SCDiet and chelation, Mitochondrial Disease and AUTISM

[Guest guest]

Hi guys (Mimi help me out here),

WE still do not know what we are going to do about the HIGH calorie

needs of our daughter and continual need for calories at night. God

willing we will get answers. I thank those who tried so far.

I wanted to reply to some of the posts regarding mito.

The mitochondrial Association is saying that MANY with autism should

be tested for Mitochondrial Disease.

The Celiac Sprue Association is saying that all autistic kids should

be checked for CD.....

NOW WHY IS THIS NOT HAPPENING?

Simple answer...MOST doctors still think that autism is behavioral

and or they are not educated or on top of the latest medical info!

These kids are truly sick! Worse...the high carb high sugary diet

that is recommended for CD...keeps the intestines sick! So much

ignorance. I get so frustrated. The poor kids out there.

Yes they are saying that it is possible that mercury is one of the

causes, among hereditary and other causes. IT is not just mercury.

When one has a damaged gut, they can not help but have heavy metal

issues, as well as many other toxins that are part of the vicious

cycle destroy and damage the mitochondria in the cells. The question

is.....is mito this permanent?? Some say it is...some say it is

not. To the best of my knowledge no one has done SCD to heal it (if

even possible)...we our true pioneers.

Mimi has shared with me that SCD heals the gut, and lowers the toxic

load...so that the body can handle these heavy metals...and rid

itself of them. Some have done SCD just for heavy metal poisoning.

Elaine has this testimony somewhere. Mimi might be able to help me

find it.

From what I have learned Chelation therapy is very damaging to the

gut as well, takes good metals as well as the bad......and can cause

the vicious cycle to come back. My daughter was way too sick with

IBD and CD at one time to even consider this. Plus our DAN! said

that it can take away giftedness....no way would I take this risk

when there are other ways. The book " Gut and Psychology Syndrome " By

Dr. Natasha McBride warned us about all the dangers of

chelation.

http://www.breakingtheviciouscycle.info/elaine/dr_natasha_campbell_mcb

ride_and_scd.htm

For many reason we have chosen to be " conservative " and stick with

SCD and all it's hidden benefits. Talk about FAITH. 14 months of

fanatical adherence is paying off. Her last EGD and biopsy showed her

healed from intestinal disease...just a bit of inflammation that is

all. Out of fear of bad consequences we have not done " typical "

chelation...just SCD. All her symptoms of heavy metals have VANISHED

on the most part also.

I am looking into the HBOT therapy. For many mito miracles have

occurred with this therapy as well...but truly do not know if we

could afford it.

To those who might have this....There are only TWO specialist in

AMERICA that can test for all forty diseases. Please do not waste

your time with those who test only for a few. You could be told that

your child does not have this condition, just because they did not

test accurately and for all forty! Call the UMDF to find out where

to go to. www.umdf.org Atlanta Georgia (Dr. Shoffner) and the

doctor in Cleveland Ohio (they would have the doctors name) are the

BEST in the NATION! Many kids have the muscle biopsy done by other

groups...just to sadly have to have it done again. OFTEN getting

false negatives! This is not good. The procedure is painful! One

does not want to do it again. BEWARE. Don't go just anywhere. Thank

God we where warned about this...we almost wasted much money, time

and pain! Thought I should say something.

Antoinette (mom to Kiki-3 cd, ibd, seizures, autism and mito) SCD 2/06

Cheers to the The fanatical SCDer!