To Jill Decker

[Guest guest]

Jill,

Please don't think that it would be " inappropriate " for you to be involved with

this group because your CP is related to your CF. The cause of your

pancreatitis doesn't matter to us, all we are interested in is supporting and

helping ANYONE with chronic pancreatitis. As you know, CP is not a

condition that many people understand or show emphathy for. People don't

understand it, and usually don't want to learn or understand about it, when

you tell them that's why you're not feeling so well today.....

Yet we do understand it better than anyone, and want to help anybody else

who has problems or questions dealing with the disease. So please don't

ever feel that you aren't welcome or don't have license to be here just like

anyone else with CP.

HOW we got here is only one part of the whole equation, there's much more to

it than that, and it's what's going on now and afterward that we can change, or

help others to deal with. We can't change the causes that brought us here,

but we can, to a degree, change what happens from this point forward, both

spiritually and medically, and you are as deserving of that attention as anyone

else.

So please stop by again, and frequently.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

www.pancassociation.org/anthology#Heidi.html

Bluffton, SC

SC State & SE Regional Representative

Pancreatitis Association, International

www.health.groups.yahoo.com/group/pancreatitis/

Note: All comments or advice are personal opinion only, and should

not be substituted for professional medical consultation.

Jill wrote:

>I essentially stopped reading and posting in this group when I found out

that I had CF because I thought nobody would think it appropriate for a person

with CF related pancreatitis to participate.

[Guest guest]

Heidi,

Thanks so much for your kind words. I remember you well and remember your

kindness and thoughtfulness. I also remember a bit about you, medically. How

have you been feeling? When I was last on you were trying, for the 2nd time, to

get SSD. I'm hoping you were finally approved. It's a long, nasty process but

worth it once approved.

You're right that people don't " get it " . It's the age-old " you don't look sick " .

Makes my skin crawl. I have so many things going on, even now, and I still get

that.

Anyway, just wanted to say thank you.

Fondly,

Jill

To Jill Decker

Jill,

Please don't think that it would be " inappropriate " for you to be involved

with

this group because your CP is related to your CF. The cause of your

pancreatitis doesn't matter to us, all we are interested in is supporting and

helping ANYONE with chronic pancreatitis. As you know, CP is not a

condition that many people understand or show emphathy for. People don't

understand it, and usually don't want to learn or understand about it, when

you tell them that's why you're not feeling so well today.....

Yet we do understand it better than anyone, and want to help anybody else

who has problems or questions dealing with the disease. So please don't

ever feel that you aren't welcome or don't have license to be here just like

anyone else with CP.

HOW we got here is only one part of the whole equation, there's much more to

it than that, and it's what's going on now and afterward that we can change,

or

help others to deal with. We can't change the causes that brought us here,

but we can, to a degree, change what happens from this point forward, both

spiritually and medically, and you are as deserving of that attention as

anyone

else.

So please stop by again, and frequently.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

www.pancassociation.org/anthology#Heidi.html

Bluffton, SC

SC State & SE Regional Representative

Pancreatitis Association, International

www.health.groups.yahoo.com/group/pancreatitis/

Note: All comments or advice are personal opinion only, and should

not be substituted for professional medical consultation.

Jill wrote:

>I essentially stopped reading and posting in this group when I found out

that I had CF because I thought nobody would think it appropriate for a person

with CF related pancreatitis to participate.

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