Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 Hi, I have a 2-year-old with -Magenis Syndrome on SCD to control her excessive gas and bloating and help with behavior -- she has never had an ASD diagnosis but does bang her head or otherwise hurt herself when she is angry, which is sometimes for no apparent reason and often when she is passing gas. She also has Sensory Processing Disorder. She started SCD 3 weeks ago and I am just now starting to see some improvement in behavior. My second child is exclusively breastfed and about to turn 6 months. She is developing normally, and I am getting ready to start her on solids. I am having a hard time deciding whether I should start her off with SCD as well. Obviously breastmilk wouldn't be considered " legal " because of the lactose and I'm not planning to wean her -- I hope she nurses until she is at least 2, maybe longer. But I am wondering whether I should give her rice cereal, for example. My main reasons for considering SCD for my baby are to help prevent autism and to keep my older daughter from sneaking snacks from her sister. My 2-year-old has a hard time keeping her hands off others' food and would take the Cheerios or whatever from the baby if she had the chance. My husband's opinion is that we shouldn't " punish " the baby for her sister's disability -- she should be able to eat whatever (healthy food) she wants. It certainly would be less expensive and more convenient to put the baby on a regular diet. My husband and I are still eating a semi-regular diet. I try to make SCD dinners but sometimes end up making frozen pizza for us and giving SCD leftovers to our daughter. My thought is to put the baby on SCD for the first few years to try to prevent autism and also not worry about the girls sharing food with one another. Then once the autism risk has passed and she is spending more time away from me I could allow her to have illegal food. So my questions are, will SCD plus breastmilk help to prevent autism? And are there any reasons other than the expense and inconvenience to avoid putting an infant on SCD? Thanks so much Katy mom to 5 months and Amber 2 years old -Magenis Syndrome, excessive gas and bloating SCD 3 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 I say go for it!! It would only be a healthy start to your baby's life! Breast milk is legal for infants. That is the best way to go. Good for you for planning to nurse her until she is two years old. Are you on the diet as well? This will not be a punishment to your baby as she will not know any other way of eating and will give her the best chances of staying healthy. My boys were put on SCD at the age of two years. They just turned three and do not know any other way of eating and really enjoy the special SCD treats I make for them. My husband and I are on the diet as well in support of them and we have never felt better. If I were you, I would start her on cooked pureed fruits or veggies and don't even mess with the rice cereal. That is where my boys' trouble began. Good luck on your decision. Dana and Garrett, 3 years old as of Mar 24 SCD One Year!!!!! Celiac, ASD, Speech and Motor Apraxia --------------------------------- Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 HI Katy! My son now 21 months has been a SCD baby right from the start at about 4 months old. He had goat milk right from the goat for the first year of life. He has never gotten any grains yet. He is doing very well and his risk of developing autism is NIL thanks to this diet I feel! He is now 25 pounds and thriving! He is so very well and content! Jezeriah has down syndrome. Welcome to the group and all the best with the diet! Cheers! Pamela > > Hi, > > I have a 2-year-old with -Magenis Syndrome on SCD to control her > excessive gas and bloating and help with behavior -- she has never had an > ASD diagnosis but does bang her head or otherwise hurt herself when she is > angry, which is sometimes for no apparent reason and often when she is > passing gas. She also has Sensory Processing Disorder. She started SCD 3 > weeks ago and I am just now starting to see some improvement in behavior. > > My second child is exclusively breastfed and about to turn 6 months. She is > developing normally, and I am getting ready to start her on solids. I am > having a hard time deciding whether I should start her off with SCD as > well. Obviously breastmilk wouldn't be considered " legal " because of the > lactose and I'm not planning to wean her -- I hope she nurses until she is > at least 2, maybe longer. But I am wondering whether I should give her rice > cereal, for example. > > My main reasons for considering SCD for my baby are to help prevent autism > and to keep my older daughter from sneaking snacks from her sister. My > 2-year-old has a hard time keeping her hands off others' food and would take > the Cheerios or whatever from the baby if she had the chance. > > My husband's opinion is that we shouldn't " punish " the baby for her sister's > disability -- she should be able to eat whatever (healthy food) she wants. > It certainly would be less expensive and more convenient to put the baby on > a regular diet. My husband and I are still eating a semi-regular diet. I > try to make SCD dinners but sometimes end up making frozen pizza for us and > giving SCD leftovers to our daughter. > > My thought is to put the baby on SCD for the first few years to try to > prevent autism and also not worry about the girls sharing food with one > another. Then once the autism risk has passed and she is spending more time > away from me I could allow her to have illegal food. > > So my questions are, will SCD plus breastmilk help to prevent autism? And > are there any reasons other than the expense and inconvenience to avoid > putting an infant on SCD? > > Thanks so much > Katy > mom to 5 months > and Amber 2 years old -Magenis Syndrome, excessive gas and bloating > SCD 3 weeks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 SCD would be the healthiest thing for her. It would be of more benefit for her to skip the grains for now, and stick with cooked veggies, fruits, and meats. Of course, you're concerned about autism. If your two year old has gut issues, your baby has a good chance of developing them as well. Maybe not as severe, but it is a possibility. Meleah SCD for a healthy infant? Hi, I have a 2-year-old with -Magenis Syndrome on SCD to control her excessive gas and bloating and help with behavior -- she has never had an ASD diagnosis but does bang her head or otherwise hurt herself when she is angry, which is sometimes for no apparent reason and often when she is passing gas. She also has Sensory Processing Disorder. She started SCD 3 weeks ago and I am just now starting to see some improvement in behavior. My second child is exclusively breastfed and about to turn 6 months. She is developing normally, and I am getting ready to start her on solids. I am having a hard time deciding whether I should start her off with SCD as well. Obviously breastmilk wouldn't be considered " legal " because of the lactose and I'm not planning to wean her -- I hope she nurses until she is at least 2, maybe longer. But I am wondering whether I should give her rice cereal, for example. My main reasons for considering SCD for my baby are to help prevent autism and to keep my older daughter from sneaking snacks from her sister. My 2-year-old has a hard time keeping her hands off others' food and would take the Cheerios or whatever from the baby if she had the chance. My husband's opinion is that we shouldn't " punish " the baby for her sister's disability -- she should be able to eat whatever (healthy food) she wants. It certainly would be less expensive and more convenient to put the baby on a regular diet. My husband and I are still eating a semi-regular diet. I try to make SCD dinners but sometimes end up making frozen pizza for us and giving SCD leftovers to our daughter. My thought is to put the baby on SCD for the first few years to try to prevent autism and also not worry about the girls sharing food with one another. Then once the autism risk has passed and she is spending more time away from me I could allow her to have illegal food. So my questions are, will SCD plus breastmilk help to prevent autism? And are there any reasons other than the expense and inconvenience to avoid putting an infant on SCD? Thanks so much Katy mom to 5 months and Amber 2 years old -Magenis Syndrome, excessive gas and bloating SCD 3 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 me too! i am about to start my younger daughter (almost 5 months) on solids next month and she will be doing the scd. my eldest daughter (age 3 - leaky gut) and i just started too, and i feel like by doing it along with extended breastfeeding she is getting a great start. plus i don't know why my eldest's gut is leaky so i really would rather prevent it from happening again if i can. i have a follow up question though, when and how to introduce the yogurt? the same 1/8 tsp? emma In pecanbread , " Katy Tra " wrote: > > Hi, > > I have a 2-year-old with -Magenis Syndrome on SCD to control her > excessive gas and bloating and help with behavior -- she has never had an > ASD diagnosis but does bang her head or otherwise hurt herself when she is > angry, which is sometimes for no apparent reason and often when she is > passing gas. She also has Sensory Processing Disorder. She started SCD 3 > weeks ago and I am just now starting to see some improvement in behavior. > > My second child is exclusively breastfed and about to turn 6 months. She is > developing normally, and I am getting ready to start her on solids. I am > having a hard time deciding whether I should start her off with SCD as > well. Obviously breastmilk wouldn't be considered " legal " because of the > lactose and I'm not planning to wean her -- I hope she nurses until she is > at least 2, maybe longer. But I am wondering whether I should give her rice > cereal, for example. > > My main reasons for considering SCD for my baby are to help prevent autism > and to keep my older daughter from sneaking snacks from her sister. My > 2-year-old has a hard time keeping her hands off others' food and would take > the Cheerios or whatever from the baby if she had the chance. > > My husband's opinion is that we shouldn't " punish " the baby for her sister's > disability -- she should be able to eat whatever (healthy food) she wants. > It certainly would be less expensive and more convenient to put the baby on > a regular diet. My husband and I are still eating a semi-regular diet. I > try to make SCD dinners but sometimes end up making frozen pizza for us and > giving SCD leftovers to our daughter. > > My thought is to put the baby on SCD for the first few years to try to > prevent autism and also not worry about the girls sharing food with one > another. Then once the autism risk has passed and she is spending more time > away from me I could allow her to have illegal food. > > So my questions are, will SCD plus breastmilk help to prevent autism? And > are there any reasons other than the expense and inconvenience to avoid > putting an infant on SCD? > > Thanks so much > Katy > mom to 5 months > and Amber 2 years old -Magenis Syndrome, excessive gas and bloating > SCD 3 weeks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 i wouldn't hesitate to put the baby on SCD too, because food for food, it is SO much healthier than a regular diet. with SCD you know every bite is nutritious and not filler or junk. what your husband said is illogical. how would the baby know that she is being " punished " ? she will love the food, especially if it's what big sis is eating. of course, if you really want her to get the full benefit of the diet, YOU will have to eat that way as well. good luck to you! silvia > me too! i am about to start my younger daughter (almost 5 months) > on solids next month and she will be doing the scd. my eldest > daughter (age 3 - leaky gut) and i just started too, and i feel like > by doing it along with extended breastfeeding she is getting a great > start. plus i don't know why my eldest's gut is leaky so i really > would rather prevent it from happening again if i can. i have a > follow up question though, when and how to introduce the yogurt? > the same 1/8 tsp? > > emma > > In pecanbread , " Katy Tra " wrote: >> >> Hi, >> >> I have a 2-year-old with -Magenis Syndrome on SCD to control > her >> excessive gas and bloating and help with behavior -- she has never > had an >> ASD diagnosis but does bang her head or otherwise hurt herself > when she is >> angry, which is sometimes for no apparent reason and often when > she is >> passing gas. She also has Sensory Processing Disorder. She > started SCD 3 >> weeks ago and I am just now starting to see some improvement in > behavior. >> >> My second child is exclusively breastfed and about to turn 6 > months. She is >> developing normally, and I am getting ready to start her on > solids. I am >> having a hard time deciding whether I should start her off with > SCD as >> well. Obviously breastmilk wouldn't be considered " legal " because > of the >> lactose and I'm not planning to wean her -- I hope she nurses > until she is >> at least 2, maybe longer. But I am wondering whether I should > give her rice >> cereal, for example. >> >> My main reasons for considering SCD for my baby are to help > prevent autism >> and to keep my older daughter from sneaking snacks from her > sister. My >> 2-year-old has a hard time keeping her hands off others' food and > would take >> the Cheerios or whatever from the baby if she had the chance. >> >> My husband's opinion is that we shouldn't " punish " the baby for > her sister's >> disability -- she should be able to eat whatever (healthy food) > she wants. >> It certainly would be less expensive and more convenient to put > the baby on >> a regular diet. My husband and I are still eating a semi-regular > diet. I >> try to make SCD dinners but sometimes end up making frozen pizza > for us and >> giving SCD leftovers to our daughter. >> >> My thought is to put the baby on SCD for the first few years to > try to >> prevent autism and also not worry about the girls sharing food > with one >> another. Then once the autism risk has passed and she is spending > more time >> away from me I could allow her to have illegal food. >> >> So my questions are, will SCD plus breastmilk help to prevent > autism? And >> are there any reasons other than the expense and inconvenience to > avoid >> putting an infant on SCD? >> >> Thanks so much >> Katy >> mom to 5 months >> and Amber 2 years old -Magenis Syndrome, excessive gas and > bloating >> SCD 3 weeks >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2007 Report Share Posted June 20, 2007 Hi Emma, << me too! i am about to start my younger daughter (almost 5 months) > on solids next month and she will be doing the scd. my eldest > daughter (age 3 - leaky gut) and i just started too, and i feel like > by doing it along with extended breastfeeding she is getting a great > start. plus i don't know why my eldest's gut is leaky so i really > would rather prevent it from happening again if i can. i have a > follow up question though, when and how to introduce the yogurt? > the same 1/8 tsp?>> Usually cow milk is suggested for 12 months and up. I'd check with La lEche league and/or a good doctor if it differs for goat milk which is closer to human. If the reasoning is the size of the milk protein you may be able to start sooner than 12 months. You may be able to give probiotics and/or make yogurt out of breast milk. If you do this start with 1/8 tsp per regular directions. Sheila, SCD Feb. 2001, UC 23yrs mom of and Quote Link to comment Share on other sites More sharing options...
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