Re: to Heidi, re: the NYC doctor

[Guest guest]

I thought that topic would be of interest to someone.

Little did I know at the time that it would come in

handy to have been in contact with this coworker and

her mom's situation.

I'll speak to my coworker today and get all the info.

I'll do my best.

Heidi,

did you ever give this thought?

why if it's related to genetics is it found so late in

an adult life rather than at an earlier age if it's

genetic?

wouldn't it show up sooner in a person life if it's

genetic?

my b/f just asked me this.

I told him good question.

I thought maybe you'd know.

there's only the basic information on the internet

when you type in pancreatic insufficiency, and alot of

the sites come up for canine, not human.

I didn't know pancreatitis attacks dogs too.

truely amazing. I mean afterall, they do have the same

organs as us and they do use animals to perform

studies.

sorry if I'm rambling too much.

thanks for sharing your story.

My dad was an alcoholic.

I had a tendency to binge drink when I had the chance

to go out when I was younger.

I don't miss alcohol now and it was easy for me to

give it up.

at one time I didn't know how I'd go to weddings or

parties without having a glass of wine in my hand

because it would calm me down.

I'm shy.

for some reason and now I know why, the past few years

I wasn't able to tolerate more than a glass of wine.

I just assumed it was because my body was getting

older and changing.

one glass made me feel HORRIBLE. as if I'd drank an

entire bottle myself. I didn't like the drowzy effects

it gave me either.

I'd climb into bed and go to sleep and have a hang

over effect upon rising. It took forever for the

alcohol to leave my system.

so I kind of shyed away from drinking the past few

yrs.

Now I know why my body couldn't tolerate it.

I have another question:

did you end up getting maladsorption from the c.p.?

my doc is saying I have it. I think he's assuming I

have pancreatitis when maybe I don't?

wouldn't my blood tests be affected with

maladsorption?

wouldn't I be anemic if I wasn't able to digest

protein and fats?

fat showed up in the stool culture.

he says that's a postivie for malabsorption.

I don't know why I feel as if maybe the diagnosis is

wrong?

why aren't I believing him?

I guess I'm waiting for all the standard testing to be

performed before I really believe him.

I know he's the expert and has the expertise to assume

it's something because he's been dealing with it for

many years.

My gosh Heidi! I can not believe how many ct scans

you've had.

I don't ever want another one again!

My stomach is still rumbling and I have loose stools.

I can't stop going to the bathroom and I feel really

crumby and weak this morning.

the test took extra long yesterday. I was there for 3

grueling hours.

I drank the huge cup within 30 min. took the test and

the tech told me only half of the substance came

through the body.

they made me wait a another hour, plus drink another

half of the huge cup and they told me to walk around

to get it to move down into the intestines.

it was making me nauseus just to drink it for some

reason.

it tasted good. it was clear liquid and tasted like

lemon.

I'm wondering if there was such a delay in the stomach

releasing the contrast because the creon is causing so

much gas and pressure in the intestines. it makes

sense that the contrast couldn't get through

immediately. there's no room.

the darn creon is killing my innards.

I'm trying to tell myself to just hold on and continue

taking it like you told me to. and that it'll take

approx. six weeks for me to get used to it.

I don't like creon.

so it's easy for me to forget to take them 30 min.

before my meals.

I don't take them like I'm supposed to.

I'm not a very good patient.

I'm very grateful to be here with this group. the

information is like gold to me. I wouldn't have

learned as much as I have through everyone's

experiences as I would from a website.

thanks Heidi,

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