!). I > can relate to that if that is the case. It makes things doubly hard. > > - > > > Katy Tra <katytra@... <katytra%40gmail.com>> wrote: > Thank you so much for your reply! I was basically letting my daughter eat > as much as she wanted of any food that had been introduced. I was worried > that otherwise she might not get enough calories. But today she has had no > fruit and is eating plenty of chicken, green beans, and carrots. I'll try > limiting her to one or two servings of fruit a day. Is there a limit to > the > amount of meat, eggs, dairy, or veggies that I can give her in a day? > > Thanks for the help. I am ready to stick with the diet a little longer. At > least now I know for sure that Amber's diet affects her behavior! > > Katy > mom to Amber, 2 years old, -Magenis Syndrome, excessive gas and > bloating and behavior/sleep problems > SCD 9 days > > On 6/3/07, Rob or Sunseri <RobRose@...<RobRose%40yahoo.com>> > wrote: > > > > It sounds like you are doing the intro diet too long & giving way too > > much fruit. When you hear that fruit and vegetables are good for you -- > it's > > really the vegetables that are good and the fruit is a nice treat. > Critics > > of the food pyramid who have suggested their own pyramid give examples > of > > eating 9 servings of vegetables and 1 serving of fruit/day for optimum > > health. That's not written in stone anywhere, but it's something to > think > > about. > > > > I know that if I ate 20 pears in 2 days or 5 bananas in one day, I would > > not feel well either. Why is she eating so much fruit? > > > > We had problems on the intro diet/stage 1 because my son turned out to > > have a chicken sensitivity. We instead rotated meat groups and kept it > very > > simple otherwise. We did no fruit except for lemon juice in his yogurt. > So > > our intro basically failed, stage 1 was rotated meats (5-day rotation) > with > > simple vegetables (also rotated) and yogurt blended with avocado, honey > and > > lemon juice. > > > > - > > > > Katy Tra <katytra@... <katytra%40gmail.com> <katytra%40gmail.com>> > wrote: > > Please help! Gas became much worse when I gave Amber pears. I thought > > pears were easy to digest (cooked and peeled) so I let her eat as many > as > > she wanted. She had about 20 pears over the last 2 days and is now very > > bloated and slept poorly the last 2 nights. Could this be a fructose > > sensitivity? If so, do I have her on the wrong diet? Bananas did the > same > > thing. Her gas is worse than before the diet. I don't think that gas > could > > be caused by die-off since the bacteria have to be alive to produce gas. > > I'm about ready to throw in the towel and maybe try a low-fructose diet. > > > > Any advice would be welcome! > > Thanks > > Katy > > > > On 6/2/07, Katy Tra <katytra@... <katytra%40gmail.com><katytra%40gmail.com>> wrote: > > > > > > Please help! I started this diet for my daughter mostly to help > control > > > her gas, and it is worse than ever! Could this be die-off? My > > > mother-in-law says that it is from eating too much of the same food in > a > > day > > > (eg today she had almost 10 pears) but how can I help this when her > > choices > > > are so limited? Should I try introducing foods more quickly so she has > > more > > > variety? > > > > > > So far we have: > > > chicken breasts > > > carrots > > > pears > > > gelatin > > > 1-2 tsp Welch's 100% white grape juice mixed with > > > melatonin for sleep in a cellulose base > > > > > > I tried and eliminated bananas and eggs but I'm not so sure they were > > > causing the gas because it is still here. On the plus side, her stools > > are > > > more formed. > > > > > > Thanks so much > > > Katy > > > mom to Amber 2 yo -Magenis Syndrome, excessive gas and bloating > > > SCD 8 days > > > > > > > > > On 5/30/07, robin <rmcorner@... <rmcorner%40bellsouth.net><rmcorner%40bellsou > th.net>> > > wrote: > > > > > > > > Katy, > > > > Welcome to the list, and I think you have found something really > great > > > > for your daughter. I would absolutely pull those bananas out of her > > diet. > > > > Five bananas in a day is definitely too many, but the fact that the > > gas and > > > > bloating returned is a sign of intolerance. The lethargy that you > saw > > on > > > > Sunday is a die off reaction. The harmful bacteria and yeast die off > > > > displays itself in many different ways because everyone is > different. > > Some > > > > parents see increased irritability, stimming, nausia, lethargy, > > vomitting, > > > > constepation, diharea, ect. I would do the intro diet for two days > > again > > > > just to get her back to square one, and moving in the right > direction. > > Also, > > > > you should stick to ground beef rather than steak for a little while > > just > > > > because the ground beef is easier for her to digest. I would > introduce > > a new > > > > food every two to three days after that, and watch for symptoms. If > > her > > > > bloating or gas return, then I would pull that food out for a good > > while. We > > > > have noticed that some children have trouble with carrots, bananas, > or > > > > apples. It appears that she did fine with the carrots, but not the > > bananas. > > > > If she has problems with the pealed, seeded, and cooked apples, you > > can try > > > > pears instead. Keep us posted. > > > > Meleah > > > > Help - Bananas causing gas > > > > > > > > Hello, > > > > > > > > My 2-year-old daughter Amber has a genetic disorder called > > -Magenis > > > > Syndrome. She is very social and is not considered autistic but she > > does > > > > bang her head when she gets upset. Sometimes she gets upset for no > > > > reason > > > > and often passes gas a few minutes later so I know that she has gas > > > > pain. > > > > She is generally under-sensitive to pain (doesn't cry when she > scrapes > > > > her > > > > knee or gives blood) so the gas pain must be bad. > > > > > > > > Amber has had to be on Miralax for months at a time but usually her > > > > stools > > > > are loose. She has been off Miralax for several months now. Even > with > > > > loose stools she only has a BM once every day or two so it's not > > > > diarrhea. > > > > She craves crackers, bread, and bananas. I heard about SCD and > talked > > to > > > > a > > > > dietician about it who said that Amber has a hard time digesting > > carbs. > > > > She > > > > had never heard of SCD but said it would help Amber feel better. > > > > > > > > Before the diet Amber was not casein-free (she drank soy milk in her > > cup > > > > but > > > > I gave her cheese fairly often) so I thought I would try the regular > > > > cow's-milk version of SCD. I had her on the intro for two days. She > > ate > > > > some chicken pancakes and a pound of cooked carrots (not pureed) the > > > > first > > > > day. She didn't like the fruit-juice jello or fruit juice and > doesn't > > > > usually like meat or eggs. She kept asking for crackers and bananas > > but > > > > was > > > > in a pretty good mood. The second day she wouldn't eat chicken > > pancakes > > > > but > > > > continued to ask for carrots at every snack and ate another pound > that > > > > day. > > > > She was starting to get a little grouchy. > > > > > > > > The third day Amber slept in until 7:30 (usually she is up at 5:00) > > and > > > > was > > > > very lethargic. She wouldn't eat anything for breakfast but just > > looked > > > > at > > > > it and didn't ask for anything else. She fell asleep in church even > > > > though > > > > she is usually very alert in the mornings. I was worried that maybe > > she > > > > was > > > > needing carbs for energy so I decided that two days of the intro was > > > > enough > > > > and started her on ripe bananas. She perked right up and ate 5 > bananas > > > > that > > > > day, and nothing else, except for half of a Dorito that she found. > She > > > > wanted more bananas but I wouldn't let her have more than five. > > > > > > > > Now she has been having bananas for three days and is back to her > old > > > > self > > > > -- also the gas has returned. While on the intro I didn't hear her > > pass > > > > gas > > > > and her bloated pot-belly went away. I didn't know she was bloated > > until > > > > it > > > > went away, I thought that was the natural shape of her belly. After > > > > starting bananas she began passing gas again and is bloated again. > > > > > > > > I guess she must be having a hard time with bananas and I will have > to > > > > discontinue them. The problem is that I have since introduced cooked > > > > apples > > > > and cheddar cheese so I guess I will have to discontinue these as > well > > > > since > > > > I wasn't able to see their effects. > > > > > > > > Here are my questions: Do I have to do the intro again, and for how > > > > long? > > > > Would one day be enough this time or should I do two or three again? > > It > > > > was > > > > scary when she was so lethargic and I thought she must be hungry. I > > was > > > > so > > > > relieved to see her eat bananas. What should I look out for when I > > give > > > > her > > > > a new food? Is a little gas normal or should I consider any gas to > be > > a > > > > warning sign? At first I didn't discontinue the bananas because I > > > > thought a > > > > little gas was normal, but now it is pretty bad. So should I be > > > > concerned > > > > if she has even a little gas? That is a sign that the bacteria are > > > > fermenting her food, right? > > > > > > > > Is it okay to have cinnamon on the intro diet? I found that Amber > > likes > > > > the > > > > sneaky veggie pancakes made with carrots, but they have cinnamon and > > > > butter > > > > in them so are they intro foods? > > > > > > > > Here is what Amber is eating now: > > > > whole cooked baby carrots > > > > cooked apple slices > > > > ripe bananas > > > > chicken cupcakes (chicken, bananas, carrots, eggs) > > > > carrot pancakes (carrots, eggs, cinnamon, butter) > > > > cheddar cheese > > > > chicken pancakes (she had these at first but won't touch them now) > > > > one bite of beef hamburger > > > > one bite of steak but I don't think she swallowed it > > > > 1-2 tsp of Welch's 100% white grape juice that I mix her medicine in > > > > Amber takes melatonin for sleep, it is in a cellulose tablet > > > > > > > > Thank you so much for your help! > > > > Katy > > > > mom to Amber 2 years old -Magenis Syndrome > > > > SCD 6 days > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 I think it probably varies from child to child. My 2 year old does not do well on lots of meat and eggs. He has one serving of meat every day, occasionally 2 if he is acting like he's more hungry than usual. He also has one or 2 eggs every couple of days. The vast majority of his diet is veggies and he has done really well, but it took some trial and error for us to find the right balance for him. He still gets plenty of fat eating mostly veggies because he has avocados and coconut oil. It will probably take you some time to figure out what works best, but I think it will start to become apparent. I feel like too much of anything is not good and we have to find a balance. It's kind of hard in the beginning when you don't have a lot of foods to choose from, but it will become easier as you stick with it and can start adding more choices and as your child starts to accept new things that before they wouldn't touch, at least, that has been our experience. Also, where 6 bananas might cause gas or whatever, maybe they would be fine with only 1. 2 yo SCD 4 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Katy, I agree with . She is eating way to much fruit. I've also seen many parents on the list say that they've had to either pull all together or just greatly dimished the amount of fruits and honey that their child eats. She really should eat a good portion of vege5tables with her meat. Try that, and see what happens. You can also try the epsin salt baths, baking soda baths, and electrolite drink if she isn't feeling well. Have you also thought of doing a rotation of natural antifungals along with giving her Candex when you give the probiotics? I'd really suggest this as well. Meleah Help - Bananas causing gas > > > > Hello, > > > > My 2-year-old daughter Amber has a genetic disorder called -Magenis > > Syndrome. She is very social and is not considered autistic but she does > > bang her head when she gets upset. Sometimes she gets upset for no > > reason > > and often passes gas a few minutes later so I know that she has gas > > pain. > > She is generally under-sensitive to pain (doesn't cry when she scrapes > > her > > knee or gives blood) so the gas pain must be bad. > > > > Amber has had to be on Miralax for months at a time but usually her > > stools > > are loose. She has been off Miralax for several months now. Even with > > loose stools she only has a BM once every day or two so it's not > > diarrhea. > > She craves crackers, bread, and bananas. I heard about SCD and talked to > > a > > dietician about it who said that Amber has a hard time digesting carbs. > > She > > had never heard of SCD but said it would help Amber feel better. > > > > Before the diet Amber was not casein-free (she drank soy milk in her cup > > but > > I gave her cheese fairly often) so I thought I would try the regular > > cow's-milk version of SCD. I had her on the intro for two days. She ate > > some chicken pancakes and a pound of cooked carrots (not pureed) the > > first > > day. She didn't like the fruit-juice jello or fruit juice and doesn't > > usually like meat or eggs. She kept asking for crackers and bananas but > > was > > in a pretty good mood. The second day she wouldn't eat chicken pancakes > > but > > continued to ask for carrots at every snack and ate another pound that > > day. > > She was starting to get a little grouchy. > > > > The third day Amber slept in until 7:30 (usually she is up at 5:00) and > > was > > very lethargic. She wouldn't eat anything for breakfast but just looked > > at > > it and didn't ask for anything else. She fell asleep in church even > > though > > she is usually very alert in the mornings. I was worried that maybe she > > was > > needing carbs for energy so I decided that two days of the intro was > > enough > > and started her on ripe bananas. She perked right up and ate 5 bananas > > that > > day, and nothing else, except for half of a Dorito that she found. She > > wanted more bananas but I wouldn't let her have more than five. > > > > Now she has been having bananas for three days and is back to her old > > self > > -- also the gas has returned. While on the intro I didn't hear her pass > > gas > > and her bloated pot-belly went away. I didn't know she was bloated until > > it > > went away, I thought that was the natural shape of her belly. After > > starting bananas she began passing gas again and is bloated again. > > > > I guess she must be having a hard time with bananas and I will have to > > discontinue them. The problem is that I have since introduced cooked > > apples > > and cheddar cheese so I guess I will have to discontinue these as well > > since > > I wasn't able to see their effects. > > > > Here are my questions: Do I have to do the intro again, and for how > > long? > > Would one day be enough this time or should I do two or three again? It > > was > > scary when she was so lethargic and I thought she must be hungry. I was > > so > > relieved to see her eat bananas. What should I look out for when I give > > her > > a new food? Is a little gas normal or should I consider any gas to be a > > warning sign? At first I didn't discontinue the bananas because I > > thought a > > little gas was normal, but now it is pretty bad. So should I be > > concerned > > if she has even a little gas? That is a sign that the bacteria are > > fermenting her food, right? > > > > Is it okay to have cinnamon on the intro diet? I found that Amber likes > > the > > sneaky veggie pancakes made with carrots, but they have cinnamon and > > butter > > in them so are they intro foods? > > > > Here is what Amber is eating now: > > whole cooked baby carrots > > cooked apple slices > > ripe bananas > > chicken cupcakes (chicken, bananas, carrots, eggs) > > carrot pancakes (carrots, eggs, cinnamon, butter) > > cheddar cheese > > chicken pancakes (she had these at first but won't touch them now) > > one bite of beef hamburger > > one bite of steak but I don't think she swallowed it > > 1-2 tsp of Welch's 100% white grape juice that I mix her medicine in > > Amber takes melatonin for sleep, it is in a cellulose tablet > > > > Thank you so much for your help! > > Katy > > mom to Amber 2 years old -Magenis Syndrome > > SCD 6 days > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Honestly, there isn't a limit to the amount of foods persay. I mean, give her food if she is hungry. Just observe for foods that she seems to tolerate well, foods that she tolerates in small amounts, and food that she doesn't do well with at all. You have obviously seen that fruit doesn't do well in large amounts, and she may not do well with it at all for a while. You really just have to watch, and journal what you observe. Meleah Help - Bananas causing gas > > > > > > Hello, > > > > > > My 2-year-old daughter Amber has a genetic disorder called > -Magenis > > > Syndrome. She is very social and is not considered autistic but she > does > > > bang her head when she gets upset. Sometimes she gets upset for no > > > reason > > > and often passes gas a few minutes later so I know that she has gas > > > pain. > > > She is generally under-sensitive to pain (doesn't cry when she scrapes > > > her > > > knee or gives blood) so the gas pain must be bad. > > > > > > Amber has had to be on Miralax for months at a time but usually her > > > stools > > > are loose. She has been off Miralax for several months now. Even with > > > loose stools she only has a BM once every day or two so it's not > > > diarrhea. > > > She craves crackers, bread, and bananas. I heard about SCD and talked > to > > > a > > > dietician about it who said that Amber has a hard time digesting > carbs. > > > She > > > had never heard of SCD but said it would help Amber feel better. > > > > > > Before the diet Amber was not casein-free (she drank soy milk in her > cup > > > but > > > I gave her cheese fairly often) so I thought I would try the regular > > > cow's-milk version of SCD. I had her on the intro for two days. She > ate > > > some chicken pancakes and a pound of cooked carrots (not pureed) the > > > first > > > day. She didn't like the fruit-juice jello or fruit juice and doesn't > > > usually like meat or eggs. She kept asking for crackers and bananas > but > > > was > > > in a pretty good mood. The second day she wouldn't eat chicken > pancakes > > > but > > > continued to ask for carrots at every snack and ate another pound that > > > day. > > > She was starting to get a little grouchy. > > > > > > The third day Amber slept in until 7:30 (usually she is up at 5:00) > and > > > was > > > very lethargic. She wouldn't eat anything for breakfast but just > looked > > > at > > > it and didn't ask for anything else. She fell asleep in church even > > > though > > > she is usually very alert in the mornings. I was worried that maybe > she > > > was > > > needing carbs for energy so I decided that two days of the intro was > > > enough > > > and started her on ripe bananas. She perked right up and ate 5 bananas > > > that > > > day, and nothing else, except for half of a Dorito that she found. She > > > wanted more bananas but I wouldn't let her have more than five. > > > > > > Now she has been having bananas for three days and is back to her old > > > self > > > -- also the gas has returned. While on the intro I didn't hear her > pass > > > gas > > > and her bloated pot-belly went away. I didn't know she was bloated > until > > > it > > > went away, I thought that was the natural shape of her belly. After > > > starting bananas she began passing gas again and is bloated again. > > > > > > I guess she must be having a hard time with bananas and I will have to > > > discontinue them. The problem is that I have since introduced cooked > > > apples > > > and cheddar cheese so I guess I will have to discontinue these as well > > > since > > > I wasn't able to see their effects. > > > > > > Here are my questions: Do I have to do the intro again, and for how > > > long? > > > Would one day be enough this time or should I do two or three again? > It > > > was > > > scary when she was so lethargic and I thought she must be hungry. I > was > > > so > > > relieved to see her eat bananas. What should I look out for when I > give > > > her > > > a new food? Is a little gas normal or should I consider any gas to be > a > > > warning sign? At first I didn't discontinue the bananas because I > > > thought a > > > little gas was normal, but now it is pretty bad. So should I be > > > concerned > > > if she has even a little gas? That is a sign that the bacteria are > > > fermenting her food, right? > > > > > > Is it okay to have cinnamon on the intro diet? I found that Amber > likes > > > the > > > sneaky veggie pancakes made with carrots, but they have cinnamon and > > > butter > > > in them so are they intro foods? > > > > > > Here is what Amber is eating now: > > > whole cooked baby carrots > > > cooked apple slices > > > ripe bananas > > > chicken cupcakes (chicken, bananas, carrots, eggs) > > > carrot pancakes (carrots, eggs, cinnamon, butter) > > > cheddar cheese > > > chicken pancakes (she had these at first but won't touch them now) > > > one bite of beef hamburger > > > one bite of steak but I don't think she swallowed it > > > 1-2 tsp of Welch's 100% white grape juice that I mix her medicine in > > > Amber takes melatonin for sleep, it is in a cellulose tablet > > > > > > Thank you so much for your help! > > > Katy > > > mom to Amber 2 years old -Magenis Syndrome > > > SCD 6 days > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 I am on an advisory council at our children's hospital. I am starting to think there is not a disorder I haven't at least heard of! Something else to consider is how you give fruit. Fruit is best digested on an empty stomach or with fermented dairy. Some people get gas when they eat fruit with a protein as the fruit " wants " to move thru quickly, but the protein takes longer to break down. For your daughter, you might try 1 fruit/day on an empty stomach or mixed with yogurt if you have added yogurt. - Katy Tra wrote: , Thanks so much for all of your help. Amber's cholesterol and triglycerides are fine, but she has had periods of constipation. Usually her stools are loose (but only once every day or two) and I didn't realize until recently that that wasn't normal for a 2-year-old. I can't believe that you have even heard of SMS! I did talk with a dietician before starting the diet and plan to call her again tomorrow to set up another appointment. She had never heard of SCD but agreed that it would help Amber. Maybe she can recommend some additional tests. After the first couple of days, it hasn't been a struggle to get Amber to eat the SCD food -- I can even eat other food in front of her now. But she has been crying/tantruming more and having more sleep problems, mostly because of the gas which actually became worse on the diet. I can see now that I was letting her overload on fruit. Hopefully she'll do better with limited fruit. Thanks again, Katy > > Unfortunately, none of this is laid out anywhere in SCD to my knowledge > and this could vary from person to person. Always aim for balance and > perhaps keep in mind that most growing kids need a little more protein and > fat than adults. My son and I work with a nutritional counselor in addition > to SCD. She ran many tests on both of us and found that my son would do best > on more protein and fats, no fruit and she was thrilled that we were doing > goat yogurt for him. She also wanted him to have cheese. She said he had a > somewhat typical chemistry of most kids (he burns/metabolizes things > quickly), so she wanted us to avoid fast burning sources of energy (sugars, > fruits, complex carbs). For my chemistry, she recommended no dairy, some > fruit and lean meats, less fats (I'm used to eating my son's left overs so I > had to adjust my diet more than his!). > > It's helped us, so maybe these guidelines will help you since she said my > son needed what kids typically need. > > Don't give up on the diet yet. We spun our wheels for 4 months, but have > now refined what my son needs. For others it clicks right away. The wheel > spinning for us was not a waste by any means, it was a learning process. > > It sounds like you are a bit anxious over the dietary changes. Is your > daughter difficult to work with in terms of feeding (making you crazy?!). I > can relate to that if that is the case. It makes things doubly hard. > > - > > > Katy Tra <katytra@... <katytra%40gmail.com>> wrote: > Thank you so much for your reply! I was basically letting my daughter eat > as much as she wanted of any food that had been introduced. I was worried > that otherwise she might not get enough calories. But today she has had no > fruit and is eating plenty of chicken, green beans, and carrots. I'll try > limiting her to one or two servings of fruit a day. Is there a limit to > the > amount of meat, eggs, dairy, or veggies that I can give her in a day? > > Thanks for the help. I am ready to stick with the diet a little longer. At > least now I know for sure that Amber's diet affects her behavior! > > Katy > mom to Amber, 2 years old, -Magenis Syndrome, excessive gas and > bloating and behavior/sleep problems > SCD 9 days > > On 6/3/07, Rob or Sunseri <RobRose@...<RobRose%40yahoo.com>> > wrote: > > > > It sounds like you are doing the intro diet too long & giving way too > > much fruit. When you hear that fruit and vegetables are good for you -- > it's > > really the vegetables that are good and the fruit is a nice treat. > Critics > > of the food pyramid who have suggested their own pyramid give examples > of > > eating 9 servings of vegetables and 1 serving of fruit/day for optimum > > health. That's not written in stone anywhere, but it's something to > think > > about. > > > > I know that if I ate 20 pears in 2 days or 5 bananas in one day, I would > > not feel well either. Why is she eating so much fruit? > > > > We had problems on the intro diet/stage 1 because my son turned out to > > have a chicken sensitivity. We instead rotated meat groups and kept it > very > > simple otherwise. We did no fruit except for lemon juice in his yogurt. > So > > our intro basically failed, stage 1 was rotated meats (5-day rotation) > with > > simple vegetables (also rotated) and yogurt blended with avocado, honey > and > > lemon juice. > > > > - > > > > Katy Tra <katytra@... <katytra%40gmail.com> <katytra%40gmail.com>> > wrote: > > Please help! Gas became much worse when I gave Amber pears. I thought > > pears were easy to digest (cooked and peeled) so I let her eat as many > as > > she wanted. She had about 20 pears over the last 2 days and is now very > > bloated and slept poorly the last 2 nights. Could this be a fructose > > sensitivity? If so, do I have her on the wrong diet? Bananas did the > same > > thing. Her gas is worse than before the diet. I don't think that gas > could > > be caused by die-off since the bacteria have to be alive to produce gas. > > I'm about ready to throw in the towel and maybe try a low-fructose diet. > > > > Any advice would be welcome! > > Thanks > > Katy > > > > On 6/2/07, Katy Tra <katytra@... <katytra%40gmail.com><katytra%40gmail.com>> wrote: > > > > > > Please help! I started this diet for my daughter mostly to help > control > > > her gas, and it is worse than ever! Could this be die-off? My > > > mother-in-law says that it is from eating too much of the same food in > a > > day > > > (eg today she had almost 10 pears) but how can I help this when her > > choices > > > are so limited? Should I try introducing foods more quickly so she has > > more > > > variety? > > > > > > So far we have: > > > chicken breasts > > > carrots > > > pears > > > gelatin > > > 1-2 tsp Welch's 100% white grape juice mixed with > > > melatonin for sleep in a cellulose base > > > > > > I tried and eliminated bananas and eggs but I'm not so sure they were > > > causing the gas because it is still here. On the plus side, her stools > > are > > > more formed. > > > > > > Thanks so much > > > Katy > > > mom to Amber 2 yo -Magenis Syndrome, excessive gas and bloating > > > SCD 8 days > > > > > > > > > On 5/30/07, robin <rmcorner@... <rmcorner%40bellsouth.net><rmcorner%40bellsou > th.net>> > > wrote: > > > > > > > > Katy, > > > > Welcome to the list, and I think you have found something really > great > > > > for your daughter. I would absolutely pull those bananas out of her > > diet. > > > > Five bananas in a day is definitely too many, but the fact that the > > gas and > > > > bloating returned is a sign of intolerance. The lethargy that you > saw > > on > > > > Sunday is a die off reaction. The harmful bacteria and yeast die off > > > > displays itself in many different ways because everyone is > different. > > Some > > > > parents see increased irritability, stimming, nausia, lethargy, > > vomitting, > > > > constepation, diharea, ect. I would do the intro diet for two days > > again > > > > just to get her back to square one, and moving in the right > direction. > > Also, > > > > you should stick to ground beef rather than steak for a little while > > just > > > > because the ground beef is easier for her to digest. I would > introduce > > a new > > > > food every two to three days after that, and watch for symptoms. If > > her > > > > bloating or gas return, then I would pull that food out for a good > > while. We > > > > have noticed that some children have trouble with carrots, bananas, > or > > > > apples. It appears that she did fine with the carrots, but not the > > bananas. > > > > If she has problems with the pealed, seeded, and cooked apples, you > > can try > > > > pears instead. Keep us posted. > > > > Meleah > > > > Help - Bananas causing gas > > > > > > > > Hello, > > > > > > > > My 2-year-old daughter Amber has a genetic disorder called > > -Magenis > > > > Syndrome. She is very social and is not considered autistic but she > > does > > > > bang her head when she gets upset. Sometimes she gets upset for no > > > > reason > > > > and often passes gas a few minutes later so I know that she has gas > > > > pain. > > > > She is generally under-sensitive to pain (doesn't cry when she > scrapes > > > > her > > > > knee or gives blood) so the gas pain must be bad. > > > > > > > > Amber has had to be on Miralax for months at a time but usually her > > > > stools > > > > are loose. She has been off Miralax for several months now. Even > with > > > > loose stools she only has a BM once every day or two so it's not > > > > diarrhea. > > > > She craves crackers, bread, and bananas. I heard about SCD and > talked > > to > > > > a > > > > dietician about it who said that Amber has a hard time digesting > > carbs. > > > > She > > > > had never heard of SCD but said it would help Amber feel better. > > > > > > > > Before the diet Amber was not casein-free (she drank soy milk in her > > cup > > > > but > > > > I gave her cheese fairly often) so I thought I would try the regular > > > > cow's-milk version of SCD. I had her on the intro for two days. She > > ate > > > > some chicken pancakes and a pound of cooked carrots (not pureed) the > > > > first > > > > day. She didn't like the fruit-juice jello or fruit juice and > doesn't > > > > usually like meat or eggs. She kept asking for crackers and bananas > > but > > > > was > > > > in a pretty good mood. The second day she wouldn't eat chicken > > pancakes > > > > but > > > > continued to ask for carrots at every snack and ate another pound > that > > > > day. > > > > She was starting to get a little grouchy. > > > > > > > > The third day Amber slept in until 7:30 (usually she is up at 5:00) > > and > > > > was > > > > very lethargic. She wouldn't eat anything for breakfast but just > > looked > > > > at > > > > it and didn't ask for anything else. She fell asleep in church even > > > > though > > > > she is usually very alert in the mornings. I was worried that maybe > > she > > > > was > > > > needing carbs for energy so I decided that two days of the intro was > > > > enough > > > > and started her on ripe bananas. She perked right up and ate 5 > bananas > > > > that > > > > day, and nothing else, except for half of a Dorito that she found. > She > > > > wanted more bananas but I wouldn't let her have more than five. > > > > > > > > Now she has been having bananas for three days and is back to her > old > > > > self > > > > -- also the gas has returned. While on the intro I didn't hear her > > pass > > > > gas > > > > and her bloated pot-belly went away. I didn't know she was bloated > > until > > > > it > > > > went away, I thought that was the natural shape of her belly. After > > > > starting bananas she began passing gas again and is bloated again. > > > > > > > > I guess she must be having a hard time with bananas and I will have > to > > > > discontinue them. The problem is that I have since introduced cooked > > > > apples > > > > and cheddar cheese so I guess I will have to discontinue these as > well > > > > since > > > > I wasn't able to see their effects. > > > > > > > > Here are my questions: Do I have to do the intro again, and for how > > > > long? > > > > Would one day be enough this time or should I do two or three again? > > It > > > > was > > > > scary when she was so lethargic and I thought she must be hungry. I > > was > > > > so > > > > relieved to see her eat bananas. What should I look out for when I > > give > > > > her > > > > a new food? Is a little gas normal or should I consider any gas to > be > > a > > > > warning sign? At first I didn't discontinue the bananas because I > > > > thought a > > > > little gas was normal, but now it is pretty bad. So should I be > > > > concerned > > > > if she has even a little gas? That is a sign that the bacteria are > > > > fermenting her food, right? > > > > > > > > Is it okay to have cinnamon on the intro diet? I found that Amber > > likes > > > > the > > > > sneaky veggie pancakes made with carrots, but they have cinnamon and > > > > butter > > > > in them so are they intro foods? > > > > > > > > Here is what Amber is eating now: > > > > whole cooked baby carrots > > > > cooked apple slices > > > > ripe bananas > > > > chicken cupcakes (chicken, bananas, carrots, eggs) > > > > carrot pancakes (carrots, eggs, cinnamon, butter) > > > > cheddar cheese > > > > chicken pancakes (she had these at first but won't touch them now) > > > > one bite of beef hamburger > > > > one bite of steak but I don't think she swallowed it > > > > 1-2 tsp of Welch's 100% white grape juice that I mix her medicine in > > > > Amber takes melatonin for sleep, it is in a cellulose tablet > > > > > > > > Thank you so much for your help! > > > > Katy > > > > mom to Amber 2 years old -Magenis Syndrome > > > > SCD 6 days > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.