Re: no response

[Guest guest]

,

I try to reply but somehow my posts aren't making it on the board anymore.

Let's see if this one does.

I have been through the stenting progress. It is my opinion ONLY that I

don't wanna do it. I have had many stents and spent so much time away from

my family doing it only to have to do it more. The surgeon says I need

progressive stenting in hopes to get the duct to " scar " in an open position.

Now we all know what happens with scars. They build scar tissue that

eventually has to be removed. I understand wanting the duct free flowing,

but in my opinion ONLY, I do not intend to spend my life going through

surgery after surgery for a few months, days or weeks of no pain. I prefer

to use Lamaze methods to control pain and then turn to pain meds after that.

My surgeon also told me that if he didn't do this progressive stenting, I

would have an attack that will land me in the ICU and then at that point he

will be able to do NOTHING to help me. That was 3 years and 2 months ago.

Cross your fingers please! I am getting nervous that an attack will be

coming soon. I have heard that the longest anyone went between attacks was 4

years. I haven't been to the ER in that amount of time either. But of

course, I do have my amount of daily pain to deal with.

I have moderate to severe chronic pancreatitis and SOD. Mine is idiopathic.

I can not help you with the hereditary part of yours.

There is my opinion on stenting. For some people it works and for others it

doesn't. You also have to decide if you want to spend so much time away from

your family if in the end, you have to keep repeating this whole process. I

chose not to do it. BUT let me tell you this, if it came done to being a

life or death situation, then I would of course, for absolute sure, be doing

it.

Hope that helps in some way. If this does happen to post and you want to

contact me privately, feel free to. I'm usually always here. :-)

Sandy in CA

> Hi all,

>

I posted in regards to IU and stenting and about hereditary pancreatitis.

I don't know if they didn't go through or what. I hate to say this, but

sometimes I feel that if one doesn't post a lot they don't get reponses. I

pray for each and everyone in this group.

>

> I do not mean to offend anyone, but I am just frustrated that no one has

> emailed me back.

>

> Thoughts and prayers to all!

>

> T. (Ohio)

[Guest guest]

,

Having had no experience with stenting in my journey with CP, I have

never felt comfortable giving anyone any kind of advice about it.

The same goes for IU. I've never seen a doctor there or been

hospitalized there, so don't feel qualified to answer as to it's

reputation.

This may be the case with many more of our members, too. Usually

when a person doesn't reply to someone else's post inquiries, it's

because they don't feel qualified or experienced enough to answer

the questions within the post.

Please don't feel that your questions went unheard, or that you

have to post a lot in order to receive answers. That's not the

case at all. The reason so few responses came through was most

likely because of the observations I made above. I'm glad that

you posted again about this, as it did bring your questions to

the forefront again, and I'm sure that will jolt enough people

with experience in these matters to reply.

I hope you receive the kind of information that will be most helpful

to you.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

www.pancassociation.org/anthology#Heidi.html

Bluffton, SC

SC State & SE Regional Representative

Pancreatitis Association, International

www.health.groups.yahoo.com/group/pancreatitis/

Note: All comments or advice are personal opinion only, and should

not be substituted for professional medical consultation.

[Guest guest]

,

I am so sorry. I don't have any answers in regards to your problem. I didn't

post because I didn't have any info. I am sorry again! I did read it and

thought someone would respond who had a similar situation. I have had the same

problem before when I have posted and it gets lost at sea so to speak.

Especially

when there is a flood of posts at one time. I do hope you are feeling better!

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "