Unstable Panc related Diabetes to Heidi

[Guest guest]

Dear Heidi, thanks for your answer, once again with valuble advice. My

Glucometer is like a small computer, date, time bloodsugar stored and

easy to handle. I will go for your scheme and I already have some clue,

not too long in between meals and not too much sugar or carbs, even if

how to avoid it.? I am down on zero soon and what do I eat then? They

claim they have done the 2 months test and see nothing really abnormal,

a little high and low sometimes depends on how you eat -You have

probably eaten too much sweets says the Doc (I weigh everything! I eat

so little of whatever I dare to take in my mouth). I showed the

endocrinologist my tester and the results and he agreed that swinging

bloodsugar during this short period (1-2 hours) could cause problems. He

thought my duodenum emptied the carbs too fast into my intestines and

wants to try a medicin to slow it down.!?

Anyone can see that I am really bad when it happens, even if they dont

know me, I get pale and freeze and my feet num and white, like cramps in

my veins.

Today I saw a new doctor according to the new diagnos inflamation in my

intestinenerves or whatever. I am still in a shock. He referred to the

Oleat test,(MRCP and all other tests performed) , breathing test

checking how it is affecting the Panc (by many considered very

unreliable) after having had a spoon of oil and sandwich with supposed

fat cheese and butter on ( I didnt put butter and fat cheese on this

was 1 1/2 year

back because I couldnt take fat) I had a hard time afterwards, the

Oleat didnt show any malabsorbation of fat. He didnt believe I had CP

and was sure that it was this new desease to be taken care of and

handled by this special gastroteam, not curable and hard to test, Creon

helps but asked if I took it eating now? What a question, he has been

informed by 2 doctors and have the journals,

, cant eat a half banana without Creon. He said that it was important to

get rid of the CP diagnosis because it is connected with alcoholism and

that was why I had sometimes in the Hosp been treated badly and with

ignorance . I am crying, I was stunned then, but now...One of the tests

for the new diagnoses he understood I couldnt do but hoped and wanted me

to do was eating fried potatoes,meat, onions and test with catetes

through my nose to the intestines and a computer on my stomach measuring

the intestine movements, sent home for 16 hours and then back at hosp

for a full breakfast. Killing me in my thoughts.! The other test he said

I have to do is some kind of sugartest, special carbs to be digested in

the large intestine to show if I had an overgrowth of bacterias in my

intestine, if so they would start to be digested already after duodenum

in the small intestines. And how will I react, he doesnt care. All my

symptoms were related to this new desease and as I had had problems with

dryness of mouth (not caused by medication) and swollen mouth membran,

difficulties digesting fat, meat, fibres this was it. My Panc doc is

with him, she firmly believes this. He saw me 25 minutes, I couldnt go

over and tell him how I ate and how much the Liverpool hosp

recommendations had helped me a year ago to gain 25 pounds, still

following Prof Neoptomolus avoiding celiac was one thing, together with

low fat ...more enzymes.antioxidants..I didnt eat fat or meat before

that, had skipped it on the way when too ill with severe pain for 6

months

I tried to ask about the leftside under rib and back pain, describing

the horror as I have done so often and all the rest. when in hospital

they thought I had kidneystones in dec 2003. I asked about the elevated

liverenzymes when having an attack, he explained that with cramps in my

gallbladderveins. I think they need me as a human rat, they are probably

writing their thesis on this new incurable and undistinct desease which

probably in most cases is CP . Poor patients. Sorry for this long mail

just needed to vent. Love Sonja