Re: Re: thanks Liana/

[Guest guest]

Thank you for answering so quickly Liana. I appreciate

your input and help.

First let me tell you how very sorry I am to hear

about your baby.

I feel horrible. I've never heard of that disease.

My mother told me she lost her first daughter, yrs

before I was ever born to a kidney disease. some type

of toxemia. the poisons from the urine couldn't be

expelled and it stayed in her system, which eventually

killed her. she was only a few weeks old. my mother

remembers her crying in pain all the time yet didn't

know what was wrong with her.

it was an internal birth defect that couldn't be

helped.

I will never forget that story when I had my own

children and understood what my mother or any woman

must go through when they lose a child.

I understand it must be difficult for you and your

husband to not worry about the new baby. thank

goodness for modern technology to see the inside of

the baby while in utero.

I didn't realize until searched for a support group

how common this disease is.

My symtoms sound similar to yours. I get so darn full

from only a few bites now. and my stomach hurts after

eating.

I had an attack many yrs. ago during my marriage. I am

now divorced and living with my new partner for four

yrs.

I'm soon to be 45 in a few weeks but feel much older

physically.

I've had four beautiful children. the oldest is 22,

21,18, & baby is 15.

only 3 are living with me. soon to be only two.

lots of headaches and problems with the 3. drug

addiction, alcoholism, teenhood, etc. it's hard to

handle everything and being ill ontop of it.

takes alot of energy out of me.

the first attack happned after I ate a rich dinner. I

thought I had food poisoning. they did an ultra sound

and found that I had an ovarian cyst that burst but

the cyclical pain that was coming every few minutes

along with the nauseau and pain did not qualify for a

ruputured cyst.

they thought maybe it was my appendix.

wrong.

so my gyno said it wasn't the cyst and she referred me

to a gasto dr.

know one till this day ever found the root of the

problem.

Then, back in the yr. 2000 I wasn't feeling well. it

was after my divorce,

I went to this young inexperienced quack of a dr. for

the 1st time because my mother in law went to him.

he's left his practice since.

I asked for my blood panel resutls. it was high on the

amylase. he didn't call me to tell me that. I called

him to find out what that meant.

he accused me of being bulimic. said that bulimic's

have high levels of amylase.

I told him he was dead wrong and he said if this isn't

true, then if I still wasn't feeling well to come back

and he said it could be another problem. I never went

back. and I heard he's since took up and left. went

back home to a far away state.

that was the beginning of the so called acute

pancreatitis.

I think.

it was all those yrs. ago that those freak things

happened. and now out of the clear blue sky, I go from

128 lbs. down to 100?

somethings very wrong here.

my appetite wasn't changing though. it remained the

same.

until I started taking those enzyme pills, creon.

they hurt my stomach more. I feel full now at every

meal so quickly.

I was eatting better before I took these pills.

I don't know what to do. do I continue taking them so

they put back weight on?

were you prescribed the creon?

how much weight did you lose Liana?

did your weight slowly come off and then drop even

quicker in a matter of months like me?

I heard that ct scans can look normal and the dr. can

go into the stomach with surgery, and find a whole

different picture of the pancreas with lots of damage

to it.

this scares me.

what if the ct scan shows nothing, yet really the

pancreas is damaged?

can't they do exploratory surgery?

they can do a laparascopy, or if need be a laparatomy.

I've had them before for removal of my ovary, tube and

cysts,.

I only have one ovary left.

I'm still producing estrogen thank goodness.

we need our precious hormones. but now since this

illness has struck, my skin looks horrible. My flesh

looks think and old on my upper and lower arms, the

skin on my abdomen looks weird too.

I feel as if I'm withering away to nothing. I feel as

if I'm not moving quick enough to do something about

it.

I should be excersing, and eating healthy. I should

quit smoking. maybe these things would alter the

illness from making my body detoriate?

I don't do anything about it other than take the

creon.

do you do anything to alter the damage being done?

I'm sorry if I sound weird and ask so many questions,

but I am new to all of this.

I'm frightened.

thanks for listening to me Liana. I appreciate your

help.

sincerely,

P.S.- I'm from New York. Not the city itself, but in

the sub burbs of Westchester County.

where do you live?

__________________________________

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