hereditary pancreatitis

[Guest guest]

Hi all,

I have recently read a lot of you talking about hereditary pancreatitis. I do

have the website that someone posted, but I would really appreciate information

from those of you who have actually been tested for it. Is it a blood test? I

was officially diagnosed with SOD and CP 5 years ago, but I remember as far back

as age 5 having " stomach problems. " I had my first upper GI when I was 7 and

was told that I had " IBS and a nervous stomach. " My dad's dad died at the age

of 51 from pancreatic cancer. He was a heavy drinker, but we still don't know

if he had CP as an underlying condition. Also, my dad's mom always had " stomach

problems. " She wouldn't even go out of her house because of pain and diarrhea

all the time. She too, in her day, was a drinker, but again, did she have

underlying CP? I really would like to find out if my CP is hereditary as I have

two boys (ages 6 and 8) and my 8-year-old mimics a lot of my " stomach problems "

that I had at his age.

I would really appreciate any information on this.

Also, I had a liver biopsy for work up to have a TP/ICT and was found to have

over an 80% fatty liver. Therefore, I cannot have the TP/ICT. Does anyone know

if this condition gets better on its own and/or how serious it is?

Thanks to all!

Thoughts and prayers to all!

T. (Ohio)

[Guest guest]

,

sorry not to have answered sooner, I don't read the posts every

day. I have been tested for the heredity pancreatitis. What it is

is a very simple blood test. They draw one or two vials of blood

from your arm and that's it. It was discovered that while mine is

not the usual form of heredity I do have a genetic abnormality that

is most likely the cause of my pancreatitis. They told me it really

wouldn't help to have my children tested as there is no prevention

besides eating healthy low fat foods. We decided against testing

them because all it would accomplish is making them nervous if it

shows they have the abnormality. The abnormality does not guarantee

they will get pancreatitis just makes them more susceptible.

The reason I had the testing done was to determine the cause of my

pancreatitis. They were coming up with no explaination at all and

after 3 " idiopathic " attacks and now chronic pancreatitis I wanted

answers as to why. I hope this helps answer at least one of your

questions. If you want to know any more about the genetic testing

you can e-mail me direct at pobox305@... I tend to check my e-

mail more often than the posts.

Theresa

> T. (Ohio)

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