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Re: Debbie from Carol

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Hello, I was diagnosed when I was 30 years old. I had a brother and two

cousins that died from CF. I have had severe lung problems with

recurrent infections since birth. I do not have positive sweat

chlorides, do they could not truly diagnose me until there was genetic

counseling. I have both GI and Lung involvement. I had CF twenty years

before the first pancreatitis attack. There are approximately 20% of the

population of CF patients with CP. We got the double whammy!!!. I'll

try and answer any questions I can. Does your husband have a lot of pain

with the CP. I also bloat terrible after I eat and it makes it hard for

me to eat. I stay on a low fat high protein diet. I try to stay away

from sugar since I am insulin resistant, but I struggle with that. Take

care and let me know how you and he are. Prayers to all. Deb

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