intro/questions (long)

[Guest guest]

hi everyone! my name is emma and i have just started scd for my

daughter. this past oct. she started having bad gi issues, she has

some sensory integration problems as well. at first we did gf/cf

plus enzymes and a stronger probiotic, and she did good, then this

jan. she started having more reactions to food. i did the

elimination diet and she did great, her dr suggested we try the

leaky gut test since she seems to have so many reactions - to

phenols for example. so we got the results back and her gut is

horrendously leaky. she is on colostrum and l-glutamine (both

kirkman and legal) but i found elaine's book and decided to try the

diet, that was about 3 weeks ago. i started with more advanced

foods, just to eliminate the rice products (cashew butter muffins

for ex.) plus we were going on vacation so i needed some premade

stuff. then when we got back i started stage 1 for a week before

doing the intro this weekend, and now she is on stage 1 again. i

haven't added much yet, she has the phenol problem so i've been

waiting for the phenol assist enzyme to arrive before trying the

zucchini, carrots, etc. i tried applesauce (golden delicious) but

it seemed to go through her quickly. her stool went from mushy with

some undigested stuff to firm with nothing undigested that i can see

(sorry tmi) she also has high oxalates, she was on vsl#3 but i think

she had a bad reaction to it, so i just started her on the legal

probiotic from kirkman. so we're in week three, and she seems like

she has add, it is hard to get her attention at times, she is also

urinating frequently as well as bed wetting, she has been asking for

cow milk even though she's never had it, she is hungry almost

constantly!, her nose has been running since about the second or

third day of the diet. i am hoping this is die-off. how long can

it last? if her gut was really leaky, could her die-off symptoms

take a long time or is it because i went into this thing kinda

backwards, doing stage 2 then 1 then intro? also, when do i know to

add foods? should the stool be my guide, i'm a bit confused because

the book seems to rely on that but if she is having behavioral

issues should i go slower? also, based on the info i've given, when

should i add the yogurt? i really want to, but since her gut is so

leaky i'm afraid to do anything! anyway, thanks for reading this -

this is a great group, i'm so excited to be doing this!

emma

daughter 3.5

3 weeks scd

[Guest guest]

Welcome Emma,

<<about 3 weeks ago. i started with more advanced

> foods, just to eliminate the rice products (cashew butter muffins

> for ex.) plus we were going on vacation so i needed some premade

> stuff. then when we got back i started stage 1 for a week before

> doing the intro this weekend, and now she is on stage 1 again. i

> haven't added much yet, she has the phenol problem so i've been

> waiting for the phenol assist enzyme to arrive before trying the

> zucchini, carrots, etc. i tried applesauce (golden delicious) but

> it seemed to go through her quickly. her stool went from mushy

with

> some undigested stuff to firm with nothing undigested that i can see

> (sorry tmi) she also has high oxalates,>>

<<she was on vsl#3 but i think

> she had a bad reaction to it, so i just started her on the legal

> probiotic from kirkman. so we're in week three, and she seems like

> she has add, it is hard to get her attention at times, she is also

> urinating frequently as well as bed wetting, she has been asking

for cow milk even though she's never had it, she is hungry almost

> constantly!, her nose has been running since about the second or

> third day of the diet. i am hoping this is die-off. how long can

> it last?>>

The bed wetting, increased hunger, runny nose are common at the onset

of the diet - die off symptoms. See:

http://health.groups.yahoo.com/group/pecanbread/message/66445

http://pecanbread.com/new/temporarysymptoms.html

It depends on each person how long the die off lasts - there is no

set answer (severity of gut damage, what they eat etc.). Epsom salt

baths&/or activated charcaol can help help speed it up and ease he

symptoms.

<<when do i know to add foods? should the stool be my guide, i'm a

bit confused because> the book seems to rely on that but if she is

having behavioral issues should i go slower?>>

If stools are good and the new foods do not cause negative

behavioural symptoms continue to add new foods. It is still best to

add new foods one at a time, starting with a small amount so you can

guage any reactions to them.

<< also, based on the info i've given, when

> should i add the yogurt? i really want to, but since her gut is so

> leaky i'm afraid to do anything!>>

Since she has been CF for a while you may want to wait a while

longer - a couple of weeks at least until she is stablilized on the

diet. Then start with a small amount since it will cause more die

off. 1/8-1/4 tsp of yogurt

Sheila, SCD Feb. 2001, UC 23 yrs,

mom of and