a final diagnisis and prognosis

June 22, 2005

After all the complications I have had with the ERCP's and the

feeding tube finally things seem to be calming down. The doc called

me today to see how I am doing. I am still at a low rate 60ml/hr

24hrs/day on the feedings. The pain is much less and I am making it

longer between pain and nausea meds. I am still not able to do a lot

of walking as in grocery shopping and that sort of thing but at least

I am able to get out of bed and around a little.

When he called today though I finally asked the hard ?? what do I

have and will it get better? I guess I am on the wrong board now

because he said though I have had pancreatitis two times that they

have documented he does not think it is chronic that was the good

news. But, I do have gastroparesis and a pretty severe case and

since it has not gotten better after all these years and treatments

then it will not. The feeding tube will be a permanent source of

nutrition for me though I may have times I can enjoy a bite of

something. I also have fibromyalgia and severe migraines but hope

that the feeding tube will help me stay hydrated and it is a quick

source for pain meds when I need them thus helping keep everything in

check. I guess my next journey may be with a pain specalist...down

the road.

I am not handling this well right now. Before there was always hope

it was secondary to something else and therefore there was hope of

something working to fix it. Not so now. I also am not convinced I

do not have the cp as I still have that crushing pain in the center

back and right between/below my breast like when I was in the

hospital with the acute attacks from time to time. I guess I fear I

have started something else (cp) on top of what was already there

seeking a fix. They did say that the pancreas and bile duct were very

very tight and scarred shut but that the cutting they did should not

have to be repeated. I guess after so many dissapointments it is just

hard to hope again that they are right.

I feel I am the statistic they talk about when they go over the risks

that could happen but don't for the most part. I have had all the

complications that never happen. I guess someone has to fill that 5%

group.

Anyhow,

Thanks for following me through all this

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