Rambling on board hijacking

[Guest guest]

The direction of the board has been weighing on me heavily for a good

while.

The point I was trying to make in direct response to one of 's fish

oil is talk medicine posts (not the weight gain one where I mistakenly

mentioned FOD IF going to genetics in the wrong thread) is that there

are people, old and new (old ones who come to mind are Kim, the 's

and ) who have children diagnosed with apraxia (though Kim's guy

is also light PDD I think) who are fish oil and E responders and still

need more but just did not talk about it until recently. They were the

nontalkers back in the day.

Make no mistake, is a responder. He is in fact closer to apraxia

than autism, as I suspected all along. I once gave him CLO when I

worried autism and likely screwed up his vision as a result. He would

likely get full or at least very good articulation if I could get 100 IU

in him safely with the right fish oil combo based on my experiments.

That is my goal AFTER hematology. I actually need help with the fish oil

doseage but can only wonder where I'll find that since I am so unpopular

today, and apparently for a while.

Despite the insinuations it was and not who was closer

to the road to autism and that was likely as a result of genetics set

off by the MMR and the water. I shudder to think what would have

happened had I not fought for her to get apraxia labs too.

What has been ignored is what I am trying to do NOW. As soon as Janice

started chelating I was concerned we were going to hear about chelation

and people would get scared and overreact with little ones not realizing

Mark's deal. That and the fact that I realize many see me as " taking up

too many seats on the bus " pushed me to remind people of the mainstream

offerings labwise in the folders that mentioned along with diet

and environmental. Also, Janice had a mold problem Mark grew up with and

that subsequently may have caused issues for another kid later residing

in his room. That could help with allergy theory and could help

others on the board.Just a thought.

I have been trying since the main biomed breakout to recommend books so

people, on their own, might rule in or out things in their kid:

1) Is this your child? to investigate allergy rather than debate it on

the board

2) The 4 As: to help people rule in or out metal and/or gut stuff and

help with allergy theiry

3) Chabging the Course of Autism: to see how the body works

4) Feast without Yeast: to help people realize how to address diet

responsibly if they are going to bother. Again to not fight over it.

Gluten Sensitivity: The study is proposing deals with this.

does not want to touch this which is fine for her BUT if people are

really following 's study for their kid they should not act as if

the formula is the cure-all and testing for this is irrelevant. My son,

the responder, is not atypical and has the gene being looked at as part

of the study.

I will not lie. This hurts...A LOT. I have spent three devastating years

watching my entire family's health decline and feeling helpless in

trying to address it until nearly nine months ago. This has been like a

third pregnancy of sorts. I found answers on this board:

1) is an allergy kid (flourine and milk).

2) is a gut kid

3) is an autoimmune kid (DQ1 gluten sensitivity).

Are these not the very things in 's study? He is not the

exception. The only thing is cannot handle as much E as most.

Could be not the right combo or that his immune system is on overdrive

and fights extra E but I am not going to stroke him out trying to prove

he is a responder.

When we get enough fluorine out safely (studies say calmag for that and

iodine (he is currently getting that from fish oil) to avoid endocrine

system damage) I bet the speech issues will improve. I just have to find

out if I can do the calmag safely or if, ironically, chelation is safer.

I will do that via testing at the regular allergist and the

environmental one. I will only consider that after hematology, 's

labs, many big discussions with Dr. friends, cousin, scientist hubby,

reading studies, review of long-term effects, etc.

Fluorine, in some ways, is my friend:

It is an antibacterial of sorts (so overworks the system I think that

the body is always in fight mode so rarely gets sick but when he

does he improves from excreting from the head). Wouldn't it be nice if

we were just a few head colds away from perfect speech?

The tone issues are gone. Articulation is the last battle with a smidge

of midline stuff.

I went through this before with catherine's hair loss. Had I listened to

the doctors and support group who told me she was fine and not to look

for a cause but simply build her self-esteem her celiac would have

remained unaddressed and she'd have suffered immensely. Had I lstened to

them the GI would not have said to her the last time we went:

" , you are a much healthier little girl than the one I met last

May. " That hair loss, like 's speech, was the tip of the iceberg.

She had celiac and early signs of Ricketts and neither was obvious...the

many doctors who saw her before that will tell you that.

Lastly, I see things in that board being done by the very folks who

don't like me that I find interesting. Two supplements come to mind:

Carnitine: I think Tanner used this but can't say: The article in the

magazine I read tonight that had the above in it said the following:

Title: " Age With Grace and Carnitine "

" It is common for the ELDERLY to experience poor endurance, impaired

mobility, and decreased mental health. Evidence points to L-Carnitine

and acetyl L-Carnitine for improved physical ability and cognitive

function.

OK, let us just take these two things and not address the underlying

problems. What happens later if the kids do not grow out of this need

for assistance and grow into worse trouble?

Toddlers and grade schoolers should not have bodies reflective of the

elderly. Sure immune systems are immature but something is impeding

these kids and parents should be curious just as I was curious about my

own decline and the one I saw starting in my children. Thank God for us

it is environmental. Easier to fix in some ways.

That is all I got. I have a lot on my plate but I really did not need

this. Still it helped me see where I was headed for my family.