Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Diane, Can't you switch to the painless MB-12 shots like we give our kids? They are sub-Q and don't hurt. - " F. Vargas " wrote: , I'm very faithful as well to the Diet and keep up the good work! I've had my doctors ( been through so many) say the same thing and I've stuck to the cortizone on my own. I way 40Kilos (i'm quite petite) and I've had to star on massive dossage as much as 50mg for like 3 or 4 days and then started a weekly 5 mg drop. (It's considered not to exceed the mg of Cortizone than that of your own weight in kilos). I have basically had to go on the medication on my own a bout 3 times for lack of doctors in my area to support me. When bleeding I was on 30mg as a starting point dossage - I gave myself a week with the thought of increasing 10mg if I wasn't better, but I was and didn't have to up the dossage. Somtimes at 20mg I continued a few more days than the one week - depending on how things were. But generally was able to work my way down weekly. Of course you must make sure you are taking plenty of calcium when taking the cortizone. ALSO - depending on where you are actually bleeding from. Do you know where your ulcerations are? I had an isotope test done back when my worst flare and it was rather in a low area with practically easy access for Cortizon Enemas. These also helped a lot. But they won't if the injury is higher up. This is just my experience so I'm not making a formal recommendation. Bach Flowers Remedy also helps! The most imoportant help is what MIMI said: B12SHOTS!!!! It takes a while and they are very painful. But I've had it for 2 flares while fighting the doctors to consent to this form of therapy. It's just not in their regular procedure.... If you are bleeding for a prolonged time you shouldn't think twice about this. Personal Observation: I noticed that the yogurt was too accidic and harsh when my gust was so raw, so I took that away - my at the time diet doctor agreed (only one supported me through the harsh times). Of course this is long before anyone discovered or suggested the yogurt made from Goat milk. Fruit & food. I kept going back to the intro as well. I added on , and not changed foods. So I woudn't discountinue the jello made from grape juice ( I make my own) - remmember dilute 1/2 & 1/2 . Good calcium there and that helps a lot. The soup of course! But I went really, reall slow. First broth, then with a few spoonfulls of the carrots ( purree) then added on little by little the chicken. Simple White fish broiled with some salt - and after feeling a bit better added broiled turkey ( I get thighs ground at my butcher). With no flavoring but salt. Omelettes. Apple sauce ( after 4 day Intro over) and slowly mixed the apples with 1/4 and adding up to 1/2 gradually of pears. Once better continued but instead of mashing these just eate them boiled in quarters. While adding on foods when better I didn't discontinue these two (pears help me from getting constipated) and I slice them thinly, mix with an egg and dab with butter and cinnamon - bake. I've made this a base in my diet. Trying not to over do the raw fruit which is hard as we have so much of it and delicious here! Each leagal food was introduced by small spoonfulls every 2 or 3 days. These would be increased slowly and no new food unless really ready. Each time was as if I was new at it all. But keeping a journal helps too. You'll notice the improvement and feel better. Well, that's me. Good luck. Feel free to email me when ever you wish: fdivargas@... F UC 11yrs / SCD 10yrs (2 bad flares early yrs) Snead escribió: I am in the middle of a persistent flare-up. My doctor says he will no longer prescribe prednisone, because he is concerned about the consequences of long-term use. He says the next time I see him he will prescribe Imuran if the symptoms still persist. I do not want to take this harmful drug!! I've got to get well. My flare-up has existed since April...I just can't kick it! I am VERY faithful to this diet. I have gone back to the Intro diet twice in the last month. Currently I eat chicken, fish, pureed carrots, cheesecake from intro diet, and banana smoothies (bananas and homemade yogurt in a blender). I try to avoid anything that has any texture, because my gut is so raw. Last night I tried well cooked french cut green beans for supper - - I was up all night, and I'm bleeding again. Any suggestions would be helpful! UC March 2005 Asacol Freeda vitamins --------------------------------- Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Don't hurt? Where are you getting yours? iel frieks out every time we give him one(every other day). He cries for about a minute after it has been given even. I haven't given one to myself, but he sure acts like it hurts. Meleah RE: still bleeding/Diane Diane, Can't you switch to the painless MB-12 shots like we give our kids? They are sub-Q and don't hurt. - " F. Vargas " wrote: , I'm very faithful as well to the Diet and keep up the good work! I've had my doctors ( been through so many) say the same thing and I've stuck to the cortizone on my own. I way 40Kilos (i'm quite petite) and I've had to star on massive dossage as much as 50mg for like 3 or 4 days and then started a weekly 5 mg drop. (It's considered not to exceed the mg of Cortizone than that of your own weight in kilos). I have basically had to go on the medication on my own a bout 3 times for lack of doctors in my area to support me. When bleeding I was on 30mg as a starting point dossage - I gave myself a week with the thought of increasing 10mg if I wasn't better, but I was and didn't have to up the dossage. Somtimes at 20mg I continued a few more days than the one week - depending on how things were. But generally was able to work my way down weekly. Of course you must make sure you are taking plenty of calcium when taking the cortizone. ALSO - depending on where you are actually bleeding from. Do you know where your ulcerations are? I had an isotope test done back when my worst flare and it was rather in a low area with practically easy access for Cortizon Enemas. These also helped a lot. But they won't if the injury is higher up. This is just my experience so I'm not making a formal recommendation. Bach Flowers Remedy also helps! The most imoportant help is what MIMI said: B12SHOTS!!!! It takes a while and they are very painful. But I've had it for 2 flares while fighting the doctors to consent to this form of therapy. It's just not in their regular procedure.... If you are bleeding for a prolonged time you shouldn't think twice about this. Personal Observation: I noticed that the yogurt was too accidic and harsh when my gust was so raw, so I took that away - my at the time diet doctor agreed (only one supported me through the harsh times). Of course this is long before anyone discovered or suggested the yogurt made from Goat milk. Fruit & food. I kept going back to the intro as well. I added on , and not changed foods. So I woudn't discountinue the jello made from grape juice ( I make my own) - remmember dilute 1/2 & 1/2 . Good calcium there and that helps a lot. The soup of course! But I went really, reall slow. First broth, then with a few spoonfulls of the carrots ( purree) then added on little by little the chicken. Simple White fish broiled with some salt - and after feeling a bit better added broiled turkey ( I get thighs ground at my butcher). With no flavoring but salt. Omelettes. Apple sauce ( after 4 day Intro over) and slowly mixed the apples with 1/4 and adding up to 1/2 gradually of pears. Once better continued but instead of mashing these just eate them boiled in quarters. While adding on foods when better I didn't discontinue these two (pears help me from getting constipated) and I slice them thinly, mix with an egg and dab with butter and cinnamon - bake. I've made this a base in my diet. Trying not to over do the raw fruit which is hard as we have so much of it and delicious here! Each leagal food was introduced by small spoonfulls every 2 or 3 days. These would be increased slowly and no new food unless really ready. Each time was as if I was new at it all. But keeping a journal helps too. You'll notice the improvement and feel better. Well, that's me. Good luck. Feel free to email me when ever you wish: fdivargas@... F UC 11yrs / SCD 10yrs (2 bad flares early yrs) Snead escribió: I am in the middle of a persistent flare-up. My doctor says he will no longer prescribe prednisone, because he is concerned about the consequences of long-term use. He says the next time I see him he will prescribe Imuran if the symptoms still persist. I do not want to take this harmful drug!! I've got to get well. My flare-up has existed since April...I just can't kick it! I am VERY faithful to this diet. I have gone back to the Intro diet twice in the last month. Currently I eat chicken, fish, pureed carrots, cheesecake from intro diet, and banana smoothies (bananas and homemade yogurt in a blender). I try to avoid anything that has any texture, because my gut is so raw. Last night I tried well cooked french cut green beans for supper - - I was up all night, and I'm bleeding again. Any suggestions would be helpful! UC March 2005 Asacol Freeda vitamins --------------------------------- Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 What size needle are you using? They shouldn't be painful. We give them nightly. We have gotten them from several pharmacies (the autism pharmacies and a local compounder)& one time they gave up the wrong size needle and they stung quite a bit. I have also heard that a " bad batch " will sting. Will iel not take them in his sleep? - robin wrote: Don't hurt? Where are you getting yours? iel frieks out every time we give him one(every other day). He cries for about a minute after it has been given even. I haven't given one to myself, but he sure acts like it hurts. Meleah RE: still bleeding/Diane Diane, Can't you switch to the painless MB-12 shots like we give our kids? They are sub-Q and don't hurt. - " F. Vargas " wrote: , I'm very faithful as well to the Diet and keep up the good work! I've had my doctors ( been through so many) say the same thing and I've stuck to the cortizone on my own. I way 40Kilos (i'm quite petite) and I've had to star on massive dossage as much as 50mg for like 3 or 4 days and then started a weekly 5 mg drop. (It's considered not to exceed the mg of Cortizone than that of your own weight in kilos). I have basically had to go on the medication on my own a bout 3 times for lack of doctors in my area to support me. When bleeding I was on 30mg as a starting point dossage - I gave myself a week with the thought of increasing 10mg if I wasn't better, but I was and didn't have to up the dossage. Somtimes at 20mg I continued a few more days than the one week - depending on how things were. But generally was able to work my way down weekly. Of course you must make sure you are taking plenty of calcium when taking the cortizone. ALSO - depending on where you are actually bleeding from. Do you know where your ulcerations are? I had an isotope test done back when my worst flare and it was rather in a low area with practically easy access for Cortizon Enemas. These also helped a lot. But they won't if the injury is higher up. This is just my experience so I'm not making a formal recommendation. Bach Flowers Remedy also helps! The most imoportant help is what MIMI said: B12SHOTS!!!! It takes a while and they are very painful. But I've had it for 2 flares while fighting the doctors to consent to this form of therapy. It's just not in their regular procedure.... If you are bleeding for a prolonged time you shouldn't think twice about this. Personal Observation: I noticed that the yogurt was too accidic and harsh when my gust was so raw, so I took that away - my at the time diet doctor agreed (only one supported me through the harsh times). Of course this is long before anyone discovered or suggested the yogurt made from Goat milk. Fruit & food. I kept going back to the intro as well. I added on , and not changed foods. So I woudn't discountinue the jello made from grape juice ( I make my own) - remmember dilute 1/2 & 1/2 . Good calcium there and that helps a lot. The soup of course! But I went really, reall slow. First broth, then with a few spoonfulls of the carrots ( purree) then added on little by little the chicken. Simple White fish broiled with some salt - and after feeling a bit better added broiled turkey ( I get thighs ground at my butcher). With no flavoring but salt. Omelettes. Apple sauce ( after 4 day Intro over) and slowly mixed the apples with 1/4 and adding up to 1/2 gradually of pears. Once better continued but instead of mashing these just eate them boiled in quarters. While adding on foods when better I didn't discontinue these two (pears help me from getting constipated) and I slice them thinly, mix with an egg and dab with butter and cinnamon - bake. I've made this a base in my diet. Trying not to over do the raw fruit which is hard as we have so much of it and delicious here! Each leagal food was introduced by small spoonfulls every 2 or 3 days. These would be increased slowly and no new food unless really ready. Each time was as if I was new at it all. But keeping a journal helps too. You'll notice the improvement and feel better. Well, that's me. Good luck. Feel free to email me when ever you wish: fdivargas@... F UC 11yrs / SCD 10yrs (2 bad flares early yrs) Snead escribió: I am in the middle of a persistent flare-up. My doctor says he will no longer prescribe prednisone, because he is concerned about the consequences of long-term use. He says the next time I see him he will prescribe Imuran if the symptoms still persist. I do not want to take this harmful drug!! I've got to get well. My flare-up has existed since April...I just can't kick it! I am VERY faithful to this diet. I have gone back to the Intro diet twice in the last month. Currently I eat chicken, fish, pureed carrots, cheesecake from intro diet, and banana smoothies (bananas and homemade yogurt in a blender). I try to avoid anything that has any texture, because my gut is so raw. Last night I tried well cooked french cut green beans for supper - - I was up all night, and I'm bleeding again. Any suggestions would be helpful! UC March 2005 Asacol Freeda vitamins --------------------------------- Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 They have always stung since we started them, and he's been taking them since last July. We've gotten them from Lee Silsby in Ohio, and Wellness Pharmacy in Alabama. He always wakes up if we try to give them in his sleep, so we just give them when he is awake rather than disturb his sleep. Either way, he frieks out. Meleah RE: still bleeding/Diane Diane, Can't you switch to the painless MB-12 shots like we give our kids? They are sub-Q and don't hurt. - " F. Vargas " wrote: , I'm very faithful as well to the Diet and keep up the good work! I've had my doctors ( been through so many) say the same thing and I've stuck to the cortizone on my own. I way 40Kilos (i'm quite petite) and I've had to star on massive dossage as much as 50mg for like 3 or 4 days and then started a weekly 5 mg drop. (It's considered not to exceed the mg of Cortizone than that of your own weight in kilos). I have basically had to go on the medication on my own a bout 3 times for lack of doctors in my area to support me. When bleeding I was on 30mg as a starting point dossage - I gave myself a week with the thought of increasing 10mg if I wasn't better, but I was and didn't have to up the dossage. Somtimes at 20mg I continued a few more days than the one week - depending on how things were. But generally was able to work my way down weekly. Of course you must make sure you are taking plenty of calcium when taking the cortizone. ALSO - depending on where you are actually bleeding from. Do you know where your ulcerations are? I had an isotope test done back when my worst flare and it was rather in a low area with practically easy access for Cortizon Enemas. These also helped a lot. But they won't if the injury is higher up. This is just my experience so I'm not making a formal recommendation. Bach Flowers Remedy also helps! The most imoportant help is what MIMI said: B12SHOTS!!!! It takes a while and they are very painful. But I've had it for 2 flares while fighting the doctors to consent to this form of therapy. It's just not in their regular procedure.... If you are bleeding for a prolonged time you shouldn't think twice about this. Personal Observation: I noticed that the yogurt was too accidic and harsh when my gust was so raw, so I took that away - my at the time diet doctor agreed (only one supported me through the harsh times). Of course this is long before anyone discovered or suggested the yogurt made from Goat milk. Fruit & food. I kept going back to the intro as well. I added on , and not changed foods. So I woudn't discountinue the jello made from grape juice ( I make my own) - remmember dilute 1/2 & 1/2 . Good calcium there and that helps a lot. The soup of course! But I went really, reall slow. First broth, then with a few spoonfulls of the carrots ( purree) then added on little by little the chicken. Simple White fish broiled with some salt - and after feeling a bit better added broiled turkey ( I get thighs ground at my butcher). With no flavoring but salt. Omelettes. Apple sauce ( after 4 day Intro over) and slowly mixed the apples with 1/4 and adding up to 1/2 gradually of pears. Once better continued but instead of mashing these just eate them boiled in quarters. While adding on foods when better I didn't discontinue these two (pears help me from getting constipated) and I slice them thinly, mix with an egg and dab with butter and cinnamon - bake. I've made this a base in my diet. Trying not to over do the raw fruit which is hard as we have so much of it and delicious here! Each leagal food was introduced by small spoonfulls every 2 or 3 days. These would be increased slowly and no new food unless really ready. Each time was as if I was new at it all. But keeping a journal helps too. You'll notice the improvement and feel better. Well, that's me. Good luck. Feel free to email me when ever you wish: fdivargas@... F UC 11yrs / SCD 10yrs (2 bad flares early yrs) Snead escribió: I am in the middle of a persistent flare-up. My doctor says he will no longer prescribe prednisone, because he is concerned about the consequences of long-term use. He says the next time I see him he will prescribe Imuran if the symptoms still persist. I do not want to take this harmful drug!! I've got to get well. My flare-up has existed since April...I just can't kick it! I am VERY faithful to this diet. I have gone back to the Intro diet twice in the last month. Currently I eat chicken, fish, pureed carrots, cheesecake from intro diet, and banana smoothies (bananas and homemade yogurt in a blender). I try to avoid anything that has any texture, because my gut is so raw. Last night I tried well cooked french cut green beans for supper - - I was up all night, and I'm bleeding again. Any suggestions would be helpful! UC March 2005 Asacol Freeda vitamins --------------------------------- Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
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