Lupus, autoimmune conditions and pancreatitis

[Guest guest]

Hi all,

Good wishes to all from the UK. I was away in Ely (near Cambridge)

for the weekend, staying with my son and girlfriend. Other son and

wife joined us. Wonderful weekend but panc really played up the

first day, probably result of over-tiredness and a little

carelessness over food the previous evening. Bad again to-day but

this time it can only be tiredness as I'm back to my normal very

careful diet. Bizarre and horrid disease!! Not only the pain but

the " ill " feeling is so debilitating.

Enough!

I was interested to read references to lupus. I have an appointment

with my consultant on 13th July when I should get the results of

blood tests for antibodies in case I have an autoimmune condition

which is the cause of my CP. I also have coeliac disease, a fact

which might favour the autoimmune diagnosis but I think it will

still turn out to be the hereditary pancreatitis which has been

suspected all along. Having read descriptions of autoimmune CP, I

don't think my symptoms and test results, imaging etc.quite fit the

bill. On the other hand, my mother's symptoms (she died in 1965 of

acute pancreatitis after many years with CP) could certainly be

explained by a lupus diagnosis. In fact, she had an incorrect

diagnosis of rheumatoid arthritis for many years. When that was

abandoned, nothing else replaced it but I have no idea what was

known about lups at that time. Even to-day it's relatively difficult

to diagnose, I understand?

This is a new topic for me so I have little to contribute....only to

learn!

Warmest wishes,

Fliss (UK)

Time will tell. I'll share the results, of course.

[Guest guest]

Dear sweet Fliss. I was so sad to hear the your weekend was so

cruely disrupted by this awful disease. Its like I was telling

Heidi; even a welcomed and anticipated get away can throw one into a

bad spell. that was what I dreaded the most and it got to the point

where I just didn't make plans of anykind. It is such a dreadful way

to live. That lack of consistency can be so frustrating to say the

very least.

Cambride is such a beautful area. We spent a couple of days there

when I toured the UK as a girl. I went to the large market and had

such a wonderful time looking at all the local fare. I bought a few

pieces of jewelery that I still have. There was a place called

Iklingham (sp?) that I particularily enjoy. They had a very very old

church that was gaurded by two very agressive geese. I remember my

father being snapped at by one that left quite a nasty welt. However

it was sooo funny. You had to buy food from a local vender to feed

the geese in order to pass. He wasn't going to bribe a goose and was

rather empatic about that, well the geese had there own agenda and he

was not about to convince them otherwise. The chapel was known for

it gravesites and people would come from all over to to rubbings. We

also visited a monestary ruin that was very interesting. I really

loved my summer in the UK.

I hope you find some answers to the cause of your cp. I know it

would ease your mind knowing that what you learn now will benefit

your sons and furture grandchildren. So when is Micheal ( that is

his name I hope my memory is really shot even tho I cant forget Ant

he's such a card) going to give you a grandchild?

Do feel better soon Fliss and give Jim my best. Please let me know

how your test come out but I do hope you dont have lupus; my father

had it and its prety rough.

Warmly,