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Mindi

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Please please dont beat yourself up over not knowing when Sam was in

pain. Children are very resilient and can handle such things far

better then their parents can. I am a RN and have prepped 100's of

children for surgery and it never ceased to amaze me just how strong

they are. I left peds because it just broke my heart. I know it

must break yours to know that he is feeling just an inkling of the

pain you have felt. But little children, babies, dont feel things

the same as adults do. I ma not saying he is not in pain, I am sure

he is, bless his heart. All I am saying is that his sensory

preception of pain is not the same as yours.

I will keep you all and your family in my prayers. It has always

been my greatest fear that my children will inherit my disease as

well. I had my first major attack when I was around 11; but was not

diagnosed until a few years ago. You have nothing to feel guilty for

so please dont let your mind lead you down that path. If anything,

all that we have experienced in our treatments and surgeries will

help the little ones receive better treatment for this horrible

disease.

Warmly,

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