To - some suggestions

[Guest guest]

Hi ,

I am happy that you are managing fairly well at work. I bet you

will get better at figuring out what works and doesn't as you go

along. It can be hard as many times there doesn't seem to be

any cause and effect for what we do and what happens. The day

that you think you have figured it out, is the day that the whole

pain / nausea thing throws something new at you.

But some suggestions based on what I have learned....is

basically eat smaller meals if possible and really, really watch

your fat. I have noticed that I have sorta like a " bank " of fatty food

allowances. If I expect to be eating a higher fat meal in a day or

two (like a birthday celebration or something) then I eat really low

fat for the couple of days beforehand to build up a " credit " . I have

also found that the longer I can avoid eating " real " food the better

off I start to feel. But then I get the craving for more substantial

food after a week or so, so I try to add that to my diet but in small

amounts per day.

I guess in a way, I also ration my energy, based on what I expect

to happen in the immediate future and the near future. If I have a

big day planned, then I try to have a more restful day before that.

The main thing is to not fight in your mind what is going on in

your body. That is the hardest lesson I have learned and am still

learning: That it isn't copping out to have to rest or stop doing

activities that I still feel a 90 year/old can do without getting tired.

It is very humbling.

Other than that I cannot think of anything else to add. It is very

trial and error and can change from one day to another.....

Laurie