Re :question about burn-out.

[Guest guest]

Hi Sandy,

I'm not sure if I can be helpful but i'll try.

Burn-out, as Laurie said, refers to the point at which the pancreas

is not working, not even " trying " to produce digestive enzymes, for

example.

I have been told I have very advanced CP, almost at burn-out point.

(I am not yet diabetic, although heading that way.) I am 59 and have

had CP for decades (first attack at the age of 5), which might bear

out some of what Laurie said. It is certainly true that I have less

pain now than I used to and don't get the crippling pain I once had.

However, I am also following a very low-fat and alcohol-free diet

and taking Creon (digestive enzymes) as well. It is difficult for me

to be sure what has caused the improvement in immediate symptoms.

Other people can progress to burn-out in less time but the process

is unpredictable. I have just come back to the board after a little

absence so I am out of touch. I wonder if Heidi answered this

question? She has complete burn-out, I believe, and it did not take

long for this point to be reached. However, I think warnings about

being simplistic or over-optimistic about burn-out are very

sensible. It is wise to be wary.

Laurie has said everything really important about the TP/ICT. I was

going to have a TP last year but my symptoms improved on the new

regime so the surgery was left. This is a really difficult decision

to have to make.

However, it's not a tragedy if the ERBT hasn't worked.

Yours,

Fliss