a note for you (plus update for others)

[Guest guest]

You said: " My child didn't develop autism or LKS until I weaned him

at 2 and a half. Talk about regrets! I really believe the breast milk

held off his disease for as long as possible. But I found nursing

exhausting. So what is a mother to do? "

I cried when I read this. We can't blame ourselves. IT is exhausting!

But know what you mean. But truly I believe that the autism and LKS

was just waiting and got worse...it was not caused by your weaning.

Please know this!

My duaghter's health issues got WAY worse when I tried ot wean. But

this is when we found that the underlying cause was Mitochondrial in

orgin. When they spoke of G TUBE and IV port....I nursed and

nursed...and thank God was able to bring my milk back with the help

of my lactation consultant and La Leche that has truly SAVED our

daughter...not me. If it was for me...she would be weanted. I now

know better. But did not always.

This SET BACK was caused by just cutting back. I did not want to be

100% weaned every, just needed a break. I thought I could supplement

with " just " SCD foods. But the SCDiet is the next best thing to my

human milk. But we can only do what we can. MOST babies in Amerca

don't get nursed for more than a few months. So you did much better

than average. A+ in my book!

Thank God you are feeding your son SCD! You are a GOOD MOM! It will

pay off! IT did for us. She doesn't even need her seisure meds, and

I am certain that it is becasue of SCD! She just recently started to

POINT and wave! She never did this before. But SCD helped her

to " talk " , interact more typical for her age and stoped her

deleriums. Heck just months into SCD we saw improvement!

10 times a day nursing her...is NUTS. But we will make it. It is

part of my life by now. So I just need to remember that she is

my " special " kid and be graeful that I can do this for her. Her

autism will get worse when she does not nurse on demand.

Takikng better care of myself might help. I regret this, all too

often. My other children are taxing also. My poor husband...thank

God he understands. He is always up on the shelf. He helps much.

But our marriage is still stressed. ON the weekends he lets me

sleep.

We can not beat up on ourselves! WE are all doing the best we can

here. MOST of us WINGING IT! " We " will make it! " We " meaning all

of us SCD mommies of these wonderful kids!

Antoinette (mom to KIki-3. Xena-2.5 and 6)

SCD 2/06